{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,11]],"date-time":"2026-05-11T14:50:38Z","timestamp":1778511038119,"version":"3.51.4"},"reference-count":18,"publisher":"American Academy of Pediatrics (AAP)","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2012,6,1]]},"abstract":"<jats:sec>\n                  <jats:title>BACKGROUND AND OBJECTIVE:<\/jats:title>\n                  <jats:p>Despite improvements in congenital heart disease (CHD) survival over the past 4 decades, ethnic disparities persist. Several studies have shown higher postoperative CHD adjusted mortality in black and Hispanic children. Others noted that non\u2013English-speaking language at home was associated with appointment noncompliance, which the parents attributed to misunderstanding and living too far from a health center. The purpose of this study was to determine the effect of home distance to a cardiac center, or having a Latin American\u2013born parent, on first-year mortality in infants with severe CHD.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>METHODS:<\/jats:title>\n                  <jats:p>Infants with severe CHD, having an estimated first-year mortality &amp;gt;25%, born 1996\u20132003, were identified from the Texas Birth Defects Registry and linked to state and national vital records. We examined the effects of defect type; birth weight; gestational age; extracardiac anomalies; infant gender; maternal race\/ethnicity, marital status, and education; residence in a Texas county bordering Mexico; home distance to cardiac center; and parental birth country on first-year survival.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>RESULTS:<\/jats:title>\n                  <jats:p>Overall first-year survival was 59.9%, and no race\/ethnic differences were noted; however, survival was significantly (P &amp;lt; .05) lower for Hispanic infants with hypoplastic left heart syndrome. Neither home distance to a cardiac center nor parental birth country was related to first-year survival; however, survival was noted to be lower in Texas counties bordering Mexico, counties that have high rates of poverty.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>CONCLUSIONS:<\/jats:title>\n                  <jats:p>Further studies are needed to determine if these disparities in survival of infants with severe CHD are attributable to delays in referral to a cardiac center.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1542\/peds.2011-3114","type":"journal-article","created":{"date-parts":[[2012,5,8]],"date-time":"2012-05-08T05:24:59Z","timestamp":1336454699000},"page":"1118-1124","source":"Crossref","is-referenced-by-count":49,"title":["Effect of Acculturation and Distance From Cardiac Center on Congenital Heart Disease Mortality"],"prefix":"10.1542","volume":"129","author":[{"given":"David E.","family":"Fixler","sequence":"first","affiliation":[{"name":"Division of Pediatric Cardiology, Department of Pediatrics, University of Texas Southwestern Medical Center, Dallas, Texas;"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Wendy N.","family":"Nembhard","sequence":"additional","affiliation":[{"name":"Department of Epidemiology and Biostatistics, College of Public Health, University of South Florida, Tampa, Florida; and"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ping","family":"Xu","sequence":"additional","affiliation":[{"name":"Department of Epidemiology and Biostatistics, College of Public Health, University of South Florida, Tampa, Florida; and"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mary K.","family":"Ethen","sequence":"additional","affiliation":[{"name":"Birth Defects Epidemiology and Surveillance Branch, Texas Department of State Health Services, Austin, Texas"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mark A.","family":"Canfield","sequence":"additional","affiliation":[{"name":"Birth Defects Epidemiology and Surveillance Branch, Texas Department of State Health Services, Austin, Texas"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"417","published-online":{"date-parts":[[2012,6,1]]},"reference":[{"issue":"19","key":"2021120903461785900_B1","doi-asserted-by":"crossref","first-page":"2376","DOI":"10.1161\/01.CIR.103.19.2376","article-title":"Mortality associated with congenital heart defects in the United States: trends and racial disparities, 1979\u20131997.","volume":"103","author":"Boneva","year":"2001","journal-title":"Circulation"},{"key":"2021120903461785900_B2"},{"key":"2021120903461785900_B3"},{"issue":"2","key":"2021120903461785900_B4","doi-asserted-by":"crossref","first-page":"103","DOI":"10.1007\/s00246-002-0244-y","article-title":"Regional racial and ethnic differences in mortality for congenital heart surgery in children may reflect unequal access to care.","volume":"24","author":"Gonzalez","year":"2003","journal-title":"Pediatr Cardiol"},{"issue":"3","key":"2021120903461785900_B5","doi-asserted-by":"crossref","first-page":"321","DOI":"10.1007\/s00246-005-7121-4","article-title":"Racial and ethnic disparities in mortality following congenital heart surgery.","volume":"27","author":"Benavidez","year":"2006","journal-title":"Pediatr Cardiol"},{"issue":"5","key":"2021120903461785900_B6","doi-asserted-by":"crossref","first-page":"e1128","DOI":"10.1542\/peds.2010-2702","article-title":"Racial\/ethnic disparities in risk of early childhood mortality among children with congenital heart defects.","volume":"127","author":"Nembhard","year":"2011","journal-title":"Pediatrics"},{"key":"2021120903461785900_B7"},{"key":"2021120903461785900_B8","unstructured":"Shin HB, Bruno R. Language use and English speaking ability Census 2000 brief; 2003. Available at: www.census.gov\/prod\/2003pubs\/c2kbr-29.pdf"},{"issue":"4","key":"2021120903461785900_B9","doi-asserted-by":"crossref","first-page":"418","DOI":"10.1177\/003335490512000409","article-title":"Limited English proficiency, primary language at home, and disparities in children\u2019s health care: how language barriers are measured matters.","volume":"120","author":"Flores","year":"2005","journal-title":"Public Health Rep"},{"issue":"8","key":"2021120903461785900_B10","doi-asserted-by":"crossref","first-page":"1449","DOI":"10.2105\/AJPH.2005.069500","article-title":"Parental English proficiency and children\u2019s health services access.","volume":"96","author":"Yu","year":"2006","journal-title":"Am J Public Health"},{"key":"2021120903461785900_B11"},{"issue":"3","key":"2021120903461785900_B12","doi-asserted-by":"crossref","first-page":"354","DOI":"10.1016\/j.jpeds.2008.03.009","article-title":"Decreasing number of deaths of infants with hypoplastic left heart syndrome.","volume":"153","author":"Gordon","year":"2008","journal-title":"J Pediatr"},{"issue":"2","key":"2021120903461785900_B13","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1367\/A03-094R.1","article-title":"Parent\u2019s language of interview and access to care for children with special health care needs.","volume":"4","author":"Yu","year":"2004","journal-title":"Ambul Pediatr"},{"issue":"3","key":"2021120903461785900_B14","doi-asserted-by":"crossref","first-page":"e322","DOI":"10.1542\/peds.2004-1353","article-title":"Importance of generational status in examining access to and utilization of health care services by Mexican American children.","volume":"115","author":"Burgos","year":"2005","journal-title":"Pediatrics"},{"issue":"2","key":"2021120903461785900_B15","doi-asserted-by":"crossref","first-page":"e286","DOI":"10.1542\/peds.2007-1243","article-title":"Racial and ethnic disparities in medical and dental health, access to care, and use of services in US children.","volume":"121","author":"Flores","year":"2008","journal-title":"Pediatrics"},{"issue":"7","key":"2021120903461785900_B16","doi-asserted-by":"crossref","first-page":"1722","DOI":"10.1016\/0735-1097(93)90393-F","article-title":"Ethnicity and socioeconomic status: impact on the diagnosis of congenital heart disease.","volume":"21","author":"Fixler","year":"1993","journal-title":"J Am Coll Cardiol"},{"issue":"5","key":"2021120903461785900_B17","doi-asserted-by":"crossref","first-page":"1073","DOI":"10.1542\/peds.105.5.1073","article-title":"Factors associated with age at operation for children with congenital heart disease.","volume":"105","author":"Chang","year":"2000","journal-title":"Pediatrics"},{"issue":"9","key":"2021120903461785900_B18","doi-asserted-by":"crossref","first-page":"892","DOI":"10.1001\/archpedi.1997.02170460030005","article-title":"Factors influencing age at referral of children with congenital heart disease.","volume":"151","author":"Perlstein","year":"1997","journal-title":"Arch Pediatr Adolesc Med"}],"container-title":["Pediatrics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/publications.aap.org\/pediatrics\/article-pdf\/129\/6\/1118\/1090482\/peds_2011-3114.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/publications.aap.org\/pediatrics\/article-pdf\/129\/6\/1118\/1090482\/peds_2011-3114.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,12,9]],"date-time":"2021-12-09T19:31:50Z","timestamp":1639078310000},"score":1,"resource":{"primary":{"URL":"https:\/\/publications.aap.org\/pediatrics\/article\/129\/6\/1118\/32173\/Effect-of-Acculturation-and-Distance-From-Cardiac"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2012,6,1]]},"references-count":18,"journal-issue":{"issue":"6","published-online":{"date-parts":[[2012,6,1]]},"published-print":{"date-parts":[[2012,6,1]]}},"URL":"https:\/\/doi.org\/10.1542\/peds.2011-3114","relation":{},"ISSN":["0031-4005","1098-4275"],"issn-type":[{"value":"0031-4005","type":"print"},{"value":"1098-4275","type":"electronic"}],"subject":[],"published":{"date-parts":[[2012,6,1]]}}}