{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,20]],"date-time":"2026-09-20T21:41:30Z","timestamp":1789940490615,"version":"4.0.1"},"reference-count":38,"publisher":"American Academy of Pediatrics (AAP)","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2016,6,1]]},"abstract":"<jats:sec>\n                  <jats:title>OBJECTIVE:<\/jats:title>\n                  <jats:p>To explore the attitudes, preferences, and experiences of patients with cystic fibrosis (CF) and CF providers toward sexual and reproductive health (SRH) care for young women with CF.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>METHODS:<\/jats:title>\n                  <jats:p>Young women with CF aged 18 to 30 years from a US CF care center and pediatric and adult CF program directors from a national sample participated in qualitative interviews investigating their experiences regarding SRH care and their attitudes and preferences toward SRH care provision in the CF setting. Interviews were audio-recorded, transcribed, and coded by using a thematic analysis approach.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>RESULTS:<\/jats:title>\n                  <jats:p>Twenty-two patient participants and 16 CF program directors were interviewed. Themes shared by both groups included the importance of SRH discussion in the CF care setting, patient and provider discomfort as a barrier to SRH care, and the need for SRH educational resources and provider training to improve SRH care. Providers highlighted the lack of standardization around SRH care in the current CF care model. Patients desired SRH educational resources coupled with early SRH discussions initiated by their CF provider.<\/jats:p>\n               <\/jats:sec>\n               <jats:sec>\n                  <jats:title>CONCLUSIONS:<\/jats:title>\n                  <jats:p>Both CF providers and patients agree that the CF provider has a fundamental role in providing CF-specific SRH care. Educational resources coupled with individualized SRH discussions may facilitate improved SRH care for young women with CF. Investigation into the implementation of SRH education and services into pediatric-onset chronic disease care models is needed.<\/jats:p>\n               <\/jats:sec>","DOI":"10.1542\/peds.2015-4452","type":"journal-article","created":{"date-parts":[[2016,5,2]],"date-time":"2016-05-02T12:22:22Z","timestamp":1462191742000},"source":"Crossref","is-referenced-by-count":44,"title":["Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis"],"prefix":"10.1542","volume":"137","author":[{"given":"Traci M.","family":"Kazmerski","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Children\u2019s Hospital of Pittsburgh of UPMC,"},{"name":"Center for Women\u2019s Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sonya","family":"Borrero","sequence":"additional","affiliation":[{"name":"Center for Women\u2019s Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, and"},{"name":"Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, Pennsylvania;"},{"name":"VA Pittsburgh Center for Health Equity Research and Promotion, Pittsburgh, Pennsylvania; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lisa K.","family":"Tuchman","sequence":"additional","affiliation":[{"name":"Division of Adolescent and Young Adult Medicine, Children\u2019s National Health System, Washington, District of Columbia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel J.","family":"Weiner","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Children\u2019s Hospital of Pittsburgh of UPMC,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph M.","family":"Pilewski","sequence":"additional","affiliation":[{"name":"Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, Pennsylvania;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David M.","family":"Orenstein","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Children\u2019s Hospital of Pittsburgh of UPMC,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Miller","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Children\u2019s Hospital of Pittsburgh of UPMC,"},{"name":"Center for Women\u2019s Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, and"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"417","published-online":{"date-parts":[[2016,6,1]]},"reference":[{"key":"2021120904491808800_B1","doi-asserted-by":"crossref","first-page":"S43","DOI":"10.2105\/AJPH.2013.301416","article-title":"Shifts in intended and unintended pregnancies in the United States, 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