{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,29]],"date-time":"2025-10-29T19:34:27Z","timestamp":1761766467237,"version":"3.41.2"},"reference-count":16,"publisher":"American Academy of Pediatrics (AAP)","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2018,12,1]]},"abstract":"<jats:p>Most critical care interventions for children occur in the framework of a supportive environment with loving parents that are present at the bedside to help to guide medical interventions through shared decision-making. What happens, however, if the parents are precluded from being at the bedside because of legal entanglements? How should clinical decisions progress in those cases? In this Ethics Rounds, we present the case of an infant with severe hypoxic-ischemic encephalopathy at birth whose mother was incarcerated shortly after delivery. We explore clinical and legal challenges that the medical team faces in determining best interests for the infant in this context and difficulties in deciding what therapies to provide and for how long.<\/jats:p>","DOI":"10.1542\/peds.2018-0430","type":"journal-article","created":{"date-parts":[[2018,11,8]],"date-time":"2018-11-08T08:25:17Z","timestamp":1541665517000},"source":"Crossref","is-referenced-by-count":2,"title":["Child Abuse, Incarceration, and Decisions About Life-sustaining Treatment"],"prefix":"10.1542","volume":"142","author":[{"given":"Paul C.","family":"Mann","sequence":"first","affiliation":[{"name":"Division of Neonatology, Department of Pediatrics, Medical College of Georgia, Augusta University, Augusta, Georgia;"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elliott Mark","family":"Weiss","sequence":"additional","affiliation":[{"name":"Division of Neonatology, Department of Pediatrics, School of Medicine, University of Washington and Treuman Katz Center for Pediatric Bioethics, Seattle Children\u2019s Hospital and Research Institute, Seattle, Washington;"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca R.","family":"Seltzer","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, School of Medicine and"},{"name":"Johns Hopkins Berman Institute of Bioethics, John Hopkins University, Baltimore, Maryland; and"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rachel A.B.","family":"Dodge","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, School of Medicine and"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Renee D.","family":"Boss","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, School of Medicine and"},{"name":"Johns Hopkins Berman Institute of Bioethics, John Hopkins University, Baltimore, Maryland; and"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John D.","family":"Lantos","sequence":"additional","affiliation":[{"name":"Center for Bioethics, Department of Pediatrics, Children\u2019s Mercy Hospital, Kansas City, Missouri"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"417","published-online":{"date-parts":[[2018,12,1]]},"reference":[{"issue":"1","key":"2021121013311737400_B1","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1111\/1552-6909.12531","article-title":"Criminalization of pregnant women with substance use disorders.","volume":"44","year":"2015","journal-title":"J Obstet Gynecol Neonatal Nurs"},{"key":"2021121013311737400_B2","doi-asserted-by":"crossref","first-page":"S44","DOI":"10.1542\/peds.2013-3608H","article-title":"Tracheostomies and assisted ventilation in children with profound disabilities: navigating family and professional values.","volume":"133","author":"Wilfond","year":"2014","journal-title":"Pediatrics"},{"issue":"3","key":"2021121013311737400_B3","doi-asserted-by":"crossref","first-page":"328","DOI":"10.1353\/pbm.2016.0007","article-title":"Decision-making for children with disabilities: parental discretion and moral ambiguity.","volume":"58","author":"Diekema","year":"2016","journal-title":"Perspect Biol Med"},{"issue":"8","key":"2021121013311737400_B4","doi-asserted-by":"crossref","first-page":"454","DOI":"10.1136\/jme.2005.013508","article-title":"Is it in the best interests of an intellectually disabled infant to die?","volume":"32","author":"Wilkinson","year":"2006","journal-title":"J Med Ethics"},{"unstructured":"Amnesty International. Criminalizing pregnancy: policing pregnant women who use drugs in the USA. 2017. Available at: https:\/\/www.amnestyusa.org\/reports\/criminalizing-pregnancy-policing-pregnant-women-use-drugs-usa\/. Accessed February 8, 2017","key":"2021121013311737400_B5"},{"issue":"5","key":"2021121013311737400_B6","doi-asserted-by":"crossref","first-page":"1151","DOI":"10.1542\/peds.106.5.1151","article-title":"Foregoing life-sustaining medical treatment in abused children.","volume":"106","author":"American Academy of Pediatrics","year":"2000","journal-title":"Pediatrics"},{"issue":"20","key":"2021121013311737400_B7","doi-asserted-by":"crossref","first-page":"2663","DOI":"10.1001\/jama.1990.03450200071034","article-title":"Legal interventions during pregnancy. Court-ordered medical treatments and legal penalties for potentially harmful behavior by pregnant women.","volume":"264","author":"American Medical Association","year":"1990","journal-title":"JAMA"},{"issue":"1","key":"2021121013311737400_B8","doi-asserted-by":"crossref","first-page":"200","DOI":"10.1097\/AOG.0b013e31820a6216","article-title":"AGOG committee opinion no. 473: substance abuse reporting and pregnancy: the role of the obstetrician-gynecologist.","volume":"117","author":"American College of Obstetricians and Gynecologists Committee on Health Care for Underserved Women","year":"2011","journal-title":"Obstet Gynecol"},{"unstructured":"Advocates for Pregnant Women. North Carolina Senate Bill 297: educational fact sheet. Available at: http:\/\/advocatesforpregnantwomen.org\/SB%20297%20-%20Talking%20Points%20NC%20Fact%20Sheet.pdf. Accessed February 8, 2018","key":"2021121013311737400_B9"},{"key":"2021121013311737400_B10"},{"unstructured":"Child Welfare Information Gateway. Parental Drug Use as Child Abuse. Washington, DC: U.S. Department of Health and Human Services, Children\u2019s Bureau. Available at: https:\/\/www.childwelfare.gov\/pubPDFs\/drugexposed.pdf#page=2&view=Prenatal drug exposure. Accessed January 18, 2018","key":"2021121013311737400_B11"},{"unstructured":"Guttmacher Institute. Substance use during pregnancy. 2018. Available at: https:\/\/www.guttmacher.org\/state-policy\/explore\/substance-use-during-pregnancy. 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