{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T15:36:50Z","timestamp":1761061010817,"version":"3.40.5"},"reference-count":5,"publisher":"American Academy of Pediatrics (AAP)","issue":"Supplement_1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2020,4,1]]},"abstract":"<jats:p>Family involvement in the Autism Intervention Research Network on Physical Health, the Autism Treatment Network, and the Autism Learning Health Network, jointly the Autism Networks, has evolved and grown into a meaningful and robust collaboration between families, providers, and researchers. Family involvement at the center of the networks includes both local and national network-wide coproduction and contribution. Family involvement includes actively co-authoring research proposals for large grants, equal membership of network committees and workgroups, and formulating quality improvement pathways for local recruitment efforts and other network initiatives. Although families are involved in every aspect of network activity, families have been the driving force of specifically challenging the networks to concentrate research, education, and dissemination efforts around 3 pillar initiatives of addressing comorbidities of anxiety, attention-deficit\/hyperactivity disorder, and irritability in autism during the networks\u2019 upcoming funding cycle. The expansion of the networks\u2019 Extension for Community Healthcare Outcomes program is an exciting network initiative that brings best practices in autism care to community providers. As equal hub members of each Extension for Community Healthcare Outcomes team, families ensure that participants are intimately cognizant of family perspectives and goals. Self-advocacy involvement in the networks is emerging, with plans for each site to have self-advocacy representation by the spring of 2020 and ultimately forming their own coproduction committee. The Autism Treatment Network, the Autism Intervention Research Network on Physical Health, and the Autism Learning Health Network continue to be trailblazing organizations in how families are involved in the growth of their networks, production of meaningful research, and dissemination of information to providers and families regarding emerging work in autism spectrum disorders.<\/jats:p>","DOI":"10.1542\/peds.2019-1895f","type":"journal-article","created":{"date-parts":[[2020,4,1]],"date-time":"2020-04-01T13:21:03Z","timestamp":1585747263000},"page":"S30-S34","source":"Crossref","is-referenced-by-count":6,"title":["Family Engagement in the Autism Treatment and Learning Health Networks"],"prefix":"10.1542","volume":"145","author":[{"given":"Timothy","family":"Eidson","sequence":"first","affiliation":[{"name":"Department of Pediatrics, Monroe Carell Jr Children\u2019s Hospital at Vanderbilt, Nashville, Tennessee;"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Hess","sequence":"additional","affiliation":[{"name":"Division of Developmental and Behavioral Pediatrics, Nationwide Children\u2019s Hospital, Columbus, Ohio;"},{"name":"Center for Autism Services and Transition, The Ohio State University, Columbus, Ohio;"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas","family":"Hess","sequence":"additional","affiliation":[{"name":"Division of Policy and Strategic Direction, Ohio Department of Developmental Disabilities, Columbus, Ohio;"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Kelly","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital of Philadelphia, Philadelphia, Pennsylvania; and"},{"name":"Devereux Advanced Behavioral Health, Villanova, Pennsylvania"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"417","published-online":{"date-parts":[[2020,4,1]]},"reference":[{"issue":"6","key":"2021120817533874400_B1","doi-asserted-by":"crossref","first-page":"1","DOI":"10.15585\/mmwr.ss6706a1","article-title":"Prevalence of autism spectrum disorder among children aged 8 years - Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2014 [published corrections appear in MMWR Morb Mortal Wkly Rep. 2018;67(19):564 and MMWR Morb Mortal Wkly Rep. 2018;67(45):1280]","volume":"67","author":"Baio","year":"2018","journal-title":"MMWR Surveill Summ"},{"issue":"6","key":"2021120817533874400_B2","doi-asserted-by":"crossref","first-page":"694","DOI":"10.1001\/archpsyc.63.6.694","article-title":"Autism from 2 to 9 years of age","volume":"63","author":"Lord","year":"2006","journal-title":"Arch Gen Psychiatry"},{"key":"2021120817533874400_B3","doi-asserted-by":"crossref","DOI":"10.1542\/2019-1895D","article-title":"The Autism Treatment Network: bringing best practices to all children with autism","volume":"145","author":"Coury","year":"2020","journal-title":"Pediatrics"},{"issue":"4","key":"2021120817533874400_B4","doi-asserted-by":"crossref","first-page":"392","DOI":"10.1001\/archpedi.161.4.392","article-title":"Understanding autism: parents and pediatricians in historical perspective [published correction appears in Arch Pediatr Adolesc Med. 2007;161(7):640]","volume":"161","author":"Silverman","year":"2007","journal-title":"Arch Pediatr Adolesc Med"},{"issue":"5","key":"2021120817533874400_B5","doi-asserted-by":"crossref","first-page":"e20180822","DOI":"10.1542\/peds.2018-0822","article-title":"Partnering with parents to create a research advisory board in a pediatric research network","volume":"142","author":"Fiks","year":"2018","journal-title":"Pediatrics"}],"container-title":["Pediatrics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/publications.aap.org\/pediatrics\/article-pdf\/145\/Supplement_1\/S30\/909319\/peds_20191895f.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/publications.aap.org\/pediatrics\/article-pdf\/145\/Supplement_1\/S30\/909319\/peds_20191895f.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,12,8]],"date-time":"2021-12-08T18:13:34Z","timestamp":1638987214000},"score":1,"resource":{"primary":{"URL":"https:\/\/publications.aap.org\/pediatrics\/article\/145\/Supplement_1\/S30\/11559\/Family-Engagement-in-the-Autism-Treatment-and"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,4,1]]},"references-count":5,"journal-issue":{"issue":"Supplement_1","published-online":{"date-parts":[[2020,4,1]]},"published-print":{"date-parts":[[2020,4,1]]}},"URL":"https:\/\/doi.org\/10.1542\/peds.2019-1895f","relation":{},"ISSN":["0031-4005","1098-4275"],"issn-type":[{"type":"print","value":"0031-4005"},{"type":"electronic","value":"1098-4275"}],"subject":[],"published":{"date-parts":[[2020,4,1]]}}}