{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T15:09:25Z","timestamp":1787497765510,"version":"build-2736575974"},"reference-count":111,"publisher":"American Academy of Pediatrics (AAP)","issue":"5","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2020,11,1]]},"abstract":"<jats:sec>\n                    <jats:title>CONTEXT:<\/jats:title>\n                    <jats:p>Transition from the pediatric to the adult health care system is a complex process that should include medical, psychosocial, educational, recreational, and vocational considerations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>OBJECTIVE:<\/jats:title>\n                    <jats:p>In this systematic review, we aim to synthesize the evidence on transitional care interventions (TCIs) to improve the quality of life (QoL) for adolescents and young adults with childhood-onset disabilities, including neurodevelopmental disorders.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>DATA SOURCES:<\/jats:title>\n                    <jats:p>Four electronic databases (Medline, Embase, PsycINFO, and Cumulative Index to Nursing and Allied Health Literature) were searched.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>STUDY SELECTION:<\/jats:title>\n                    <jats:p>In the included studies, researchers examined TCIs for adolescents and young adults (12\u201324 years of age) with childhood-onset disabilities. Studies were experimental, quasi-experimental, and observational studies published in the last 26 years.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>DATA EXTRACTION:<\/jats:title>\n                    <jats:p>Two reviewers independently completed study screening, data extraction, and risk-of-bias assessment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>RESULTS:<\/jats:title>\n                    <jats:p>Fifty-two studies were included. Five studies reported on QoL, but statistically significant improvements were noted in only 1 of these studies. Significant improvements were also found in secondary outcomes including disability-related knowledge and transitional readiness. TCIs targeted patients, families and\/or caregivers, and health care providers and exhibited great heterogeneity in their characteristics and components.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>LIMITATIONS:<\/jats:title>\n                    <jats:p>Inconsistent reporting on interventions between studies hindered synthesis of the relationships between specific intervention characteristics and outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>CONCLUSIONS:<\/jats:title>\n                    <jats:p>Although there is limited evidence on the impact of TCIs on the QoL for youth with childhood-onset disabilities, there is indication that they can be effective in improving patient and provider outcomes. The initiation of transition-focused care at an early age may contribute to improved long-term health outcomes in this population.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1542\/peds.2020-0187","type":"journal-article","created":{"date-parts":[[2020,10,12]],"date-time":"2020-10-12T08:25:37Z","timestamp":1602491137000},"source":"Crossref","is-referenced-by-count":67,"title":["Transitional Care Interventions for Youth With Disabilities: A Systematic Review"],"prefix":"10.1542","volume":"146","author":[{"given":"Ben B.","family":"Levy","sequence":"first","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica Z.","family":"Song","sequence":"additional","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dorothy","family":"Luong","sequence":"additional","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laure","family":"Perrier","sequence":"additional","affiliation":[{"name":"bUniversity of Toronto Libraries, and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark T.","family":"Bayley","sequence":"additional","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"},{"name":"cInstitute of Health Policy, Management and Evaluation, and"},{"name":"fDivision of Physical Medicine, and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gail","family":"Andrew","sequence":"additional","affiliation":[{"name":"jDepartment of Pediatrics, University of Alberta, Edmonton, Alberta, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelly","family":"Arbour-Nicitopoulos","sequence":"additional","affiliation":[{"name":"eFaculty of Kinesiology and Physical Education, and"},{"name":"kHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian","family":"Chan","sequence":"additional","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"},{"name":"cInstitute of Health Policy, Management and Evaluation, and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cynthia J.","family":"Curran","sequence":"additional","affiliation":[{"name":"kHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gina","family":"Dimitropoulos","sequence":"additional","affiliation":[{"name":"lFaculty of Social Work, University of Calgary, Calgary, Alberta, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Hartman","sequence":"additional","affiliation":[{"name":"kHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lennox","family":"Huang","sequence":"additional","affiliation":[{"name":"gDepartments of Paediatrics,"},{"name":"mThe Hospital for Sick Children, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monika","family":"Kastner","sequence":"additional","affiliation":[{"name":"cInstitute of Health Policy, Management and Evaluation, and"},{"name":"hFamily and Community Medicine, and"},{"name":"nNorth York General Hospital, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shauna","family":"Kingsnorth","sequence":"additional","affiliation":[{"name":"dRehabilitation Sciences Institute, and"},{"name":"kHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"McCormick","sequence":"additional","affiliation":[{"name":"oDepartment of Pediatrics, University of Ottawa, Ottawa, Ontario, Canada;"},{"name":"pChildren\u2019s Hospital of Eastern Ontario, Ottawa, Ontario, Canada; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Nelson","sequence":"additional","affiliation":[{"name":"cInstitute of Health Policy, Management and Evaluation, and"},{"name":"qSinai Health System, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Nicholas","sequence":"additional","affiliation":[{"name":"lFaculty of Social Work, University of Calgary, Calgary, Alberta, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melanie","family":"Penner","sequence":"additional","affiliation":[{"name":"cInstitute of Health Policy, Management and Evaluation, and"},{"name":"gDepartments of Paediatrics,"},{"name":"kHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Thompson","sequence":"additional","affiliation":[{"name":"kHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alene","family":"Toulany","sequence":"additional","affiliation":[{"name":"gDepartments of Paediatrics,"},{"name":"mThe Hospital for Sick Children, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amanda","family":"Woo","sequence":"additional","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Zee","sequence":"additional","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"},{"name":"cInstitute of Health Policy, Management and Evaluation, and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah E.P.","family":"Munce","sequence":"additional","affiliation":[{"name":"aToronto Rehabilitation Institute, Toronto, Ontario, Canada;"},{"name":"cInstitute of Health Policy, Management and Evaluation, and"},{"name":"iOccupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"417","published-online":{"date-parts":[[2020,11,1]]},"reference":[{"issue":"2","key":"2024051515164882300_B1","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1016\/S0887-8994(97)00172-0","article-title":"Life expectancy of children with cerebral palsy","volume":"18","author":"Strauss","year":"1998","journal-title":"Pediatr Neurol"},{"issue":"6, pt 2","key":"2024051515164882300_B2","doi-asserted-by":"crossref","first-page":"1304","DOI":"10.1542\/peds.110.S3.1304","article-title":"A consensus statement on health care transitions for young adults with special health care needs","volume":"110","author":"American Academy of Pediatrics","year":"2002","journal-title":"Pediatrics"},{"issue":"3\u20134","key":"2024051515164882300_B3","doi-asserted-by":"crossref","first-page":"313","DOI":"10.1111\/j.1365-2702.2009.03027.x","article-title":"Enough of the problem: a review of time for health care transition solutions for young adults with a chronic illness","volume":"19","author":"Rapley","year":"2010","journal-title":"J Clin Nurs"},{"issue":"6, pt 2","key":"2024051515164882300_B4","doi-asserted-by":"crossref","first-page":"1307","DOI":"10.1542\/peds.110.S3.1307","article-title":"Health care transition: destinations unknown","volume":"110","author":"Reiss","year":"2002","journal-title":"Pediatrics"},{"issue":"6, pt 2","key":"2024051515164882300_B5","doi-asserted-by":"crossref","first-page":"1315","DOI":"10.1542\/peds.110.S3.1315","article-title":"Transition for youth with chronic conditions: primary care physicians\u2019 approaches","volume":"110","author":"Scal","year":"2002","journal-title":"Pediatrics"},{"issue":"9","key":"2024051515164882300_B6","doi-asserted-by":"crossref","first-page":"478","DOI":"10.1111\/j.1440-1754.2008.01321.x","article-title":"Transition in chronic illness: who is going where?","volume":"44","author":"Steinbeck","year":"2008","journal-title":"J Paediatr Child Health"},{"issue":"7","key":"2024051515164882300_B7","doi-asserted-by":"crossref","first-page":"570","DOI":"10.1016\/1054-139X(93)90143-D","article-title":"Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine","volume":"14","author":"Blum","year":"1993","journal-title":"J Adolesc Health"},{"issue":"6","key":"2024051515164882300_B8","doi-asserted-by":"crossref","first-page":"806","DOI":"10.1111\/j.1365-2214.2011.01313.x","article-title":"Systems thinking perspectives applied to healthcare transition for youth with disabilities: a paradigm shift for practice, policy and research","volume":"37","author":"Hamdani","year":"2011","journal-title":"Child Care Health Dev"},{"issue":"2","key":"2024051515164882300_B9","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1016\/1054-139X(96)00027-4","article-title":"Adolescents with physical disabilities: some psychosocial aspects of health","volume":"19","author":"Stevens","year":"1996","journal-title":"J Adolesc Health"},{"issue":"8","key":"2024051515164882300_B10","doi-asserted-by":"crossref","first-page":"e198415","DOI":"10.1001\/jamanetworkopen.2019.8415","article-title":"Association of primary care continuity with outcomes following transition to adult care for adolescents with severe mental illness","volume":"2","author":"Toulany","year":"2019","journal-title":"JAMA Netw Open"},{"issue":"2","key":"2024051515164882300_B11","doi-asserted-by":"crossref","first-page":"97","DOI":"10.1080\/10400435.1999.10131994","article-title":"Medical problems in adults with cerebral palsy: case examples","volume":"11","author":"Murphy","year":"1999","journal-title":"Assist Technol"},{"issue":"3","key":"2024051515164882300_B12","doi-asserted-by":"crossref","first-page":"364","DOI":"10.1111\/j.1399-3046.2004.00287.x","article-title":"Growing up and moving on: transition from pediatric to adult care","volume":"9","author":"McDonagh","year":"2005","journal-title":"Pediatr Transplant"},{"issue":"4","key":"2024051515164882300_B13","doi-asserted-by":"crossref","first-page":"25","DOI":"10.1300\/J006v26n04_03","article-title":"The transition study: a look at youth and adults with cerebral palsy, spina bifida and acquired brain injury","volume":"26","author":"Young","year":"2006","journal-title":"Phys Occup Ther Pediatr"},{"issue":"1","key":"2024051515164882300_B14","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1001\/archpedi.159.1.10","article-title":"A national profile of health care utilization and expenditures for children with special health care needs","volume":"159","author":"Newacheck","year":"2005","journal-title":"Arch Pediatr Adolesc Med"},{"issue":"23","key":"2024051515164882300_B15","doi-asserted-by":"crossref","first-page":"1455","DOI":"10.1080\/00222930500218946","article-title":"Use of health care among adults with chronic and complex physical disabilities of childhood","volume":"27","author":"Young","year":"2005","journal-title":"Disabil Rehabil"},{"issue":"1","key":"2024051515164882300_B16","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1016\/j.hjdsi.2015.09.001","article-title":"Better health, less spending: redesigning the transition from pediatric to adult healthcare for youth with chronic illness","volume":"4","author":"Vaks","year":"2016","journal-title":"Healthc (Amst)"},{"issue":"8","key":"2024051515164882300_B17","doi-asserted-by":"crossref","first-page":"857","DOI":"10.1093\/jpepsy\/jsp120","article-title":"A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease","volume":"35","author":"Greenley","year":"2010","journal-title":"J Pediatr Psychol"},{"issue":"5","key":"2024051515164882300_B18","doi-asserted-by":"crossref","first-page":"720","DOI":"10.1111\/j.1528-1167.2005.43604.x","article-title":"Depression and anxiety disorders in pediatric epilepsy","volume":"46","author":"Caplan","year":"2005","journal-title":"Epilepsia"},{"issue":"3","key":"2024051515164882300_B19","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1207\/s15326888chc3403_2","article-title":"Risk behaviors and emotional well-being in youth with chronic health conditions","volume":"34","author":"Erickson","year":"2005","journal-title":"Child Health Care"},{"issue":"4","key":"2024051515164882300_B20","doi-asserted-by":"crossref","first-page":"375","DOI":"10.1093\/jpepsy\/jsq104","article-title":"Depressive symptoms in children and adolescents with chronic physical illness: an updated meta-analysis","volume":"36","author":"Pinquart","year":"2011","journal-title":"J Pediatr Psychol"},{"key":"2024051515164882300_B21","author":"Smith"},{"issue":"2","key":"2024051515164882300_B22","doi-asserted-by":"crossref","first-page":"200","DOI":"10.1016\/j.jadohealth.2009.07.008","article-title":"Chronically connected? Internet use among adolescents with chronic conditions","volume":"46","author":"Suris","year":"2010","journal-title":"J Adolesc Health"},{"issue":"10","key":"2024051515164882300_B23","doi-asserted-by":"crossref","first-page":"601","DOI":"10.1177\/070674371205701004","article-title":"Emergency department visits and use of outpatient physician services by adults with developmental disability and psychiatric disorder","volume":"57","author":"Lunsky","year":"2012","journal-title":"Can J Psychiatry"},{"issue":"3","key":"2024051515164882300_B24","doi-asserted-by":"crossref","first-page":"447","DOI":"10.1542\/peds.2012-1572","article-title":"Disparities in transition planning for youth with autism spectrum disorder","volume":"131","author":"Cheak-Zamora","year":"2013","journal-title":"Pediatrics"},{"issue":"1","key":"2024051515164882300_B25","doi-asserted-by":"crossref","first-page":"36","DOI":"10.1007\/s10803-017-3292-0","article-title":"Health concerns and health service utilization in a population cohort of young adults with autism spectrum disorder","volume":"48","author":"Weiss","year":"2018","journal-title":"J Autism Dev Disord"},{"issue":"9","key":"2024051515164882300_B26","doi-asserted-by":"crossref","first-page":"802","DOI":"10.1136\/adc.2006.103796","article-title":"Transition of care from paediatric to adult rheumatology","volume":"92","author":"McDonagh","year":"2007","journal-title":"Arch Dis Child"},{"issue":"5","key":"2024051515164882300_B27","doi-asserted-by":"crossref","first-page":"336","DOI":"10.1111\/j.1469-8749.1997.tb07441.x","article-title":"Cerebral palsy--the transition from youth to adulthood","volume":"39","author":"Stevenson","year":"1997","journal-title":"Dev Med Child Neurol"},{"issue":"1","key":"2024051515164882300_B28","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1016\/1054-139X(95)00076-5","article-title":"Transition health services for youth with disabilities: a global perspective","volume":"17","author":"Bowes","year":"1995","journal-title":"J Adolesc Health"},{"key":"2024051515164882300_B29","first-page":"CD009794","article-title":"Transition of care for adolescents from paediatric services to adult health services","volume":"4","author":"Campbell","year":"2016","journal-title":"Cochrane Database Syst Rev"},{"key":"2024051515164882300_B30","author":"Canadian Association of Paediatric Health Centres"},{"issue":"3","key":"2024051515164882300_B31","doi-asserted-by":"crossref","first-page":"323","DOI":"10.1111\/j.1365-2214.2009.00936.x","article-title":"\u2018I don\u2019t trust you, you are going to tell\u2019, adolescents with emotional and behavioural disorders participating in qualitative research","volume":"35","author":"Laenen","year":"2009","journal-title":"Child Care Health Dev"},{"issue":"5","key":"2024051515164882300_B32","doi-asserted-by":"crossref","first-page":"429","DOI":"10.1016\/j.jadohealth.2010.10.016","article-title":"Patients\u2019 perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies","volume":"48","author":"Lugasi","year":"2011","journal-title":"J Adolesc Health"},{"issue":"2","key":"2024051515164882300_B33","doi-asserted-by":"crossref","first-page":"222","DOI":"10.1111\/cch.12199","article-title":"Development and evaluation of the KIT: Keeping it TogetherTM for Youth (the \u2018Youth KIT\u2019) to assist youth with disabilities in managing information","volume":"41","author":"Freeman","year":"2015","journal-title":"Child Care Health Dev"},{"key":"2024051515164882300_B34","volume-title":"Canadian Occupational Performance Measure Manual","author":"Law","year":"2014","edition":"5th ed."},{"key":"2024051515164882300_B35","volume-title":"Research on the Canadian Occupational Performance Measure: An Annotated Resource","author":"McColl","year":"2006"},{"issue":"4","key":"2024051515164882300_B36","doi-asserted-by":"crossref","first-page":"210","DOI":"10.1177\/000841740407100406","article-title":"The Canadian Occupational Performance Measure: a research and clinical literature review","volume":"71","author":"Carswell","year":"2004","journal-title":"Can J Occup Ther"},{"key":"2024051515164882300_B37","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1186\/1471-2431-12-51","article-title":"Longitudinal Evaluation of Transition Services (\u201cLETS study\u201d): protocol for outcome evaluation","volume":"12","author":"Tsybina","year":"2012","journal-title":"BMC Pediatr"},{"key":"2024051515164882300_B38","doi-asserted-by":"crossref","DOI":"10.1176\/appi.books.9780890425596","volume-title":"Diagnostic and Statistical Manual of Mental Disorders","author":"American Psychiatric Association","year":"2013","edition":"5th ed"},{"issue":"4","key":"2024051515164882300_B39","first-page":"595","article-title":"Testing the transition preparation training program: a randomized controlled trial","volume":"3","author":"Betz","year":"2010","journal-title":"Intl J Child Adolesc Health"},{"issue":"14","key":"2024051515164882300_B40","doi-asserted-by":"crossref","first-page":"1113","DOI":"10.1136\/heartjnl-2014-305748","article-title":"Healthcare transition for youth with heart disease: a clinical trial","volume":"100","author":"Mackie","year":"2014","journal-title":"Heart"},{"issue":"6","key":"2024051515164882300_B41","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2013-2830","article-title":"Preparing adolescents with chronic disease for transition to adult care: a technology program","volume":"133","author":"Huang","year":"2014","journal-title":"Pediatrics"},{"issue":"8","key":"2024051515164882300_B42","doi-asserted-by":"crossref","first-page":"634","DOI":"10.1111\/pedi.12229","article-title":"A pilot randomized controlled trial of a post-discharge program to support emerging adults with type 1 diabetes mellitus transition from pediatric to adult care","volume":"16","author":"Steinbeck","year":"2015","journal-title":"Pediatr Diabetes"},{"issue":"7539","key":"2024051515164882300_B43","doi-asserted-by":"crossref","first-page":"435","DOI":"10.1136\/bmj.332.7539.435","article-title":"Lost in transition? Between paediatric and adult services","volume":"332","author":"McDonagh","year":"2006","journal-title":"BMJ"},{"issue":"6","key":"2024051515164882300_B44","doi-asserted-by":"crossref","first-page":"688","DOI":"10.1111\/j.1399-3046.2010.01343.x","article-title":"The challenges and opportunities for transitional care research","volume":"14","author":"McDonagh","year":"2010","journal-title":"Pediatr Transplant"},{"issue":"5","key":"2024051515164882300_B45","doi-asserted-by":"crossref","first-page":"e007553","DOI":"10.1136\/bmjopen-2014-007553","article-title":"Are two youth-focused interventions sufficient to empower youth with chronic health conditions in their transition to adult healthcare: a mixed-methods longitudinal prospective cohort study","volume":"5","author":"Gorter","year":"2015","journal-title":"BMJ Open"},{"issue":"3","key":"2024051515164882300_B46","doi-asserted-by":"crossref","first-page":"205","DOI":"10.1001\/jamapediatrics.2015.3168","article-title":"International and Interdisciplinary Identification of Health Care Transition outcomes","volume":"170","author":"Fair","year":"2016","journal-title":"JAMA Pediatr"},{"key":"2024051515164882300_B47","author":"World Health Organization"},{"key":"2024051515164882300_B48","doi-asserted-by":"crossref","first-page":"b2535","DOI":"10.1136\/bmj.b2535","article-title":"Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement","volume":"339","author":"Moher","year":"2009","journal-title":"BMJ"},{"issue":"6","key":"2024051515164882300_B49","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2014-1704","article-title":"Measuring the \u201cTriple Aim\u201d in transition care: a systematic review","volume":"134","author":"Prior","year":"2014","journal-title":"Pediatrics"},{"key":"2024051515164882300_B50","author":"United Nations Educational Scientific and Cultural Organization"},{"issue":"1","key":"2024051515164882300_B51","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1007\/s10926-019-09854-1","article-title":"The impact of vocational interventions on vocational outcomes, quality of life, and community integration in adults with childhood onset disabilities: a systematic review","volume":"30","author":"Ma","year":"2020","journal-title":"J Occup Rehabil"},{"key":"2024051515164882300_B52","volume-title":"Diagnostic and Statistical Manual of Mental Disorders","author":"American Psychiatric Association","year":"1994","edition":"4th ed"},{"issue":"12","key":"2024051515164882300_B53","first-page":"CD012890","article-title":"EEG neurofeedback for executive functions in children with neurodevelopmental challenges","author":"Landes","year":"2017","journal-title":"Cochrane Database Syst Rev"},{"key":"2024051515164882300_B54","doi-asserted-by":"crossref","first-page":"g1687","DOI":"10.1136\/bmj.g1687","article-title":"Better reporting of interventions: Template for Intervention Description and Replication (TIDieR) checklist and guide","volume":"348","author":"Hoffmann","year":"2014","journal-title":"BMJ"},{"key":"2024051515164882300_B55","doi-asserted-by":"crossref","first-page":"l4898","DOI":"10.1136\/bmj.l4898","article-title":"RoB 2: a revised tool for assessing risk of bias in randomised trials","volume":"366","author":"Sterne","year":"2019","journal-title":"BMJ"},{"key":"2024051515164882300_B56","doi-asserted-by":"crossref","first-page":"i4919","DOI":"10.1136\/bmj.i4919","article-title":"ROBINS-I: a tool for assessing risk of bias in non-randomised studies of interventions","volume":"355","author":"Sterne","year":"2016","journal-title":"BMJ"},{"issue":"4","key":"2024051515164882300_B57","doi-asserted-by":"crossref","first-page":"1493","DOI":"10.1007\/s10803-018-3846-9","article-title":"Addressing a gap in healthcare access for transition-age youth with autism: a pilot educational intervention for family nurse practitioner students","volume":"49","author":"Iannuzzi","year":"2019","journal-title":"J Autism Dev Disord"},{"issue":"2","key":"2024051515164882300_B58","doi-asserted-by":"crossref","first-page":"203","DOI":"10.3171\/2015.7.PEDS14694","article-title":"Young adults with spina bifida transitioned to a medical home: a survey of medical care in Jacksonville, Florida","volume":"17","author":"Aguilera","year":"2016","journal-title":"J Neurosurg Pediatr"},{"key":"2024051515164882300_B59","doi-asserted-by":"crossref","first-page":"1590","DOI":"10.1016\/j.juro.2011.04.011","article-title":"Transition of care to an adult spina bifida clinic: patient perspectives and medical outcomes","volume":"186","author":"Cox","year":"2011","journal-title":"J Urol"},{"key":"2024051515164882300_B60","doi-asserted-by":"crossref","first-page":"46","DOI":"10.1016\/j.seizure.2016.04.004","article-title":"Long-term effects of a multidisciplinary transition intervention from paediatric to adult care in patients with epilepsy","volume":"38","author":"Geerlings","year":"2016","journal-title":"Seizure"},{"issue":"7","key":"2024051515164882300_B61","doi-asserted-by":"crossref","first-page":"819","DOI":"10.1111\/jpc.14301","article-title":"Implementing a new adolescent epilepsy service: improving patient experience and readiness for transition","volume":"55","author":"Le Marne","year":"2019","journal-title":"J Paediatr Child Health"},{"key":"2024051515164882300_B62","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1016\/j.jns.2018.09.030","article-title":"Making a \u2018JUMP\u2019 from paediatric to adult healthcare: a transitional program for young adults with chronic neurological disease","volume":"395","author":"McGovern","year":"2018","journal-title":"J Neurol Sci"},{"issue":"4","key":"2024051515164882300_B63","doi-asserted-by":"crossref","first-page":"384.e1","DOI":"10.1016\/j.jpurol.2019.04.013","article-title":"Transitioning young adults with neurogenic bladder-are providers asking too much?","volume":"15","author":"Roth","year":"2019","journal-title":"J Pediatr Urol"},{"issue":"2","key":"2024051515164882300_B64","doi-asserted-by":"crossref","first-page":"89.e1","DOI":"10.1016\/j.jpurol.2014.11.024","article-title":"Assessment of the introduction of an adolescent transition urology clinic using a validated questionnaire","volume":"11","author":"Shalaby","year":"2015","journal-title":"J Pediatr Urol"},{"issue":"5","key":"2024051515164882300_B65","doi-asserted-by":"crossref","first-page":"776","DOI":"10.1016\/j.pedn.2015.05.024","article-title":"Integrating an EMR-based transition planning tool for CYSHCN at a children\u2019s hospital: a quality improvement project to increase provider use and satisfaction","volume":"30","author":"Wiemann","year":"2015","journal-title":"J Pediatr Nurs"},{"key":"2024051515164882300_B66","volume-title":"Beyond Skills to Pay the Bills: Effects of a Vocational Social Skills Intervention on Psychosocial Functioning Among Young Adults with Autism [doctoral thesis]","author":"Connor","year":"2017"},{"issue":"5","key":"2024051515164882300_B67","doi-asserted-by":"crossref","first-page":"e37","DOI":"10.1016\/j.pedn.2015.06.014","article-title":"Transition from pediatric to adult specialty care for adolescents and young adults with refractory epilepsy: a quality improvement approach","volume":"30","author":"Disabato","year":"2015","journal-title":"J Pediatr Nurs"},{"issue":"2","key":"2024051515164882300_B68","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1007\/s10803-017-3317-8","article-title":"Process evaluation of the BOOST-ATM transition planning program for adolescents on the autism spectrum: a strengths-based approach","volume":"48","author":"Hatfield","year":"2018","journal-title":"J Autism Dev Disord"},{"issue":"6","key":"2024051515164882300_B69","doi-asserted-by":"crossref","first-page":"448","DOI":"10.1111\/1440-1630.12410","article-title":"Pilot of the BOOST-ATM: an online transition planning program for adolescents with autism","volume":"64","author":"Hatfield","year":"2017","journal-title":"Aust Occup Ther J"},{"key":"2024051515164882300_B70","doi-asserted-by":"crossref","first-page":"54","DOI":"10.1186\/s13034-017-0191-2","article-title":"Effectiveness of the BOOST-ATM online transition planning program for adolescents on the autism spectrum: a quasi-randomized controlled trial","volume":"11","author":"Hatfield","year":"2017","journal-title":"Child Adolesc Psychiatry Ment Health"},{"issue":"3","key":"2024051515164882300_B71","doi-asserted-by":"crossref","first-page":"374","DOI":"10.1111\/cch.12196","article-title":"A retrospective study of past graduates of a residential life skills program for youth with physical disabilities","volume":"41","author":"Kingsnorth","year":"2015","journal-title":"Child Care Health Dev"},{"key":"2024051515164882300_B72","volume-title":"The Impact of the Student Directed Transition Planning Lessons on the Self-Advocacy and Decision Making Skills of Students with Disabilities: A Mixed Methods Analysis [doctoral thesis]","author":"Lewis","year":"2016"},{"issue":"12","key":"2024051515164882300_B73","doi-asserted-by":"crossref","first-page":"1712","DOI":"10.1002\/aur.2027","article-title":"Results of a RCT on a transition support program for adults with ASD: effects on self-determination and quality of life","volume":"11","author":"Nadig","year":"2018","journal-title":"Autism Res"},{"issue":"10","key":"2024051515164882300_B74","doi-asserted-by":"crossref","first-page":"3586","DOI":"10.1007\/s10803-018-3623-9","article-title":"Randomized control trial of COMPASS for improving transition outcomes of students with autism spectrum disorder","volume":"48","author":"Ruble","year":"2018","journal-title":"J Autism Dev Disord"},{"issue":"3","key":"2024051515164882300_B75","doi-asserted-by":"crossref","first-page":"291","DOI":"10.1111\/j.1365-2214.2003.000400.x","article-title":"Portfolio of health advice for young people with disabilities transferring to adult care","volume":"30","author":"Tan","year":"2004","journal-title":"Child Care Health Dev"},{"issue":"3","key":"2024051515164882300_B76","doi-asserted-by":"crossref","first-page":"846","DOI":"10.1007\/s10803-016-2994-z","article-title":"Training parents of youth with autism spectrum disorder to advocate for adult disability services: results from a pilot randomized controlled trial","volume":"47","author":"Taylor","year":"2017","journal-title":"J Autism Dev Disord"},{"issue":"3","key":"2024051515164882300_B77","first-page":"235","article-title":"Testing the transition preparation training program: well-being of relationships outcomes","volume":"8","author":"Betz","year":"2015","journal-title":"J Pediatr Rehabil Med"},{"issue":"5","key":"2024051515164882300_B78","doi-asserted-by":"crossref","first-page":"661","DOI":"10.1016\/j.pedn.2015.07.003","article-title":"Implementation of a transdisciplinary team for the transition support of medically and socially complex youth","volume":"30","author":"Ciccarelli","year":"2015","journal-title":"J Pediatr Nurs"},{"issue":"1","key":"2024051515164882300_B79","first-page":"93","article-title":"Implementation and sustainability of statewide transition support services for youth with intellectual and physical disabilities","volume":"7","author":"Ciccarelli","year":"2014","journal-title":"J Pediatr Rehabil Med"},{"key":"2024051515164882300_B80","volume-title":"Beyond Physical Inclusion: Teaching Skills in the Community to Enhance Social Inclusion [doctoral thesis]","author":"Hall","year":"2017"},{"issue":"1","key":"2024051515164882300_B81","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1177\/088572880402700103","article-title":"Summer activities of youth with high-incidence disabilities from high-poverty backgrounds","volume":"27","author":"Hughes","year":"2004","journal-title":"Career Dev Transit Except Individ"},{"issue":"1","key":"2024051515164882300_B82","doi-asserted-by":"crossref","first-page":"95","DOI":"10.3233\/JVR-180991","article-title":"Exploring the PROMISE of transition services for youth with disabilities receiving SSI","volume":"50","author":"Ipsen","year":"2019","journal-title":"J Vocat Rehabil"},{"key":"2024051515164882300_B83","volume-title":"Effects of Formalized Transition Planning for Youth with Disabilities on Successful Integration to Adult Life [doctoral thesis]","author":"Kovacs","year":"1996"},{"key":"2024051515164882300_B84","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1186\/1472-6963-14-47","article-title":"Reducing bottlenecks: professionals\u2019 and adolescents\u2019 experiences with transitional care delivery","volume":"14","author":"Nieboer","year":"2014","journal-title":"BMC Health Serv Res"},{"issue":"6","key":"2024051515164882300_B85","doi-asserted-by":"crossref","first-page":"627","DOI":"10.1016\/j.pedhc.2017.04.015","article-title":"Developing a transition care coordination program for youth with spina bifida","volume":"31","author":"Seeley","year":"2017","journal-title":"J Pediatr Health Care"},{"issue":"3","key":"2024051515164882300_B86","doi-asserted-by":"crossref","first-page":"170","DOI":"10.1177\/0022466910374211","article-title":"Mentoring transition-age youth with blindness","volume":"46","author":"Bell","year":"2012","journal-title":"J Spec Educ"},{"issue":"6","key":"2024051515164882300_B87","doi-asserted-by":"crossref","first-page":"810","DOI":"10.1016\/j.childyouth.2010.11.025","article-title":"Person centered planning in a transition program for Bronx youth with disabilities","volume":"33","author":"Croke","year":"2011","journal-title":"Child Youth Serv Rev"},{"issue":"4","key":"2024051515164882300_B88","doi-asserted-by":"crossref","first-page":"63","DOI":"10.1080\/J006v26n04_05","article-title":"An evaluation of the \u201cYouth en Route\u201d program","volume":"26","author":"Evans","year":"2006","journal-title":"Phys Occup Ther Pediatr"},{"issue":"5","key":"2024051515164882300_B89","doi-asserted-by":"crossref","first-page":"240","DOI":"10.1177\/000841749906600508","article-title":"Promoting independence for teens and young adults with physical disabilities","volume":"66","author":"Healy","year":"1999","journal-title":"Can J Occup Ther"},{"issue":"2","key":"2024051515164882300_B90","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1177\/088572880002300203","article-title":"Increasing employment earnings: extended transition services that make a difference","volume":"23","author":"Izzo","year":"2000","journal-title":"Career Dev Transit Except Individ"},{"key":"2024051515164882300_B91","volume-title":"Social, Emotional, and Behavioral Functioning for Transitional-Aged Youth with Autism [doctoral thesis]","author":"Payne","year":"2016"},{"key":"2024051515164882300_B92","volume-title":"The Relationship Between High School Transition Services for Students with Significant Disabilities and Employment Effectiveness [doctoral thesis]","author":"Johnson","year":"2010"},{"issue":"8","key":"2024051515164882300_B93","doi-asserted-by":"crossref","first-page":"801","DOI":"10.1111\/dmcn.13715","article-title":"Initial evaluation of the effects of an environmental-focused problem-solving intervention for transition-age young people with developmental disabilities: project TEAM","volume":"60","author":"Kramer","year":"2018","journal-title":"Dev Med Child Neurol"},{"issue":"4","key":"2024051515164882300_B94","doi-asserted-by":"crossref","first-page":"258","DOI":"10.1352\/1934-9556-52.4.258","article-title":"Formative evaluation of project TEAM (Teens Making Environment and Activity Modifications)","volume":"52","author":"Kramer","year":"2014","journal-title":"Intellect Dev Disabil"},{"key":"2024051515164882300_B95","volume-title":"A Mixed Methods Study of the Effects of Family-Centered Transition Planning on the Quality of Transition Individualized Education Plans of Youth with Autism Spectrum Disorders [doctoral thesis]","author":"Kurtz","year":"2017"},{"key":"2024051515164882300_B96","volume-title":"A Post-School Outcome Study of Students with Learning Disabilities [doctoral thesis]","author":"Queener","year":"2016"},{"issue":"1","key":"2024051515164882300_B97","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1016\/j.jadohealth.2014.08.006","article-title":"Pediatric to adult transition: a quality improvement model for primary care","volume":"56","author":"McManus","year":"2015","journal-title":"J Adolesc Health"},{"issue":"2","key":"2024051515164882300_B98","doi-asserted-by":"crossref","first-page":"222","DOI":"10.4300\/JGME-D-16-00292.1","article-title":"Resident dyads providing transition care to adolescents and young adults with chronic illnesses and neurodevelopmental disabilities","volume":"9","author":"Chung","year":"2017","journal-title":"J Grad Med Educ"},{"key":"2024051515164882300_B99","doi-asserted-by":"crossref","first-page":"481","DOI":"10.1007\/s11482-012-9209-3","article-title":"The longitudinal relationship between satisfaction with transitional care and social and emotional quality of life among chronically ill adolescents","volume":"8","author":"Cramm","year":"2013","journal-title":"Appl Res Qual Life"},{"issue":"4","key":"2024051515164882300_B100","doi-asserted-by":"crossref","first-page":"1065","DOI":"10.1007\/s11136-004-2575-z","article-title":"Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective","volume":"14","author":"Petersen","year":"2005","journal-title":"Qual Life Res"},{"issue":"1","key":"2024051515164882300_B101","doi-asserted-by":"crossref","first-page":"75","DOI":"10.1016\/j.ridd.2013.10.025","article-title":"Measuring quality of life in people with intellectual and multiple disabilities: validation of the San Mart\u00edn Scale","volume":"35","author":"Verdugo","year":"2014","journal-title":"Res Dev Disabil"},{"key":"2024051515164882300_B102","volume-title":"Personal Wellbeing Index\u2013School Children (PWI-SC) (English)","author":"Cummins","year":"2005","edition":"3rd ed."},{"issue":"1","key":"2024051515164882300_B103","doi-asserted-by":"crossref","first-page":"111","DOI":"10.1186\/s12916-018-1102-y","article-title":"A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions","volume":"16","author":"Colver","year":"2018","journal-title":"BMC Med"},{"issue":"5","key":"2024051515164882300_B104","doi-asserted-by":"crossref","first-page":"757","DOI":"10.1016\/j.pedn.2015.05.028","article-title":"Experiences with and outcomes of two interventions to maximize engagement of chronically ill adolescents during hospital consultations: a mixed methods study","volume":"30","author":"van Staa","year":"2015","journal-title":"J Pediatr Nurs"},{"issue":"3","key":"2024051515164882300_B105","doi-asserted-by":"crossref","first-page":"283","DOI":"10.1111\/hsc.12015","article-title":"Urban adolescents with intellectual disability and challenging behaviour: costs and characteristics during transition to adult services","volume":"21","author":"Barron","year":"2013","journal-title":"Health Soc Care Community"},{"issue":"1","key":"2024051515164882300_B106","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1177\/1088357611430841","article-title":"Outcomes of a family-centered transition process for students with autism spectrum disorders","volume":"27","author":"Hagner","year":"2012","journal-title":"Focus Autism Other Dev Disabl"},{"key":"2024051515164882300_B107","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1016\/j.pedn.2019.05.015","article-title":"An evidence map for interventions addressing transition from pediatric to adult care: a systematic review of systematic reviews","volume":"48","author":"Hart","year":"2019","journal-title":"J Pediatr Nurs"},{"key":"2024051515164882300_B108","first-page":"302","volume-title":"Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions: Concepts, Evidence and Practice","author":"Gorter","year":"2013"},{"issue":"3","key":"2024051515164882300_B109","doi-asserted-by":"crossref","first-page":"132","DOI":"10.1177\/0885728809346302","article-title":"Similarities and differences in the transition expectations of youth and parents","volume":"32","author":"Powers","year":"2009","journal-title":"Career Dev Transit Except Individ"},{"issue":"1","key":"2024051515164882300_B110","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1111\/cch.12405","article-title":"Transition from paediatric to adult care: what makes it easier for parents?","volume":"43","author":"Suris","year":"2017","journal-title":"Child Care Health Dev"},{"issue":"10","key":"2024051515164882300_B111","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1186\/1471-2288-7-10","article-title":"Development of AMSTAR: a measurement tool to assess the methodological quality of systematic reviews","volume":"7","author":"Shea","year":"2007","journal-title":"BMC Med Res Methodol"}],"container-title":["Pediatrics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/publications.aap.org\/pediatrics\/article-pdf\/doi\/10.1542\/peds.2020-0187\/1638030\/peds_20200187.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"syndication"},{"URL":"https:\/\/publications.aap.org\/pediatrics\/article-pdf\/doi\/10.1542\/peds.2020-0187\/1638030\/peds_20200187.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,5,15]],"date-time":"2024-05-15T11:17:52Z","timestamp":1715771872000},"score":1,"resource":{"primary":{"URL":"https:\/\/publications.aap.org\/pediatrics\/article\/146\/5\/e20200187\/75312\/Transitional-Care-Interventions-for-Youth-With"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,11,1]]},"references-count":111,"journal-issue":{"issue":"5","published-online":{"date-parts":[[2020,11,1]]},"published-print":{"date-parts":[[2020,11,1]]}},"URL":"https:\/\/doi.org\/10.1542\/peds.2020-0187","relation":{},"ISSN":["0031-4005","1098-4275"],"issn-type":[{"value":"0031-4005","type":"print"},{"value":"1098-4275","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,11,1]]},"article-number":"e20200187"}}