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Benefits, pitfalls, and future\n design of population-based registers in neurodegenerative disease. Neurology\n 2017; 88: 2321\u20132329.","DOI":"10.1212\/WNL.0000000000004038"},{"key":"R2","doi-asserted-by":"crossref","unstructured":"Wright K, Tapera RM, Stott NS, et al. Indigenous health equity in\n health register ascertainment and data quality: a narrative review. Int J Equity\n Health 2022; 21: 34.","DOI":"10.1186\/s12939-022-01635-2"},{"key":"R3","doi-asserted-by":"crossref","unstructured":"Kissn\u00e9 Horv\u00e1th I. Patient registries from the view of health policy.\n [Betegregiszterek eg\u00e9szs\u00e9gpolitikai szemmel.] Orv Hetil. 2014; 155: 729\u2013731.\n [Hungarian]","DOI":"10.1556\/OH.2014.29917"},{"key":"R4","unstructured":"Ministry of Human Capacities. Decree No. 49\/2018. (XII. 28.) on the\n range of diseases of particular importance from the point of view of public\n health or otherwise entailing a significant cost burden, on the designation of\n the body managing the disease registry that registers the diseases, and on the\n detailed rules for the notification and registration of these diseases.\n [49\/2018. (XII. 28.) 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[A magyar Cyst\u00e1s Fibrosis Regiszter\n genetikai rev\u00edzi\u00f3ja.] Orv Hetil. 2022; 163: 2052\u20132059.\n [Hungarian]","DOI":"10.1556\/650.2022.32655"},{"key":"R7","unstructured":"Buehler JW, Hopkins RS, Overhage JM, et al. Centers for Disease\n Control and Prevention. Framework for evaluating public health surveillance\n systems for early detection of outbreaks. Morb Mortal Weekly Rep. 2004;\n 53(RR05): 1\u201311."},{"key":"R8","unstructured":"ME. On the margins of a health regulation. [Egy eg\u00e9szs\u00e9g\u00fcgyi\n rendelet marg\u00f3j\u00e1ra.] Magyar Nemzet 1958; 14(44): 152.\n [Hungarian]"},{"key":"R9","unstructured":"Tuberkul\u00f3zis Surveillance System, website. [Tuberkul\u00f3zis\n Surveillance Rendszer, weboldal.] Available from:\n https:\/\/stat.koranyi.hu\/ [accessed: February 16, 2024].\n [Hungarian]"},{"key":"R10","unstructured":"Ministry of Welfare. Decree No. 18\/1998. (VI. 3.) on the necessary\n epidemiological measures to prevent infectious diseases and epidemics. [18\/1998.\n (VI. 3.) NM rendelet a fert\u0151z\u0151 betegs\u00e9gek \u00e9s a j\u00e1rv\u00e1nyok megel\u0151z\u00e9se \u00e9rdek\u00e9ben\n sz\u00fcks\u00e9ges j\u00e1rv\u00e1ny\u00fcgyi int\u00e9zked\u00e9sekr\u0151l.] Available from:\n https:\/\/net.jogtar.hu\/jogszabaly?docid=99800018.nm [accessed:\n February 1, 2024]. [Hungarian]"},{"key":"R11","unstructured":"Ministry of Health, Social and Family Affairs. Decree No. 76\/2004.\n (VIII. 19.) on the detailed rules for the definition, collection and processing\n of sectoral (health, professional) data unsuitable for personal identification.\n [76\/2004. (VIII. 19.) 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