{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,18]],"date-time":"2025-10-18T10:45:24Z","timestamp":1760784324204},"reference-count":26,"publisher":"FapUNIFESP (SciELO)","issue":"8","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Arq. Neuro-Psiquiatr."],"published-print":{"date-parts":[[2017,8]]},"abstract":"<jats:p>ABSTRACT  Objective  To validate the Life Satisfaction Index for Adolescents (LSI-A) scale, parent version and patient version, for Duchenne muscular dystrophy (DMD), spinal muscular atrophy (SMA) and limb-girdle muscular dystrophy (LGMD).  Methods  The parent version of the instrument was divided into Groups A, B, C and D; and the patient version, divided into B, C and D. For the statistical calculation, the following tests were used: Cronbach\u2019s \u03b1, ICC, Pearson and the ROC Curve.  Results  The parent and patient versions of the instrument are presented, with the following results in the overall score, respectively: Cronbach\u2019s \u03b1, 0.87 and 0.89; reliability, r 0.98 and 0.97; reproducibility, ICC 0.69 and 0.80; sensitivity, 0.78 and 0.72; specificity, 0.5 and 0.69; and accuracy, 64% and 70.4%.  Conclusion  According to the validity and reproducibility values, the LSI-A Brazil parent and patient versions, are clinically useful to assess quality of life in DMD, SMA or LGMD and may also be useful for other neuromuscular disorders.<\/jats:p>","DOI":"10.1590\/0004-282x20170103","type":"journal-article","created":{"date-parts":[[2017,8,12]],"date-time":"2017-08-12T23:14:06Z","timestamp":1502579646000},"page":"553-562","source":"Crossref","is-referenced-by-count":3,"title":["Translation and validation of the Life Satisfaction Index for Adolescents scale with neuromuscular disorders: LSI-A Brazil"],"prefix":"10.1590","volume":"75","author":[{"given":"Valdecir Antonio","family":"Simon","sequence":"first","affiliation":[{"name":"Universidade de S\u00e3o Paulo,  Brasil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Edmar","family":"Zanoteli","sequence":"additional","affiliation":[{"name":"Universidade de S\u00e3o Paulo,  Brasil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Margarete Andreozzi Vaz Pereira","family":"Simon","sequence":"additional","affiliation":[{"name":"Universidade de S\u00e3o Paulo,  Brasil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria Bernadete Dutra de","family":"Resende","sequence":"additional","affiliation":[{"name":"Universidade de S\u00e3o Paulo,  Brasil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Umbertina Conti","family":"Reed","sequence":"additional","affiliation":[{"name":"Universidade de S\u00e3o Paulo,  Brasil"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"530","reference":[{"issue":"1","key":"ref1","article-title":"Neuromuscular disorders","volume":"78","author":"Reed UC","year":"2002","journal-title":"J Pediatr"},{"issue":"6","key":"ref2","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1007\/BF00422219","article-title":"Developing and evaluating cross-cultural instruments from minimum requirements to optimal models","volume":"2","author":"Bullinger M","year":"1993","journal-title":"Qual Life Res"},{"issue":"3","key":"ref3","doi-asserted-by":"crossref","first-page":"205","DOI":"10.1136\/adc.84.3.205","article-title":"A review of measures of quality of life for children with chronic illness","volume":"84","author":"Eiser C","year":"2001","journal-title":"Arch Dis Child"},{"issue":"8","key":"ref4","doi-asserted-by":"crossref","first-page":"619","DOI":"10.1001\/jama.1994.03520080061045","article-title":"A critical appraisal of the quality of quality-of-life measurements","volume":"272","author":"Gill T","year":"1994","journal-title":"JAMA"},{"issue":"8","key":"ref5","doi-asserted-by":"crossref","first-page":"622","DOI":"10.7326\/0003-4819-118-8-199304150-00009","article-title":"Measuring health-related quality of life","volume":"118","author":"Guyatt GH","year":"1993","journal-title":"Ann Intern Med"},{"issue":"1","key":"ref6","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1590\/S0004-282X2011000100005","article-title":"Duchenne muscular dystrophy: quality of life among 95 patients evaluated using the Life Satisfaction Index for Adolescents","volume":"69","author":"Simon VA","year":"2011","journal-title":"Arq Neuropsiquiatr"},{"issue":"2","key":"ref7","doi-asserted-by":"crossref","first-page":"184","DOI":"10.1097\/00004356-199406000-00009","article-title":"Preliminary validation of a new instrument to measure life satisfaction in adolescents with neuromuscular disorders","volume":"17","author":"Reid DT","year":"1994","journal-title":"Int J Rehabil Res"},{"key":"ref8","first-page":"919","article-title":"Visual impairment, visual functioning, and quality of life assessments in patients with glaucoma","volume":"94","author":"Parrish 2nd RK","year":"1996","journal-title":"Trans Am Ophthalmol Soc"},{"issue":"12","key":"ref9","doi-asserted-by":"crossref","first-page":"1417","DOI":"10.1016\/0895-4356(93)90142-N","article-title":"Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines","volume":"46","author":"Guillemin F","year":"1993","journal-title":"J Clin Epidemiol"},{"issue":"7","key":"ref10","first-page":"1584","article-title":"Learning from pain scales: patient perspective","volume":"30","author":"Clark P","year":"2003","journal-title":"J Rheumatol"},{"issue":"1","key":"ref11","doi-asserted-by":"crossref","first-page":"2","DOI":"10.2307\/2685077","article-title":"Karl Pearson and R. 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