{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T22:49:23Z","timestamp":1789771763314,"version":"4.0.1"},"reference-count":20,"publisher":"FapUNIFESP (SciELO)","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rev. Bras. Enferm."],"published-print":{"date-parts":[[2017,2]]},"abstract":"<jats:p>RESUMO  Objetivos: analisar o discurso de profissionais e familiares sobre os cuidados cont\u00ednuos e complexos de crian\u00e7as com necessidades especiais de sa\u00fade; compreender a alta hospitalar como processo centrado nas demandas das crian\u00e7as e na aprendizagem da fam\u00edlia.  M\u00e9todo: pesquisa qualitativa realizada entre 2013 e 2015, por meio de entrevistas semiestruturadas, an\u00e1lise documental e m\u00e9todo criativo sens\u00edvel; participaram dez crian\u00e7as com necessidades especiais de sa\u00fade, seis profissionais, onze familiares de hospital p\u00fablico de ensino pedi\u00e1trico do Rio de Janeiro, cujos dados foram submetidos a an\u00e1lise cr\u00edtica de discurso.  Resultados: na alta, os familiares cuidadores querem aprender o cuidado inovador para assegurar a manuten\u00e7\u00e3o da vida de seus filhos no domic\u00edlio, mas o preparo \u00e9 pontual.  Conclus\u00e3o: a equipe e a fam\u00edlia distinguem o enfermeiro como o profissional qualificado para esse preparo, uma vez que os cuidados procedimentais s\u00e3o cuidados de enfermagem.<\/jats:p>","DOI":"10.1590\/0034-7167-2016-0248","type":"journal-article","created":{"date-parts":[[2017,2,20]],"date-time":"2017-02-20T14:26:17Z","timestamp":1487600777000},"page":"163-171","source":"Crossref","is-referenced-by-count":26,"title":["Discursos sobre cuidados na alta de crian\u00e7as com necessidades especiais de sa\u00fade"],"prefix":"10.1590","volume":"70","author":[{"given":"Fernanda Garcia Bezerra","family":"G\u00f3es","sequence":"first","affiliation":[{"name":"Universidade Federal do Rio de Janeiro,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ivone Evangelista","family":"Cabral","sequence":"additional","affiliation":[{"name":"Universidade Federal do Rio de Janeiro,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"530","reference":[{"issue":"2","key":"ref1","first-page":"889","article-title":"Crian\u00e7as com necessidades especiais de sa\u00fade e suas demandas de cuidado","volume":"2","author":"G\u00f3es FGB","year":"2010","journal-title":"Rev Pesq: Cuid Fundam"},{"issue":"6","key":"ref2","first-page":"769","article-title":"Family caregivers articulating the social network of a child with special health care needs","volume":"68","author":"Cabral IE","year":"2015","journal-title":"Rev Bras Enferm"},{"issue":"3","key":"ref3","first-page":"547","article-title":"Families\u2019 concerns about the care of children with technology-dependent special health care needs","volume":"33","author":"Esteves JS","year":"2015","journal-title":"Invest Educ Enferm"},{"issue":"2","key":"ref4","first-page":"17","article-title":"Family caregiver perspectives on management of long-term home enteral nutrition via a gastrostomy tube","volume":"18","author":"Cooper B","year":"2008","journal-title":"J Genga"},{"issue":"7","key":"ref5","first-page":"30","article-title":"plex care packages: supporting seamless discharge for child and family","volume":"17","author":"Stephens N","year":"2005","journal-title":"Paediatr Nurs"},{"key":"ref6","article-title":"Continuity of care in children with special healthcare needs: a qualitative study of family\u2019s perspectives","volume":"8","author":"Zanello E","year":"2015","journal-title":"Ital J Pediatr"},{"issue":"4","key":"ref7","first-page":"26","article-title":"Discharge management for children with complex needs","volume":"19","author":"Noyes J","year":"2007","journal-title":"Paediatric Nursing"},{"issue":"7","key":"ref8","first-page":"744","article-title":"Hospital discharge of respiratory-technology-dependent children: role of a dedicated respiratory care discharge coordinator","volume":"51","author":"Tearl DK","year":"2006","journal-title":"Respir Care"},{"issue":"2","key":"ref9","doi-asserted-by":"crossref","first-page":"108","DOI":"10.1097\/NHH.0b013e3182085e93","article-title":"Bringing children home: bridging the gap between inpatient pediatric care and home healthcare","volume":"29","author":"Smith T","year":"2011","journal-title":"Home Healthc Nurse"},{"issue":"5","key":"ref10","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1111\/j.1945-1474.2012.00215.x","article-title":"Implementing a care coordination program for children with special healthcare needs: partnering with families and providers","volume":"35","author":"Taylor A","year":"2013","journal-title":"J Healthc Qual"},{"key":"ref11","series-title":"Pedagogia da Autonomia: saberes necess\u00e1rios \u00e0 pr\u00e1tica educativa","author":"Freire P","year":"2011","edition":"43. eda ed"},{"key":"ref12","series-title":"Cuidar... A primeira arte da vida","author":"Colli\u00e8re MF","year":"2003","edition":"2th ed"},{"key":"ref13","series-title":"Metodologias da Pesquisa para a Enfermagem e Sa\u00fade da teoria \u00e0 pr\u00e1tica","first-page":"325","volume-title":"Pesquisa com o m\u00e9todo criativo e sens\u00edvel na enfermagem: fundamentos te\u00f3ricos e aplicabilidade","author":"Cabral IE","year":"2016"},{"issue":"2","key":"ref14","first-page":"389","article-title":"Amostragem em pesquisas qualitativas: proposta de procedimentos para constatar satura\u00e7\u00e3o te\u00f3rica","volume":"27","author":"Fontanella BJB","year":"2011","journal-title":"Cad Sa\u00fade P\u00fablica"},{"key":"ref15","series-title":"Discurso e Mudan\u00e7a social","author":"Fairclough N","year":"2008"},{"issue":"5","key":"ref16","first-page":"1065","article-title":"Technology-dependent children: the maternal care experience","volume":"46","author":"Okido ACC","year":"2012","journal-title":"Rev Esc Enferm USP"},{"issue":"2","key":"ref17","doi-asserted-by":"crossref","first-page":"282","DOI":"10.1590\/S0104-11692012000200010","article-title":"The social network of children with special healthcare needs in the (in)visibility of nursing care","volume":"20","author":"Moraes JRMM","year":"2012","journal-title":"Rev Latino-Am Enfermagem"},{"issue":"1","key":"ref18","first-page":"79","article-title":"Children with special health needs and family: implications for Nursing","volume":"69","author":"Figueiredo SV","year":"2016","journal-title":"Rev Bras Enferm"},{"issue":"4","key":"ref19","doi-asserted-by":"crossref","first-page":"648","DOI":"10.5935\/1414-8145.20150087","article-title":"Challenges of nursing care for children with chronic conditions in primary health care","volume":"19","author":"Duarte ED","year":"2015","journal-title":"Esc Anna Nery Rev Enferm"},{"issue":"4","key":"ref20","first-page":"671","article-title":"Technology-dependent children and the demand for pharmaceutical care","volume":"69","author":"Okido ACC","year":"2016","journal-title":"Rev Bras Enferm"}],"container-title":["Revista Brasileira de Enfermagem"],"original-title":[],"link":[{"URL":"http:\/\/www.scielo.br\/pdf\/reben\/v70n1\/0034-7167-reben-70-01-0163.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2017,5,24]],"date-time":"2017-05-24T02:27:52Z","timestamp":1495592872000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_arttext&pid=S0034-71672017000100163&lng=pt&tlng=pt"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,2]]},"references-count":20,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2017,2]]}},"alternative-id":["S0034-71672017000100163"],"URL":"https:\/\/doi.org\/10.1590\/0034-7167-2016-0248","relation":{},"ISSN":["0034-7167"],"issn-type":[{"value":"0034-7167","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,2]]}}}