{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,6]],"date-time":"2026-07-06T15:09:45Z","timestamp":1783350585902,"version":"3.54.6"},"reference-count":24,"publisher":"FapUNIFESP (SciELO)","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rev. Bras. Enferm."],"published-print":{"date-parts":[[2016,8]]},"abstract":"<jats:p>RESUMO  Objetivo: compreender a viv\u00eancia de m\u00e3es de crian\u00e7as dependentes de tecnologia em rela\u00e7\u00e3o ao cuidado medicamentoso.  M\u00e9todo: pesquisa qualitativa do tipo descritivo-explorat\u00f3ria, desenvolvida por meio de entrevistas abertas e aplica\u00e7\u00e3o de instrumento estruturado para caracteriza\u00e7\u00e3o, com 12 m\u00e3es cuidadoras de crian\u00e7as dependentes de tecnologia durante visita domiciliar. Os dados foram submetidos \u00e0 an\u00e1lise de conte\u00fado indutiva.  Resultados: organizados em dois temas: a sobrecarga materna diante do cuidado medicamentoso, que revelou a necessidade da administra\u00e7\u00e3o de medicamentos de forma cont\u00ednua e as repercuss\u00f5es desse cuidado exaustivo para as cuidadoras; e as dificuldades e facilidades no acesso aos medicamentos, apontando as estrat\u00e9gias informais e redes de apoio.  Conclus\u00e3o: o cuidado medicamentoso configura-se um desafio di\u00e1rio expresso pela sobrecarga materna e dificuldade de acesso aos medicamentos, potencializado por falhas na constitui\u00e7\u00e3o da rede de aten\u00e7\u00e3o e coordena\u00e7\u00e3o do cuidado.<\/jats:p>","DOI":"10.1590\/0034-7167.2016690415i","type":"journal-article","created":{"date-parts":[[2016,8,3]],"date-time":"2016-08-03T14:30:50Z","timestamp":1470234650000},"page":"718-724","source":"Crossref","is-referenced-by-count":8,"title":["Crian\u00e7a dependente de tecnologia e a demanda de cuidado medicamentoso"],"prefix":"10.1590","volume":"69","author":[{"given":"Aline Cristiane Cavicchioli","family":"Okido","sequence":"first","affiliation":[{"name":"Universidade de S\u00e3o Paulo,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Suelen Teles da","family":"Cunha","sequence":"additional","affiliation":[{"name":"Hospital S\u00edrio-Liban\u00eas,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eliane Tatsch","family":"Neves","sequence":"additional","affiliation":[{"name":"Universidade Federal de Santa Maria,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Giselle","family":"Dupas","sequence":"additional","affiliation":[{"name":"Universidade Federal de S\u00e3o Carlos,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Regina Aparecida Garcia de","family":"Lima","sequence":"additional","affiliation":[{"name":"Universidade de S\u00e3o Paulo,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"530","reference":[{"issue":"6","key":"ref1","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1016\/j.pedhc.2012.05.003","article-title":"The impact of technology dependence on children and their families","volume":"7","author":"Mesman GR","year":"2013","journal-title":"J Pediatr Health Care [Internet]"},{"issue":"1","key":"ref2","doi-asserted-by":"crossref","first-page":"137","DOI":"10.1542\/peds.102.1.137","article-title":"A new definition of children with special health care needs","volume":"102","author":"McPherson MG","year":"1998","journal-title":"Pediatrics"},{"issue":"5","key":"ref3","doi-asserted-by":"crossref","first-page":"996","DOI":"10.1542\/peds.2012-0606","article-title":"Home care of children and youth with complex health care needs and technology dependencies","volume":"129","author":"Elias ER","year":"2012","journal-title":"Pediatrics [Internet]"},{"issue":"12","key":"ref4","doi-asserted-by":"crossref","first-page":"2551","DOI":"10.1111\/j.1365-2648.2011.05761.x","article-title":"Managing change in the care of children with complex needs: healthcare providers' perspective","volume":"67","author":"Law L","year":"2011","journal-title":"J Adv Nurs [Internet]"},{"issue":"2","key":"ref5","first-page":"182","article-title":"A fragilidade cl\u00ednica e a vulnerabilidade social das crian\u00e7as com necessidades especiais de sa\u00fade","volume":"29","author":"Neves ET","year":"2008","journal-title":"Rev Ga\u00facha Enferm [Internet]"},{"issue":"3","key":"ref6","first-page":"291","article-title":"Perfil de crian\u00e7as dependentes de tecnologia no munic\u00edpio de Ribeir\u00e3o Preto","volume":"22","author":"Okido ACC","year":"2012","journal-title":"Rev Bras Crescimento Desenvolv Hum [Internet]"},{"key":"ref7","series-title":"Promoting health in families: applying family research and theory to nursing practice","first-page":"142","volume-title":"Family social support: conceptual frameworks for nursing practice to promote and protect health","author":"Bullock K","year":"2004"},{"issue":"77","key":"ref8","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun V","year":"2006","journal-title":"Qual Res Psychol [Internet]"},{"issue":"2","key":"ref9","doi-asserted-by":"crossref","first-page":"562","DOI":"10.1590\/S0104-11692013000200013","article-title":"Family network of children with special health needs: implications for Nursing","volume":"21","author":"Neves ET","year":"2013","journal-title":"Rev Latino-Am Enfermagem [Internet]"},{"issue":"3","key":"ref10","first-page":"636","article-title":"The experience of disease in cystic fibrosis: the paths to comprehensive care","volume":"45","author":"Pizzignacco TMP","year":"2011","journal-title":"Rev Esc Enferm USP [Internet]"},{"issue":"4","key":"ref11","first-page":"172","article-title":"Vulnerability of children with special health care needs: implications for nursing","volume":"33","author":"Silveira A","year":"2012","journal-title":"Rev Ga\u00facha Enferm [Internet]"},{"issue":"5","key":"ref12","doi-asserted-by":"crossref","first-page":"456","DOI":"10.1111\/j.1365-2648.2005.03522.x","article-title":"Parent or nurse? 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