{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,27]],"date-time":"2026-09-27T15:06:18Z","timestamp":1790521578114,"version":"4.1.0"},"reference-count":76,"publisher":"FapUNIFESP (SciELO)","issue":"6","license":[{"start":{"date-parts":[[2019,1,1]],"date-time":"2019-01-01T00:00:00Z","timestamp":1546300800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2019,1,1]],"date-time":"2019-01-01T00:00:00Z","timestamp":1546300800000},"content-version":"am","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2019,1,1]],"date-time":"2019-01-01T00:00:00Z","timestamp":1546300800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Cad. Sa\u00fade P\u00fablica"],"abstract":"<jats:p>A defici\u00eancia m\u00faltipla em crian\u00e7as, presente em diversas s\u00edndromes, \u00e9 uma condi\u00e7\u00e3o que acarreta problemas de ordem f\u00edsica, econ\u00f4mica e social e afeta os pais dessas crian\u00e7as e suas fam\u00edlias. O anseio de conhecer melhor essa problem\u00e1tica, sob a perspectiva da an\u00e1lise qualitativa, deu origem ao objetivo deste estudo, que \u00e9 de identificar e sintetizar o que a literatura cient\u00edfica aborda sobre as repercuss\u00f5es do nascimento e do cuidado de um filho com defici\u00eancia m\u00faltipla na fam\u00edlia. Trata-se de uma metass\u00edntese qualitativa, realizada nas bases de dados Scopus, PsycInfo e SciELO, utilizando-se os descritores: qualitativo; crian\u00e7as com defici\u00eancia; rela\u00e7\u00f5es pais-filhos; rela\u00e7\u00f5es familiares; e cuidadores. Os dados foram analisados em tr\u00eas etapas, segundo o m\u00e9todo adotado por Noblit &amp; Hare: extra\u00e7\u00e3o de conceitos de primeira ordem; produ\u00e7\u00e3o de conceitos de segunda ordem; e s\u00edntese interpretativa. Depois do processo de busca e elegibilidade, oito estudos foram inclu\u00eddos; desses, emergiram seis conceitos de segunda ordem: restri\u00e7\u00e3o social; desgaste nas rela\u00e7\u00f5es familiares; sentimentos que afligem; instabilidade financeira; mudan\u00e7a na din\u00e2mica familiar; e estresse na sa\u00fade e no bem-estar. Com base nesses conceitos, elaboraram-se tr\u00eas s\u00ednteses: defici\u00eancia e parentalidade ideal; o \u00f4nus do cuidado; e (re)ssignifica\u00e7\u00f5es e adapta\u00e7\u00f5es da fam\u00edlia. Os estudos apontaram que os pais e a fam\u00edlia passam por dificuldades advindas das representa\u00e7\u00f5es sobre a defici\u00eancia m\u00faltipla e dos encargos do cuidado (problemas de sa\u00fade, limita\u00e7\u00e3o para outras atividades, aumento dos custos financeiros, mudan\u00e7a de rotina). Indicam, tamb\u00e9m, que esses elementos penetram e podem interferir nas rela\u00e7\u00f5es familiares e sociais.<\/jats:p>","DOI":"10.1590\/0102-311x00157918","type":"journal-article","created":{"date-parts":[[2019,7,3]],"date-time":"2019-07-03T19:32:16Z","timestamp":1562182336000},"source":"Crossref","is-referenced-by-count":20,"title":["Repercuss\u00f5es do nascimento e do cuidado de crian\u00e7as com defici\u00eancia m\u00faltipla na fam\u00edlia: uma metass\u00edntese qualitativa"],"prefix":"10.1590","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2208-1409","authenticated-orcid":false,"given":"Kaliny Oliveira","family":"Dantas","sequence":"first","affiliation":[{"name":"Universidade Federal da Para\u00edba, Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3889-560X","authenticated-orcid":false,"given":"Robson da Fonseca","family":"Neves","sequence":"additional","affiliation":[{"name":"Universidade Federal da Para\u00edba, Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5850-7176","authenticated-orcid":false,"given":"K\u00e1tia Suely Queiroz Silva","family":"Ribeiro","sequence":"additional","affiliation":[{"name":"Universidade Federal da Para\u00edba, Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3059-3164","authenticated-orcid":false,"given":"Geraldo Eduardo Guedes de","family":"Brito","sequence":"additional","affiliation":[{"name":"Universidade Federal da Para\u00edba, Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8304-7987","authenticated-orcid":false,"given":"Marcia do Carmelo","family":"Batista","sequence":"additional","affiliation":[{"name":"Universidade Federal da Para\u00edba, Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"530","published-online":{"date-parts":[[2019]]},"reference":[{"key":"ref1","series-title":"Boletim Epidemiol\u00f3gico","volume":"49","year":"2018"},{"key":"ref2","doi-asserted-by":"crossref","first-page":"3297","DOI":"10.1590\/1413-812320152110.16832016","article-title":"Microcefalia e outras manifesta\u00e7\u00f5es relacionadas ao v\u00edrus zika impacto nas crian\u00e7as, nas fam\u00edlias e nas equipes de sa\u00fade","volume":"21","author":"Brunoni D","year":"2016","journal-title":"Ci\u00eanc Sa\u00fade Colet"},{"key":"ref3","series-title":"Pol\u00edtica Nacional de Educa\u00e7\u00e3o Especial na Perspectiva da Inclus\u00e3o","year":"2008"},{"key":"ref4","series-title":"Programa de Capacita\u00e7\u00e3o de Recursos Humanos do Ensino Fundamental Defici\u00eancia M\u00faltipla","year":"2000"},{"key":"ref5","first-page":"411","article-title":"Dificuldades e conflitos enfrentados pela fam\u00edlia no cuidado 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