{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,30]],"date-time":"2026-03-30T13:57:49Z","timestamp":1774879069567,"version":"3.50.1"},"reference-count":25,"publisher":"FapUNIFESP (SciELO)","issue":"1","license":[{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"am","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rev. Assoc. Med. Bras."],"abstract":"<jats:p>SUMMARY Ensuring cancer patients and their families receive high-quality care at the very end of life is of paramount importance. The manner a family member dies has a profound impact on the bereaved. One way to assess this care is by using a post bereavement questionnaire.  OBJECTIVE: The aim of the study was to translate into Brazilian Portuguese, conduct cross-cultural adaptation, validate and use a post-bereavement tool, \u201cCare of the Dying Evaluation\u201d.  METHODS: An observational, international, cross-sectional multicenter study in seven countries, through 2018 to 2020. In Brazil, participants were recruited from two hospitals, Hospital Estadual Sumar\u00e9 and Hospital das Cl\u00ednicas, and had been admitted for a minimum of 3 days before death. Translation of CODETM in keeping with international principles, and pre-testing using patient and public involvement and cognitive interviews with bereaved relatives.  RESULTS: The survey involved 235 bereaved family members, mostly female (70.6%), with 40% being sons and daughters of the deceased. Validity of the CODETM tool was assessed using confirmatory factor analysis, internal consistency through Cronbach\u2019s \u03b1, and reliability via the Kappa coefficient and Spearman\u2019s correlation. The study compared care quality perceptions between those who received palliative care and others. Findings revealed that 50.7% were informed about the dying process, and over 60% expressed that clarification of expected symptoms would have been beneficial.  CONCLUSION: The study confirms that the CODETM questionnaire is a valid and reliable tool for evaluating the quality of end-of-life care within the Brazilian Portuguese context.<\/jats:p>","DOI":"10.1590\/1806-9282.20250704","type":"journal-article","created":{"date-parts":[[2026,3,30]],"date-time":"2026-03-30T13:05:47Z","timestamp":1774875947000},"source":"Crossref","is-referenced-by-count":0,"title":["Translation and validation of the Portuguese version of the \u201cCare of the Dying Evaluation\u201d"],"prefix":"10.1590","volume":"72","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7749-0875","authenticated-orcid":false,"given":"Juliana Nalin","family":"Passarini","sequence":"first","affiliation":[{"name":"Universidade Estadual de Campinas,  Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2328-6032","authenticated-orcid":false,"given":"Vilma Adriana","family":"Tripodoro","sequence":"additional","affiliation":[{"name":"Instituto Pallium Latinoam\u00e9rica,  Agentina"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1440-9953","authenticated-orcid":false,"given":"Catriona","family":"Mayland","sequence":"additional","affiliation":[{"name":"The University of Sheffield,  England"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8592-4995","authenticated-orcid":false,"given":"Dagny Faksv\u00e5g","family":"Haugen","sequence":"additional","affiliation":[{"name":"University of Bergen,  Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3722-1697","authenticated-orcid":false,"given":"Lair","family":"Zambon","sequence":"additional","affiliation":[{"name":"Universidade Estadual de Campinas,  Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1239-4724","authenticated-orcid":false,"given":"Ivete Alonso Bredda","family":"Saad","sequence":"additional","affiliation":[{"name":"Universidade Estadual de Campinas,  Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"530","published-online":{"date-parts":[[2026]]},"reference":[{"key":"ref1","series-title":"Atlas dos cuidados paliativos no Brasil 2019.","author":"Santos AFJ","year":"2020"},{"key":"ref2","article-title":"The 2015 quality of death index ranking palliative care across the world [Internet].","year":"2015","journal-title":"The Economist Intelligence Unit"},{"issue":"4","key":"ref3","doi-asserted-by":"crossref","first-page":"e419","DOI":"10.1016\/j.jpainsymman.2021.12.015","article-title":"Cross country comparison of expert assessments of the quality of death and dying 2021.","volume":"63","author":"Finkelstein EA","year":"2022","journal-title":"J Pain Symptom Manage"},{"issue":"3","key":"ref4","first-page":"303","article-title":"Cuidados paliativos no Brasil: desafios e perspectivas.","volume":"12","author":"Pessini L","year":"2018","journal-title":"Bioethikos"},{"issue":"1","key":"ref5","doi-asserted-by":"crossref","first-page":"98","DOI":"10.1186\/s12904-020-00609-x","article-title":"Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway.","volume":"19","author":"Hansen MIT","year":"2020","journal-title":"BMC Palliat Care"},{"issue":"1","key":"ref6","doi-asserted-by":"crossref","first-page":"e23","DOI":"10.1016\/j.jpainsymman.2022.02.340","article-title":"Validation of \u2018Care Of the Dying Evaluation\u2019 (CODETM) within an international study exploring bereaved relatives\u2019 perceptions about quality of care in the last days of life.","volume":"64","author":"Mayland CR","year":"2022","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"ref7","doi-asserted-by":"crossref","first-page":"128","DOI":"10.1186\/s12904-025-01772-9","article-title":"Translation and cultural adaptation of the Chinese version of the International \u2018Care Of the Dying Evaluation\u2019 (CODETM) tool for assessing the quality of care for dying patients from the perspective of bereaved family members.","volume":"24","author":"Zheng X","year":"2025","journal-title":"BMC Palliat Care"},{"key":"ref8","author":"Johnston C","year":"2011"},{"issue":"6","key":"ref9","doi-asserted-by":"crossref","first-page":"644","DOI":"10.1177\/02692163241248735","article-title":"Cognitive testing of the Children\u2019s Palliative Outcome Scale (C-POS) with children, young people and their parents\/carers.","volume":"38","author":"Coombes L","year":"2024","journal-title":"Palliat Med"},{"issue":"2","key":"ref10","doi-asserted-by":"crossref","first-page":"183","DOI":"10.1007\/s40271-018-0328-2","article-title":"Tools measuring quality of death, dying, and care, completed after death: systematic review of psychometric properties.","volume":"12","author":"Kupeli N","year":"2019","journal-title":"Patient"},{"key":"ref11","series-title":"Structural equation modeling with AMOS: basic concepts, applications and programming.","author":"Byrne BM","year":"2010"},{"issue":"3","key":"ref12","doi-asserted-by":"crossref","first-page":"357","DOI":"10.1177\/0269216318818299","article-title":"Assessing quality of care for the dying from the bereaved relatives\u2019 perspective: using pre-testing survey methods across seven countries to develop an international outcome measure.","volume":"33","author":"Mayland CR","year":"2019","journal-title":"Palliat Med"},{"key":"ref13","doi-asserted-by":"crossref","first-page":"66","DOI":"10.11606\/s1518-8787.2020054002342","article-title":"Interventions in overcrowding of emergency departments: an overview of systematic reviews.","volume":"54","author":"Bittencourt RJ","year":"2020","journal-title":"Rev Saude Publica"},{"issue":"2","key":"ref14","doi-asserted-by":"crossref","first-page":"162","DOI":"10.1136\/bmjspcare-2011-000045","article-title":"Exploring health professionals\u2019 views regarding the optimum physical environment for palliative and end of life care in the acute hospital setting: a qualitative study.","volume":"1","author":"Gardiner C","year":"2011","journal-title":"BMJ Support Palliat Care"},{"issue":"4","key":"ref15","doi-asserted-by":"crossref","first-page":"346","DOI":"10.1097\/SPC.0000000000000171","article-title":"The last days of life: symptom burden and impact on nutrition and hydration in cancer patients.","volume":"9","author":"Hui D","year":"2015","journal-title":"Curr Opin Support Palliat Care"},{"issue":"1","key":"ref16","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1186\/s12904-020-0521-7","article-title":"Shared decision making with oncologists and palliative care specialists effectively increases the documentation of the preferences for do not resuscitate and artificial nutrition and hydration in patients with advanced cancer: a model testing study.","volume":"19","author":"Huang HL","year":"2020","journal-title":"BMC Palliat Care"},{"issue":"4","key":"ref17","doi-asserted-by":"crossref","first-page":"687","DOI":"10.1016\/j.jpainsymman.2013.05.013","article-title":"Assessing the quality of care for dying patients from the bereaved relatives\u2019 perspective: further validation of \u201cEvaluating care and health outcomes--for the dying\u201d.","volume":"47","author":"Mayland CR","year":"2014","journal-title":"J Pain Symptom Manage"},{"issue":"9","key":"ref18","doi-asserted-by":"crossref","first-page":"1438","DOI":"10.1007\/s00134-024-07565-7","article-title":"Assessing palliative care practices in intensive care units and interpreting them using the lens of appropriate care concepts. 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