{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,22]],"date-time":"2026-06-22T22:43:46Z","timestamp":1782168226089,"version":"3.54.5"},"reference-count":20,"publisher":"FapUNIFESP (SciELO)","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rev. Ga\u00facha Enferm."],"published-print":{"date-parts":[[2015,3]]},"abstract":"<jats:p>Childhood autism is characterized by severe and global impairment in several areas of human development and demands extensive care and dependence on the parents. The objective of this study was to understand the perceptions of mothers of children with autism regarding changes suffered by the child and their trajectories in search of an autism diagnosis. This is an exploratory descriptive study with a qualitative approach conducted with ten participant mothers. Data were collected in 2013 by means of semi-structured interviews. Thematic content analysis produced the following categories: perceptions of mothers as to changes in behaviour and\/or development of their children; and trajectories of mothers in search of a diagnosis for their children. After the perception of changes in behaviour\/development, mothers face an arduous trajectory of healthcare service utilization.<\/jats:p>","DOI":"10.1590\/1983-1447.2015.01.43623","type":"journal-article","created":{"date-parts":[[2015,6,17]],"date-time":"2015-06-17T22:54:28Z","timestamp":1434581668000},"page":"49-55","source":"Crossref","is-referenced-by-count":16,"title":["Mothers of children with autistic disorder: perceptions and trajectories"],"prefix":"10.1590","volume":"36","author":[{"given":"Michele","family":"Ebert","sequence":"first","affiliation":[{"name":"Faculdade Nossa Senhora de F\u00e1tima,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisiane","family":"Lorenzini","sequence":"additional","affiliation":[{"name":"Universidade Federal do Rio Grande do Sul,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eveline Franco da","family":"Silva","sequence":"additional","affiliation":[{"name":"UFRGS,  Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"530","reference":[{"key":"ref1","series-title":"Sa\u00fade mental no SUS: acesso ao tratamento e mudan\u00e7a do modelo de aten\u00e7\u00e3o","year":"2007"},{"key":"ref2","series-title":"DSM-V: manual e diagn\u00f3stico e estat\u00edstico de transtornos mentais","year":"2013","edition":"5"},{"key":"ref3","series-title":"Caminhos para uma pol\u00edtica de sa\u00fade mental infanto-juvenil","year":"2005"},{"issue":"7","key":"ref4","first-page":"402","article-title":"Our experience with the a etiological diagnosis of global developmental delay and intellectual disability: 2006-2010","volume":"29","author":"Lopez-Pison J","year":"2014","journal-title":"Neurologia"},{"key":"ref5","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1146\/annurev-clinpsy-032813-153710","article-title":"From Kanner to DSM-5: autism as an evolving diagnostic concept","volume":"10","author":"Volkmar FR","year":"2014","journal-title":"Annu Rev Clin Psychol"},{"issue":"1","key":"ref6","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1590\/S1983-14472013000100016","article-title":"O tipo vivido de familiares de usu\u00e1rios de um centro de aten\u00e7\u00e3o psicossocial infantil","volume":"34","author":"Machineski GG","year":"2013","journal-title":"Rev Ga\u00facha Enferm"},{"issue":"35","key":"ref7","doi-asserted-by":"crossref","first-page":"921","DOI":"10.1590\/S1414-32832010000400016","article-title":"Implica\u00e7\u00f5es de redes tem\u00e1ticas em blogs na An\u00e1lise de Redes Sociais (ARS): estudo de caso de blogs sobre autismo e s\u00edndrome de Asperger","volume":"14","author":"Montardo SP","year":"2010","journal-title":"Interface Comun Sa\u00fade Educ"},{"issue":"2","key":"ref8","doi-asserted-by":"crossref","first-page":"208","DOI":"10.1590\/S0102-79722010000200003","article-title":"Itiner\u00e1rio terap\u00eautico percorrido por m\u00e3es de crian\u00e7as com transtorno aut\u00edstico","volume":"23","author":"Favero-Nunes MA","year":"2010","journal-title":"Psicol Reflex Crit"},{"key":"ref9","series-title":"Fundamentos de pesquisa em enfermagem: avalia\u00e7\u00e3o de evid\u00eancias para a pr\u00e1tica da enfermagem","author":"Polit DF","year":"2011","edition":"7"},{"issue":"3","key":"ref10","first-page":"1","article-title":"Trajet\u00f3rias percorridas por m\u00e3es de crian\u00e7as com transtorno aut\u00edstico","volume":"9","author":"Ebert M","year":"2013","journal-title":"Biblioteca Lascasas"},{"issue":"2","key":"ref11","first-page":"389","article-title":"Amostragem em pesquisas qualitativas: proposta de procedimentos para constatar satura\u00e7\u00e3o te\u00f3rica","volume":"27","author":"Fontanella BJB","year":"2011","journal-title":"Cad Sa\u00fade P\u00fablica"},{"key":"ref12","series-title":"An\u00e1lise de conte\u00fado","author":"Bardin L","year":"2009","edition":"5."},{"key":"ref13","series-title":"Resolu\u00e7\u00e3o n\u00ba 466, de 12 de dezembro de 2012. Diretrizes e normas regulamentadoras de pesquisas envolvendo seres humanos","first-page":"59","volume":"150","year":"2013"},{"issue":"6","key":"ref14","doi-asserted-by":"crossref","first-page":"1397","DOI":"10.5205\/reuol.1262-12560-1-LE.0506201112","article-title":"Feelings and difficulties by mothers of children with special needs","volume":"5","author":"Luza AR","year":"2011","journal-title":"Rev Enferm UFPE On Line [Internet]"},{"issue":"2","key":"ref15","first-page":"134","article-title":"Autismo: conhecimento da equipe de enfermagem","volume":"3","author":"Nunes SC","year":"2009","journal-title":"Cuid'Arte Enferm [Internet]"},{"issue":"3","key":"ref16","doi-asserted-by":"crossref","first-page":"315","DOI":"10.1590\/S0102-37722012000300007","article-title":"Compet\u00eancia social, inclus\u00e3o escolar e autismo: um estudo de caso comparativo","volume":"28","author":"Camargo SPH","year":"2012","journal-title":"Psicol Teor Pesqui"},{"issue":"1","key":"ref17","first-page":"7","article-title":"Capacita\u00e7\u00e3o de agentes comunit\u00e1rios de sa\u00fade sobre o espectro autista","volume":"2","author":"Menegoli EB","year":"2010","journal-title":"Cuid'Arte Enferm [Internet]"},{"issue":"11","key":"ref18","article-title":"Ni\u00f1os con trastorno del espectro autista: intervenci\u00f3n precoz","volume":"5","author":"Mu\u00f1oz NB","year":"2011","journal-title":"Paraninfo Digital [Internet]"},{"issue":"3","key":"ref19","doi-asserted-by":"crossref","first-page":"206","DOI":"10.1016\/j.pedn.2011.03.013","article-title":"Coping with autism: a journey toward adaptation","volume":"27","author":"Lutz HR","year":"2012","journal-title":"J Pediatr Nurs"},{"issue":"4","key":"ref20","first-page":"969","article-title":"Design and knowledge of nurse the strategies for family health about childhood autism","volume":"6","author":"Sena RCF","year":"2012","journal-title":"Rev Enferm UFPE On Line [Internet]"}],"container-title":["Revista Ga\u00facha de Enfermagem"],"original-title":[],"link":[{"URL":"http:\/\/www.scielo.br\/pdf\/rgenf\/v36n1\/1983-1447-rgenf-36-01-00049.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2017,5,23]],"date-time":"2017-05-23T01:04:31Z","timestamp":1495501471000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_arttext&pid=S1983-14472015000100049&lng=en&tlng=en"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,3]]},"references-count":20,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2015,3]]}},"alternative-id":["S1983-14472015000100049"],"URL":"https:\/\/doi.org\/10.1590\/1983-1447.2015.01.43623","relation":{},"ISSN":["1983-1447"],"issn-type":[{"value":"1983-1447","type":"electronic"}],"subject":[],"published":{"date-parts":[[2015,3]]}}}