{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,29]],"date-time":"2025-10-29T05:41:43Z","timestamp":1761716503055},"reference-count":41,"publisher":"FapUNIFESP (SciELO)","issue":"5","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Cad. Sa\u00fade P\u00fablica"],"published-print":{"date-parts":[[2017]]},"abstract":"<jats:p>Resumo: Atualmente os cidad\u00e3os s\u00e3o parceiros dos sistemas formais na promo\u00e7\u00e3o da sa\u00fade. Na gest\u00e3o das doen\u00e7as heredit\u00e1rias, o papel dos familiares como fonte de suporte \u00e9 vital. O papel dos mais velhos emerge como crucial pela longa rela\u00e7\u00e3o com a doen\u00e7a e com os doentes na fam\u00edlia. Contudo, esse papel permanece pouco explorado, em particular, em doen\u00e7as gen\u00e9ticas, como a paramiloidose. Este estudo qualitativo explorat\u00f3rio analisa o papel dos mais velhos, em fam\u00edlias com paramiloidose, na promo\u00e7\u00e3o da sa\u00fade dos mais novos. Adotou-se a t\u00e9cnica dos incidentes cr\u00edticos, aplicada por entrevista semiestruturada. O estudo envolve 18 participantes que relataram 76 incidentes cr\u00edticos. As entrevistas foram gravadas e submetidas a an\u00e1lise de conte\u00fado. Os principais resultados sugerem os seguintes pap\u00e9is dos mais velhos junto dos mais novos: modelar (comportamentos), encorajar, informar e apoiar. As gera\u00e7\u00f5es mais velhas podem ser envolvidas pelos profissionais de sa\u00fade como parceiras no apoio aos mais novos em fam\u00edlias com paramiloidose.<\/jats:p>","DOI":"10.1590\/0102-311x00185515","type":"journal-article","created":{"date-parts":[[2017,6,14]],"date-time":"2017-06-14T19:39:45Z","timestamp":1497469185000},"source":"Crossref","is-referenced-by-count":9,"title":["Promo\u00e7\u00e3o da sa\u00fade em fam\u00edlias com paramiloidose: pap\u00e9is dos mais velhos junto dos mais novos"],"prefix":"10.1590","volume":"33","author":[{"given":"Carla Roma","family":"Oliveira","sequence":"first","affiliation":[{"name":"Associa\u00e7\u00e3o dos Lares Ferrovi\u00e1rios,  Portugal; Universidade de Aveiro,  Portugal"}]},{"given":"\u00c1lvaro","family":"Mendes","sequence":"additional","affiliation":[{"name":"UnIGENe,  Portugal; Universidade do Porto,  Portugal"}]},{"given":"Liliana","family":"Sousa","sequence":"additional","affiliation":[{"name":"Universidade de Aveiro,  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