{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T22:53:41Z","timestamp":1772232821469,"version":"3.50.1"},"reference-count":28,"publisher":"FapUNIFESP (SciELO)","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"am","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rev. esc. enferm. USP"],"abstract":"<jats:p>ABSTRACT  Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF).  Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component \u201cDefinition of the Situation\u201d. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis.  Results: Family members reported a view of normality in relation to CCC, also verified by the Child\u2019s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child\u2019s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales.  Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.<\/jats:p>","DOI":"10.1590\/1980-220x-reeusp-2023-0304en","type":"journal-article","created":{"date-parts":[[2024,3,12]],"date-time":"2024-03-12T14:01:35Z","timestamp":1710252095000},"source":"Crossref","is-referenced-by-count":7,"title":["Families\u2019 situation of caring for a child with a chronic condition: a mixed methods study"],"prefix":"10.1590","volume":"58","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0706-3170","authenticated-orcid":false,"given":"Melissa Joice de Abreu","family":"Felizardo","sequence":"first","affiliation":[{"name":"Universidade Federal de Minas Gerais,  Brazil"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8075-6857","authenticated-orcid":false,"given":"Ma\u00edsa Mara Lopes","family":"Mac\u00eado","sequence":"additional","affiliation":[{"name":"Universidade Federal de Minas Gerais,  Brazil"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0765-187X","authenticated-orcid":false,"given":"Nayara Luiza","family":"Henriques","sequence":"additional","affiliation":[{"name":"Universidade Federal de Minas Gerais,  Brazil"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8076-8276","authenticated-orcid":false,"given":"S\u00e9rgio","family":"Deodato","sequence":"additional","affiliation":[{"name":"Universidade Cat\u00f3lica Portuguesa,  Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8170-7523","authenticated-orcid":false,"given":"Elys\u00e2ngela Dittz","family":"Duarte","sequence":"additional","affiliation":[{"name":"Universidade Federal de Minas Gerais,  Brazil"}]}],"member":"530","published-online":{"date-parts":[[2024]]},"reference":[{"issue":"2","key":"ref1","first-page":"e20180742","article-title":"Meanings assigned by families about children\u2019s chronic disease diagnosis","volume":"73","author":"Xavier DM","year":"2020","journal-title":"Br J 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What counts as quality practice in (reflexive) thematic analysis?","volume":"18","author":"Braun V","year":"2021","journal-title":"Qual Res Psychol"},{"issue":"4","key":"ref16","doi-asserted-by":"crossref","first-page":"284","DOI":"10.1037\/1040-3590.6.4.284","article-title":"Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology","volume":"6","author":"Cicchetti DV","year":"1994","journal-title":"Psychol Assess"},{"key":"ref17","series-title":"Di\u00e1rio Oficial da Uni\u00e3o; Bras\u00edlia","volume-title":"Resolu\u00e7\u00e3o n\u00ba 466, de 12 de dezembro de 2012. Aprova diretrizes e normas regulamentadoras de pesquisas envolvendo seres humanos","year":"2013"},{"key":"ref18","series-title":"Di\u00e1rio Oficial da Uni\u00e3o; Bras\u00edlia; 3 abr","volume-title":"Resolu\u00e7\u00e3o n\u00ba 580, de 22 de mar\u00e7o de 2018. Disp\u00f5e sobre as normas aplic\u00e1veis a pesquisas em Ci\u00eancias Humanas e Sociais","year":"2018"},{"key":"ref19","first-page":"e20178","article-title":"Analysis of the concept of guilt: from conceptual divergence to its implications for nursing research","volume":"6","author":"Reis H","year":"2022","journal-title":"Rev Enferm Ref"},{"key":"ref20","doi-asserted-by":"crossref","first-page":"e20210182","DOI":"10.1590\/1983-1447.2022.20210182.en","article-title":"Nurse \u2018s performance in the hospital discharge process of children with chronic disease","volume":"43","author":"Ramalho ELR","year":"2022","journal-title":"Rev Ga\u00facha Enferm"},{"key":"ref21","doi-asserted-by":"crossref","first-page":"e33034","DOI":"10.1590\/s0103-7331202333034","article-title":"Vulnerabilidades vivenciadas por familiares\/ cuidadores de crian\u00e7as com condi\u00e7\u00e3o cr\u00f4nica","volume":"33","author":"Milbrath VM","year":"2023","journal-title":"Physis"},{"key":"ref22","doi-asserted-by":"crossref","first-page":"e20190188","DOI":"10.1590\/1980-265x-tce-2019-0188","article-title":"Family appraisal of the Down Syndrome diagnosis","volume":"29","author":"Schettini DLC","year":"2020","journal-title":"Texto Contexto Enferm"},{"issue":"5","key":"ref23","doi-asserted-by":"crossref","first-page":"1144","DOI":"10.1111\/hex.13092","article-title":"The challenges of caring for children who require complex medical care at home: \u2018The go between for everyone is the parent and as the parent that\u2019s an awful lot of responsibility\u2019","volume":"23","author":"Page BF","year":"2020","journal-title":"Health Expect"},{"issue":"Spec","key":"ref24","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1590\/S0080-623420160000300012","article-title":"The family experience of care in chronic situation","volume":"50","author":"Bellato R","year":"2016","journal-title":"Rev Esc Enferm USP"},{"issue":"1","key":"ref25","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1177\/1074840720975167","article-title":"Measurement of Family Management in families of individuals with Down Syndrome: a cross-cultural investigation","volume":"27","author":"van Riper M","year":"2021","journal-title":"J Fam Nurs"},{"issue":"2","key":"ref26","doi-asserted-by":"crossref","first-page":"324","DOI":"10.1111\/bjhp.12409","article-title":"From \u2018neurotic\u2019 to \u2018managing\u2019 mother: the \u2018medical career\u2019 experienced by mothers of a child diagnosed with Juvenile Idiopathic Arthritis","volume":"25","author":"Waite-Jones JM","year":"2020","journal-title":"Br J Health Psychol"},{"issue":"2","key":"ref27","first-page":"1","article-title":"Family management styles of chronic childhood conditions: the caregivers\u2019 perspectives","volume":"6","author":"Pinto MG","year":"2023","journal-title":"Rev Enferm Ref"},{"issue":"3","key":"ref28","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1177\/1367493517753712","article-title":"Family management affecting transition readiness and quality of life of Chinese children and young people with chronic diseases","volume":"22","author":"Sheng N","year":"2018","journal-title":"J Child Health Care"}],"container-title":["Revista da Escola de Enfermagem da USP"],"original-title":["Situa\u00e7\u00e3o de cuidar de uma crian\u00e7a com condi\u00e7\u00e3o cr\u00f4nica pelas fam\u00edlias: estudo de m\u00e9todos mistos"],"link":[{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_pdf&pid=S0080-62342024000100406&tlng=en","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,3,12]],"date-time":"2024-03-12T14:01:48Z","timestamp":1710252108000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_arttext&pid=S0080-62342024000100406&tlng=en"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024]]},"references-count":28,"alternative-id":["S0080-62342024000100406"],"URL":"https:\/\/doi.org\/10.1590\/1980-220x-reeusp-2023-0304en","relation":{"is-translation-of":[{"id-type":"doi","id":"10.1590\/1980-220x-reeusp-2023-0304pt","asserted-by":"subject"},{"id-type":"doi","id":"10.1590\/1980-220x-reeusp-2023-0304pt","asserted-by":"object"}]},"ISSN":["1980-220X","0080-6234"],"issn-type":[{"value":"1980-220X","type":"electronic"},{"value":"0080-6234","type":"print"}],"subject":[],"published":{"date-parts":[[2024]]},"article-number":"e20230304"}}