{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,18]],"date-time":"2026-03-18T00:00:41Z","timestamp":1773792041190,"version":"3.50.1"},"reference-count":31,"publisher":"FapUNIFESP (SciELO)","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"am","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rev. esc. enferm. USP"],"abstract":"<jats:p>ABSTRACT  Objective: To examine and synthesize the evidence of experiences and perspectives on the specific context of informal post-care and the existing support network.  Method: This is a qualitative systematic review with metasynthesis, according to the framework of the JBI, carried out in the CINAHL, LILACS, MEDLINE, BVS and PsycINFO databases, with no time limit. The articles were evaluated using the JBI Qualitative Data Extraction Tool. A total of 1,236 articles was identified, of which 18 were selected and 7 were analyzed. The level of evidence found was moderate.  Results: The experiences and perspectives of the informal post-caregiver reveal the need for support, namely: in personal development - attribution of meaning, in self-care perspectives and in identity reconstruction; in managing the impact of the legacy of caring - discontinuity of support in the trajectory of caring, financial vulnerability, and the impact on mental health; formal and informal resources for the future - projection of the future, structured services and family and community support.  Conclusion: Post-caregivers\u2019 perception of their support network is that their individual and interpersonal needs are not identified, and that formal and informal services are not articulated.<\/jats:p>","DOI":"10.1590\/1980-220x-reeusp-2024-0047en","type":"journal-article","created":{"date-parts":[[2024,11,8]],"date-time":"2024-11-08T05:36:00Z","timestamp":1731044160000},"source":"Crossref","is-referenced-by-count":2,"title":["Post-informal caregiver\u2019s perspectives and experiences of the support network: a systematic literature review and meta-synthesis"],"prefix":"10.1590","volume":"58","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7969-8242","authenticated-orcid":false,"given":"Catarina In\u00eas Costa","family":"Afonso","sequence":"first","affiliation":[{"name":"Instituto Polit\u00e9cnico de Santar\u00e9m,  Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0721-3343","authenticated-orcid":false,"given":"Ana Cristina Spinola","family":"Madeira","sequence":"additional","affiliation":[{"name":"Instituto Polit\u00e9cnico de Santar\u00e9m,  Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3440-4244","authenticated-orcid":false,"given":"Susana Pinto Leite Vasconcelos Teixeira de","family":"Magalh\u00e3es","sequence":"additional","affiliation":[{"name":"Universidade do Porto,  Portugal"}]}],"member":"530","published-online":{"date-parts":[[2024]]},"reference":[{"key":"ref1","series-title":"\u00cdndice de Envelhecimento.","year":"2023"},{"key":"ref2","series-title":"Caregiver Statistics: Demographics [Internet].","year":"2010"},{"key":"ref3","series-title":"Reconstru\u00e7\u00e3o da vida quotidiana: experi\u00eancia vivida do p\u00f3s-cuidador familiar.","author":"Afonso C","year":"2022"},{"key":"ref4","series-title":"Geriatr Nurs","first-page":"288","volume-title":"Chaos and uncertainty: the post-caregiving transition","volume":"32","author":"Ume EP","year":"2010"},{"issue":"1","key":"ref5","first-page":"20","article-title":"Bereavement after caregiving","volume":"63","author":"Schulz R","year":"2008","journal-title":"Geriatrics"},{"issue":"20","key":"ref6","doi-asserted-by":"crossref","first-page":"1936","DOI":"10.1056\/NEJMsa035373","article-title":"End-of-life care and the effects of bereavement on family caregivers of persons with dementia","volume":"349","author":"Schulz R","year":"2003","journal-title":"N Engl J Med"},{"issue":"4","key":"ref7","doi-asserted-by":"crossref","first-page":"422","DOI":"10.1177\/002214650404500405","article-title":"When caregiving ends: the course of depressive symptoms after bereavement","volume":"45","author":"Aneshensel CS","year":"2004","journal-title":"J Health Soc Behav"},{"issue":"6","key":"ref8","doi-asserted-by":"crossref","first-page":"817","DOI":"10.1016\/j.jpainsymman.2013.01.005","article-title":"Transitioning from caregiving to widowhood","volume":"46","author":"DiGiacomo M","year":"2013","journal-title":"J Pain Symptom Manage"},{"issue":"6","key":"ref9","doi-asserted-by":"crossref","first-page":"636","DOI":"10.1111\/j.1365-2524.2011.01005.x","article-title":"\u2018Doubly deprived\u2019: a post-death qualitative study of primary carers of people who died in Western Australia","volume":"19","author":"Keesing S","year":"2011","journal-title":"Health Soc Care Community"},{"issue":"6","key":"ref10","doi-asserted-by":"crossref","first-page":"537","DOI":"10.1080\/07481180701356886","article-title":"The (re)construction of self after the death of a partner to hiv\/aids","volume":"31","author":"Cadell S","year":"2007","journal-title":"Death Stud"},{"key":"ref11","series-title":"Rev. Enferm","first-page":"399","volume-title":"O familiar cuidador face \u00e0 proximidade da morte do doente oncol\u00f3gico em fim de vida","volume":"5","author":"Correia I","year":"2011"},{"issue":"2","key":"ref12","doi-asserted-by":"crossref","first-page":"97","DOI":"10.1177\/153331750101600213","article-title":"Comparing the well-being of post-caregivers and noncaregivers","volume":"16","author":"Rubio DM","year":"2001","journal-title":"Am J Alzheimers Dis Other Demen"},{"key":"ref13","series-title":"Enfermagem Ci\u00eancia Humana e Cuidar: uma teoria de enfermagem.","author":"Watson J","year":"2002"},{"key":"ref14","series-title":"JBI Manual for Evidence Synthesis.","volume-title":"Systematic reviews of qualitative evidence. In:","author":"Lockwood C","year":"2024"},{"key":"ref15","series-title":"JBI Manual for Evidence Synthesis","author":"Aromataris E","year":"2024"},{"key":"ref16","series-title":"Pr\u00e1tica Baseada em Evid\u00eancia: Experi\u00eancia dos cursos conducentes a microcredenciais do IPSantar\u00e9m-ESSS.","first-page":"51","volume-title":"Perspetivas e experi\u00eancias do p\u00f3s-cuidador informal sobre a sua rede de suporte: um protocolo de revis\u00e3o sistem\u00e1tica da literatura com meta-s\u00edntese In","author":"Afonso C","year":"2023"},{"issue":"71","key":"ref17","doi-asserted-by":"crossref","first-page":"n71","DOI":"10.1136\/bmj.n71","article-title":"The PRISMA 2020 statement: an updated guideline for reporting systematic reviews","volume":"372","author":"Page MJ","year":"2021","journal-title":"BMJ"},{"issue":"Suppl 2","key":"ref18","doi-asserted-by":"crossref","first-page":"e20220550","DOI":"10.1590\/0034-7167-2022-0550","article-title":"Nursing experiences in specialized services in child and adolescent mental health: a systematic review of qualitative studies","volume":"76","author":"Luz PO","year":"2023","journal-title":"Rev Bras Enferm"},{"issue":"2","key":"ref19","doi-asserted-by":"crossref","first-page":"455","DOI":"10.1177\/104990919901600207","article-title":"A qualitative study of self-transcendence in caregivers of terminally ill patients","volume":"16","author":"Enyert G","year":"1999","journal-title":"Am J Hosp Palliat Care"},{"issue":"3","key":"ref20","doi-asserted-by":"crossref","first-page":"338","DOI":"10.1016\/j.socscimed.2010.10.010","article-title":"The influence of culture on home-based family caregiving at end-of-life: a case study of Dutch reformed family care givers in Ontario, Canada","volume":"72","author":"Donovan R","year":"2011","journal-title":"Soc Sci Med"},{"issue":"4","key":"ref21","doi-asserted-by":"crossref","first-page":"507","DOI":"10.1177\/1473325012442439","article-title":"Female caregivers\u2019 plans for late life","volume":"12","author":"Pope ND","year":"2013","journal-title":"Qual Soc Work: Res Pract"},{"issue":"8","key":"ref22","doi-asserted-by":"crossref","first-page":"1029","DOI":"10.1080\/13607863.2014.908456","article-title":"Remaining connected despite separation - former family caregivers\u2019 experiences of aspects that facilitate and hinder the process of relinquishing the care of a person with dementia to a nursing home","volume":"18","author":"Johansson A","year":"2014","journal-title":"Aging Ment Health"},{"issue":"August","key":"ref23","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1016\/j.jaging.2016.05.002","article-title":"Care, coping and identity: older men\u2019s experiences of spousal care-giving","volume":"38","author":"Milligan C","year":"2016","journal-title":"J Aging Stud"},{"issue":"8","key":"ref24","doi-asserted-by":"crossref","first-page":"603","DOI":"10.1177\/0193945919882727","article-title":"Spousal dementia caregiving to widowhood: perceptions of older urban and rural widows","volume":"42","author":"Saunders MM","year":"2020","journal-title":"West J Nurs Res"},{"issue":"4","key":"ref25","doi-asserted-by":"crossref","first-page":"346","DOI":"10.1097\/NJH.0000000000000763","article-title":"\u201cI Feel All Alone Out Here\u201d: analysis of audio diaries of bereaved hospice family caregivers during the COVID-19 pandemic","volume":"23","author":"Tay DL","year":"2021","journal-title":"J Hosp Palliat Nurs"},{"issue":"4","key":"ref26","doi-asserted-by":"crossref","first-page":"1631","DOI":"10.3233\/JPD-191884","article-title":"\u201cHow long can i carry on?\u201d The need for palliative care in Parkinson\u2019s disease: a qualitative study from the perspective of bereaved family caregivers","volume":"10","author":"Lennaerts-Kats H","year":"2020","journal-title":"J Parkinsons Dis"},{"issue":"2","key":"ref27","doi-asserted-by":"crossref","first-page":"250","DOI":"10.1037\/0882-7974.18.2.250","article-title":"Differences between caregivers and non-caregivers in psychological health and physical health: A meta-analysis","volume":"18","author":"Pinquart M","year":"2003","journal-title":"Psychol Aging"},{"issue":"2","key":"ref28","first-page":"e87","article-title":"When caregiving ends: the experiences of former family caregivers of people with dementia","volume":"58","author":"Corey KL","year":"2018","journal-title":"Gerontologist"},{"issue":"2","key":"ref29","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1080\/15267431.2021.1889554","article-title":"\u201cI Am a Caregiver\u201d: Sense-making and Identity Construction through Online Caregiving Narratives","volume":"21","author":"Cooper A","year":"2021","journal-title":"J Fam Commun"},{"issue":"6","key":"ref30","doi-asserted-by":"crossref","first-page":"497","DOI":"10.1097\/YCO.0000000000000205","article-title":"Sleep in caregivers: what we know and what we need to learn","volume":"28","author":"McCurry SM","year":"2015","journal-title":"Curr Opin Psychiatry"},{"issue":"2","key":"ref31","doi-asserted-by":"crossref","first-page":"204","DOI":"10.1080\/14461242.2020.1787187","article-title":"Care to sleep? Daily caregiving and sleep problems in an ageing European population","volume":"30","author":"Straat V","year":"2020","journal-title":"Health Sociol Rev"}],"container-title":["Revista da Escola de Enfermagem da USP"],"original-title":["Perspectivas e experi\u00eancias do p\u00f3s-cuidador informal da rede de suporte: revis\u00e3o sistem\u00e1tica da literatura metass\u00edntese"],"link":[{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_pdf&pid=S0080-62342024000100815&tlng=en","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,11,8]],"date-time":"2024-11-08T05:36:08Z","timestamp":1731044168000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_arttext&pid=S0080-62342024000100815&tlng=en"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024]]},"references-count":31,"alternative-id":["S0080-62342024000100815"],"URL":"https:\/\/doi.org\/10.1590\/1980-220x-reeusp-2024-0047en","relation":{"is-translation-of":[{"id-type":"doi","id":"10.1590\/1980-220x-reeusp-2024-0047pt","asserted-by":"subject"},{"id-type":"doi","id":"10.1590\/1980-220x-reeusp-2024-0047pt","asserted-by":"object"}]},"ISSN":["1980-220X","0080-6234"],"issn-type":[{"value":"1980-220X","type":"electronic"},{"value":"0080-6234","type":"print"}],"subject":[],"published":{"date-parts":[[2024]]},"article-number":"e20240047"}}