{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T22:54:32Z","timestamp":1772232872767,"version":"3.50.1"},"reference-count":26,"publisher":"FapUNIFESP (SciELO)","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"am","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rev. esc. enferm. USP"],"abstract":"<jats:p>ABSTRACT  Objective: To develop a nursing intervention model for adolescents and parents experiencing parental cancer.  Method: Multimethod research, which integrated five studies: a scoping review and four qualitative studies. Considering the results of these studies, a nursing intervention model was constructed based on two theoretical frameworks, such as the A Model of Children\u2019s Adjustment to Parental Cancer, for adolescents, and Neuman Systems Model, for parents, and on a semantic framework, such as Nursing Ontology.  Results: The model is aimed at three target audiences: individual \u2013 parental figure with cancer; individual \u2013 adolescent; and family \u2013 parental figure with cancer, second parental figure and adolescent. The model is based on health literacy and includes four topics that address central topics in the experience of parental cancer: \u201cThe elephant in the room\u201d; \u201cEverything changes in us\u201d; \u201cLife goes on\u201d; and \u201cWith the present, we plan the future\u201d.  Conclusion: The proposed model is assumed as a health promotion strategy that empowers nurses for a family-centered intervention, in order to minimize the impact of parental cancer.<\/jats:p>","DOI":"10.1590\/1980-220x-reeusp-2024-0184en","type":"journal-article","created":{"date-parts":[[2025,1,13]],"date-time":"2025-01-13T06:25:16Z","timestamp":1736749516000},"source":"Crossref","is-referenced-by-count":0,"title":["Adolescents and parents experiencing parental cancer: construction of a nursing intervention model"],"prefix":"10.1590","volume":"58","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6390-5742","authenticated-orcid":false,"given":"Ana Filipa Domingues","family":"Sousa","sequence":"first","affiliation":[{"name":"Universidade do Porto,  Portugal; Instituto Portugu\u00eas de Oncologia de Coimbra,  Portugal; Escola Superior de Enfermagem de Coimbra,  Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4695-0832","authenticated-orcid":false,"given":"Paula Cristina Moreira Mesquita de","family":"Sousa","sequence":"additional","affiliation":[{"name":"Escola Superior de Enfermagem do Porto,  Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7948-9317","authenticated-orcid":false,"given":"Maria Margarida da Silva Reis dos Santos","family":"Ferreira","sequence":"additional","affiliation":[{"name":"Universidade do Porto,  Portugal; Escola Superior de Enfermagem do Porto,  Portugal; Centro de Investiga\u00e7\u00e3o em Tecnologias e Servi\u00e7os de Sa\u00fade,  Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1505-5496","authenticated-orcid":false,"given":"Maria de Lurdes Lopes de Freitas","family":"Lomba","sequence":"additional","affiliation":[{"name":"Escola Superior de Enfermagem de Coimbra,  Portugal"}]}],"member":"530","published-online":{"date-parts":[[2024]]},"reference":[{"issue":"10","key":"ref1","doi-asserted-by":"crossref","first-page":"656","DOI":"10.1038\/s41571-022-00672-8","article-title":"Is early-onset cancer an emerging global epidemic? Current evidence and future implications.","volume":"19","author":"Ugai T","year":"2022","journal-title":"Nat Rev Clin Oncol."},{"issue":"1","key":"ref2","doi-asserted-by":"crossref","first-page":"145","DOI":"10.1007\/s00520-021-06379-3","article-title":"Illness unpredictability and psychosocial adjustment of adolescent and young adults impacted by parental cancer: the mediating role of unmet needs.","volume":"30","author":"Landi G","year":"2022","journal-title":"Support Care Cancer."},{"issue":"1","key":"ref3","doi-asserted-by":"crossref","first-page":"171","DOI":"10.3390\/children10010171","article-title":"The psychosocial effect of parental cancer: qualitative interviews with patients\u2019 dependent children.","volume":"10","author":"Alexander ES","year":"2023","journal-title":"Children."},{"issue":"5","key":"ref4","doi-asserted-by":"crossref","first-page":"362","DOI":"10.1097\/01.NCC.0000290817.37442.e6","article-title":"Children\u2019s adjustment to parental cancer: a theoretical model development.","volume":"30","author":"Su Y","year":"2007","journal-title":"Cancer Nurs."},{"issue":"1","key":"ref5","doi-asserted-by":"crossref","first-page":"622","DOI":"10.1186\/s13063-021-05577-y","article-title":"Comprehensive support for families with parental cancer (Family-SCOUT), evaluation of a complex intervention: study protocol for a non-randomized controlled trial.","volume":"22","author":"Dohmen M","year":"2021","journal-title":"Trials."},{"issue":"3","key":"ref6","doi-asserted-by":"crossref","first-page":"910","DOI":"10.3390\/cancers15030910","article-title":"Maternal cancer and perception of child psychological adjustment: the role of mother\u2019s anxiety, depression, and parenting stress.","volume":"15","author":"Babore A","year":"2023","journal-title":"Cancers."},{"issue":"4","key":"ref7","doi-asserted-by":"crossref","first-page":"371","DOI":"10.1177\/0743558420985446","article-title":"Adolescent experience with parental cancer and involvement with medical professionals: a heuristic phenomenological inquiry.","volume":"36","author":"Kazlauskaite V","year":"2021","journal-title":"J Adolesc Res."},{"issue":"11","key":"ref8","first-page":"774","article-title":"Child adjustment to parental cancer: a latent profile analysis.","volume":"40","author":"Egberts MR","year":"2021","journal-title":"Health Psychol Off J Div Health Psychol Am Psychol Assoc."},{"key":"ref9","doi-asserted-by":"crossref","first-page":"bmjspcare-2021-003094","DOI":"10.1136\/bmjspcare-2021-003094","article-title":"Parental terminal cancer and dependent children: a systematic review.","author":"Wray A","year":"2022","journal-title":"BMJ Support Palliat Care."},{"issue":"2","key":"ref10","doi-asserted-by":"crossref","first-page":"148","DOI":"10.1097\/NCC.0000000000000960","article-title":"The fuelbox \u201cyoung next of kin\u201d: a mixed-methods study on the development and piloting of a communication tool for adolescents coping with parental cancer or death.","volume":"45","author":"Hauken MA","year":"2022","journal-title":"Cancer Nurs."},{"issue":"9","key":"ref11","doi-asserted-by":"crossref","first-page":"1507","DOI":"10.3390\/children10091507","article-title":"A conceptual model depicting how children are affected by parental cancer: a constructivist grounded theory approach.","volume":"10","author":"Alexander ES","year":"2023","journal-title":"Children."},{"issue":"3","key":"ref12","doi-asserted-by":"crossref","first-page":"1536","DOI":"10.1002\/nop2.1187","article-title":"Children and adolescents\u2019 preferences for support when living with a dying parent: an integrative review.","volume":"9","author":"Bergersen EB","year":"2022","journal-title":"Nurs Open."},{"issue":"12","key":"ref13","doi-asserted-by":"crossref","first-page":"2101","DOI":"10.1002\/pon.5475","article-title":"Supporting parents impacted by cancer: development of an informational booklet for parents with cancer who have adolescent and young adult children.","volume":"29","author":"Konings S","year":"2020","journal-title":"Psychooncology."},{"issue":"1","key":"ref14","first-page":"1","article-title":"Nurses\u2019 realisation of an inadequate toolbox for approaching adolescents with a parent suffering from cancer: a constructivist grounded theory study.","volume":"43","author":"Tafjord T","year":"2023","journal-title":"Nord J Nurs Res."},{"key":"ref15","doi-asserted-by":"crossref","first-page":"e20210359","DOI":"10.1590\/2177-9465-ean-2021-0359","article-title":"Intervention programs for children, adolescents, and parents experiencing parental cancer: a scoping review.","volume":"26","author":"Sousa AF","year":"2022","journal-title":"Esc Anna Nery."},{"key":"ref16","doi-asserted-by":"crossref","first-page":"e20220188","DOI":"10.1590\/1980-220x-reeusp-2022-0188en","article-title":"A case study of an adolescent according to A Model of Children\u2019s Adjustment to Parental Cancer.","volume":"56","author":"Sousa AF","year":"2022","journal-title":"Rev Esc Enferm USP."},{"key":"ref17","doi-asserted-by":"crossref","first-page":"e20220201","DOI":"10.1590\/1980-265x-tce-2022-0201en","article-title":"Experiencing parental cancer: a case study with application of Neuman\u2019s Model.","volume":"31","author":"Sousa AF","year":"2023","journal-title":"Texto Contexto Enferm."},{"key":"ref18","series-title":"Nursing theorists and their work","first-page":"281","volume-title":"Betty Neuman: systems model","author":"Lawson T","year":"2017","edition":"9th ed."},{"key":"ref19","series-title":"Nursing theories and nursing practice [Internet].","first-page":"165","volume-title":"Betty Neuman\u2019s systems model","author":"Lowry L","year":"2015","edition":"4th ed."},{"key":"ref20","first-page":"e93714","article-title":"Adolescents experiencing parental cancer: a qualitative study.","volume":"29","author":"Sousa AF","year":"2024","journal-title":"Cogitare."},{"issue":"esp","key":"ref21","first-page":"175","article-title":"The experience of parental cancer from the parent\u2019s perspective: a qualitative study.","author":"Sousa A","year":"2023","journal-title":"Horiz Enferm."},{"key":"ref22","article-title":"Ontologia de Enfermagem [Internet].","year":"2021","journal-title":"Lisboa"},{"key":"ref23","article-title":"Aprovada terceira vers\u00e3o da Ontologia de Enfermagem [Internet].","year":"2024","journal-title":"Lisboa"},{"key":"ref24","article-title":"Plano de a\u00e7\u00e3o para a literacia em sa\u00fade Health literacy action plan 2019\u20132021 [Internet].","author":"Arriaga M","year":"2019","journal-title":"Lisboa: Dire\u00e7\u00e3o-Geral da Sa\u00fade;"},{"key":"ref25","doi-asserted-by":"crossref","first-page":"e3488","DOI":"10.1590\/1518-8345.5203.3488","article-title":"Indicators of good nursing practices for vulnerable groups in primary health care: a scoping review.","volume":"29","author":"Egry EY","year":"2021","journal-title":"Rev Lat Am Enfermagem."},{"key":"ref26","year":"2019"}],"container-title":["Revista da Escola de Enfermagem da USP"],"original-title":["Adolescentes e pais que vivenciam cancro parental: constru\u00e7\u00e3o de um modelo de interven\u00e7\u00e3o de enfermagem"],"link":[{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_pdf&pid=S0080-62342024000100469&tlng=en","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,1,13]],"date-time":"2025-01-13T06:25:24Z","timestamp":1736749524000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_arttext&pid=S0080-62342024000100469&tlng=en"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024]]},"references-count":26,"alternative-id":["S0080-62342024000100469"],"URL":"https:\/\/doi.org\/10.1590\/1980-220x-reeusp-2024-0184en","relation":{"is-translation-of":[{"id-type":"doi","id":"10.1590\/1980-220x-reeusp-2024-0184pt","asserted-by":"subject"},{"id-type":"doi","id":"10.1590\/1980-220x-reeusp-2024-0184pt","asserted-by":"object"}]},"ISSN":["1980-220X","0080-6234"],"issn-type":[{"value":"1980-220X","type":"electronic"},{"value":"0080-6234","type":"print"}],"subject":[],"published":{"date-parts":[[2024]]},"article-number":"e20240184"}}