{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2022,12,9]],"date-time":"2022-12-09T13:29:55Z","timestamp":1670592595971},"reference-count":21,"publisher":"FapUNIFESP (SciELO)","issue":"63","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Paid\u00e9ia (Ribeir\u00e3o Preto)"],"published-print":{"date-parts":[[2016,4]]},"abstract":"<jats:p>Abstract The construct of family integrity denotes that older persons' attainment of ego integrity is linked to family relationships. Family integrity is the positive outcome (overall satisfaction with life); disconnection (dissatisfaction) and alienation (estrangement) are the negative outcomes. This study focuses on elderly people who are primary caregivers of relatives with dementia, and examines their experience of events related to that role, which are perceived as being of influence on their sense of family integrity. The sample included 26 participants. Open-ended interviews were conducted. The interview transcripts were submitted to content analysis. The main findings suggest that caregivers who experience family integrity tend to embrace the new life demand associated with the caregiving role, while those tending towards disconnection struggle to maintain their pre-existing goals, and those experiencing alienation tend to feel helpless. Caring for a relative with dementia has an impact on multiple aspects of family life.<\/jats:p>","DOI":"10.1590\/1982-43272663201603","type":"journal-article","created":{"date-parts":[[2015,12,10]],"date-time":"2015-12-10T02:13:25Z","timestamp":1449713605000},"page":"15-23","source":"Crossref","is-referenced-by-count":6,"title":["Family Integrity Among Older Caregivers of Relatives With Dementia"],"prefix":"10.1590","volume":"26","author":[{"given":"Sara","family":"Guerra","sequence":"first","affiliation":[{"name":"Universidade de Aveiro,  Portugal"}]},{"given":"Daniela","family":"Figueiredo","sequence":"additional","affiliation":[{"name":"Universidade de Aveiro,  Portugal"}]},{"given":"Marta","family":"Patr\u00e3o","sequence":"additional","affiliation":[{"name":"Universidade de Aveiro,  Portugal"}]},{"given":"Liliana","family":"Sousa","sequence":"additional","affiliation":[{"name":"Universidade de Aveiro,  Portugal"}]}],"member":"530","reference":[{"issue":"4","key":"ref1","doi-asserted-by":"crossref","first-page":"490","DOI":"10.1080\/13607863.2010.543660","article-title":"Coping with the care giving role: Differences between primary and secondary caregivers of dependent elderly people","volume":"15","author":"Barbosa A","year":"2011","journal-title":"Aging & Mental Health"},{"key":"ref2","series-title":"Loving someone who has dementia","author":"Boss P","year":"2011"},{"issue":"4","key":"ref3","doi-asserted-by":"crossref","first-page":"484","DOI":"10.1093\/geront\/gnr014","article-title":"\"Learning to become a family caregiver\": Efficacy of an intervention program for caregivers following diagnosis of dementia in a relative","volume":"51","author":"Ducharme FC","year":"2011","journal-title":"The Geronto logist"},{"key":"ref4","series-title":"Childhood and society","author":"Erikson EH","year":"1950"},{"key":"ref5","series-title":"Families in later life: Emerging themes and challenges (pp. 117-134)","volume-title":"Reinventing family caregiving: A challenge to theory and practice","author":"Figueiredo D","year":"2009"},{"issue":"1","key":"ref6","doi-asserted-by":"crossref","first-page":"7","DOI":"10.1111\/j.1545-5300.2004.04301003.x","article-title":"The emergence of \"family integrity\" in later life","volume":"43","author":"King DA","year":"2004","journal-title":"Family Process"},{"issue":"2","key":"ref7","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1080\/07317115.2011.641708","article-title":"\"The hidden caregiver\": Kinship caregivers and lessons learned from dementia family care giving","volume":"35","author":"Lane GW","year":"2012","journal-title":"Clinical Gerontologist"},{"issue":"52","key":"ref8","first-page":"207","article-title":"Family integrity: Pathways of elderly poor persons","volume":"22","author":"Marques FD","year":"2012","journal-title":"Paid\u00e9ia (Ribeir\u00e3o Preto)"},{"issue":"5","key":"ref9","doi-asserted-by":"crossref","first-page":"S274","DOI":"10.1093\/geronb\/59.5.S274","article-title":"Gift wrapping ourselves: The final gift exchange","volume":"59","author":"Marx JL","year":"2004","journal-title":"Journals of Gerontology. Series B, Psychological Sciences and Social Sciences"},{"issue":"3","key":"ref10","article-title":"Sample size and saturation in PhD studies using qualitative interviews","volume":"11","author":"Mason M","year":"2010","journal-title":"Forum: Qualitative Social Research"},{"key":"ref11","series-title":"Handbook of bereavement research: Consequences, coping and care","first-page":"329","volume-title":"Meaning making in family bereavement: A family systems approach","author":"Nadeau JW","year":"2001"},{"issue":"3","key":"ref12","first-page":"635","article-title":"Bem estar psicol\u00f3gico: Compara\u00e7\u00e3o entre cuidadores de idosos com e sem dem\u00eancia [Psychological well-being: Comparison between caregivers of older adults with and without dementia]","volume":"15","author":"Pinto FNFR","year":"2014","journal-title":"Psicologia, Sa\u00fade & Doen\u00e7as"},{"key":"ref13","series-title":"Families in later life: Emerging themes and challenges","first-page":"1","volume-title":"New themes on ageing families","author":"Sousa L","year":"2009"},{"key":"ref14","series-title":"Families in later life: Emerging themes and challenges","first-page":"163","volume-title":"Constructing family integrity in later life","author":"Sousa L","year":"2009"},{"issue":"1","key":"ref15","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1007\/s10433-010-0139-3","article-title":"The family inheritance process: Motivations and patterns and interaction","volume":"7","author":"Sousa L","year":"2010","journal-title":"European Journal of Ageing"},{"key":"ref16","series-title":"Aging well: Surprising guideposts to a happier life from the landmark Harvard Study of adult development","author":"Vaillant GE","year":"2002"},{"issue":"6","key":"ref17","doi-asserted-by":"crossref","first-page":"946","DOI":"10.1037\/0033-2909.129.6.946","article-title":"Is caregiving hazardous to one's physical health? A meta-analysis","volume":"129","author":"Vitaliano PP","year":"2003","journal-title":"Psychological Bulletin"},{"issue":"1","key":"ref18","doi-asserted-by":"crossref","first-page":"151","DOI":"10.1891\/0198-8794.32.153","article-title":"Successful aging and family resilience","volume":"32","author":"Walsh F","year":"2012","journal-title":"Annual Review of Gerontology and Geriatrics"},{"key":"ref19","series-title":"The intimacy paradox: Personal authority in the family system","author":"Williamson DS","year":"1991"},{"key":"ref20","first-page":"1","article-title":"AIDS and thefamily: Families take care","volume":"2","year":"1994","journal-title":"World AIDS Day Newsletter"},{"issue":"3","key":"ref21","doi-asserted-by":"crossref","first-page":"297","DOI":"10.1111\/j.1545-5300.1984.00297.x","article-title":"The epigenesis of relational systems: A model for understanding family development","volume":"23","author":"Wynne LC","year":"1984","journal-title":"Family Process"}],"container-title":["Paid\u00e9ia (Ribeir\u00e3o Preto)"],"original-title":[],"link":[{"URL":"http:\/\/www.scielo.br\/pdf\/paideia\/v26n63\/1982-4327-paideia-26-63-0015.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2017,5,23]],"date-time":"2017-05-23T09:06:45Z","timestamp":1495530405000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.scielo.br\/scielo.php?script=sci_arttext&pid=S0103-863X2016000100015&lng=en&tlng=en"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,4]]},"references-count":21,"journal-issue":{"issue":"63","published-print":{"date-parts":[[2016,4]]}},"alternative-id":["S0103-863X2016000100015"],"URL":"https:\/\/doi.org\/10.1590\/1982-43272663201603","relation":{},"ISSN":["0103-863X"],"issn-type":[{"value":"0103-863X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,4]]}}}