{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T02:38:10Z","timestamp":1778899090243,"version":"3.51.4"},"reference-count":24,"publisher":"SAGE Publications","issue":"5","license":[{"start":{"date-parts":[[2012,9,1]],"date-time":"2012-09-01T00:00:00Z","timestamp":1346457600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2012,9]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Since 1997, common oral clefts in the Netherlands have been recorded in the national oral cleft registry using a unique descriptive recording system. This study validates data on the topographic-anatomical structure, morphology, and side of individual anomalies of the primary palate and secondary palate that form the oral cleft.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Validation study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>All 15 Dutch cleft palate teams reporting presurgery oral cleft patients to the national registry.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patients<\/jats:title>\n                    <jats:p>A random sample of 250 cases registered in the national database with oral clefts from 1997 through 2003; of these, 13 cases were excluded.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Outcome Measures<\/jats:title>\n                    <jats:p>By linking registry data with clinical data, we identified differential recording rates by comparing the prevalence, and we measured the degree of agreement by computing validity and reliability statistics.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The topographic-anatomical structures (lip, alveolus, and hard and soft palates) of the anomalies had near-perfect interdatabase agreement with a sensitivity of 88% to 99%. However, when analyzing the individual anomalies in detail (morphology and side), validity decreased and depended on morphological severity. This association was most evident for anomalies of the secondary palate. For example, sensitivity was higher for \u201ccomplete cleft hard palate\u201d (92%) than for \u201csubmucous cleft hard\/soft palate\u201d (69%).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Overall, the validity of Dutch registry data on oral clefts is good, supporting the feasibility of this unique recording system. However, when analyzing oral cleft data in detail, the quality appears to be related to anatomical location and morphological severity. This might have implications for etiologic research based on registry data and for guidelines on neonatal examination.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1597\/10-109","type":"journal-article","created":{"date-parts":[[2010,11,23]],"date-time":"2010-11-23T23:04:58Z","timestamp":1290553498000},"page":"609-617","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":15,"title":["Validation of the Dutch Registry of Common Oral Clefts: Quality of Recording Specific Oral Cleft Features"],"prefix":"10.1177","volume":"49","author":[{"given":"Anna M.","family":"Rozendaal","sequence":"first","affiliation":[{"name":"Research Unit Department of Plastic and Reconstructive Surgery, Erasmus Medical Center, University Medical Center Rotterdam, and Department of Orthodontics, Erasmus Medical Center\u2013Sophia Children's Hospital, University Medical Center Rotterdam, Rotterdam, the Netherlands."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Antonius J.M.","family":"Luijsterburg","sequence":"additional","affiliation":[{"name":"Research Unit Department of Plastic and Reconstructive Surgery, Erasmus Medical Center, University Medical Center Rotterdam, and Department of Orthodontics, Erasmus Medical Center\u2013Sophia Children's Hospital, University Medical Center Rotterdam, Rotterdam, the Netherlands."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ashna D.","family":"Mohangoo","sequence":"additional","affiliation":[{"name":"Department of Prevention and Care, Section of Maternal and Child Health, Netherlands Organisation for Applied Scientific Research (TNO), Quality of Life, Leiden, the Netherlands."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Edwin M.","family":"Ongkosuwito","sequence":"additional","affiliation":[{"name":"Department of Orthodontics, and Member, Cleft Palate Team and Craniofacial Team, Erasmus Medical Center\u2013Sophia Children's Hospital, University Medical Center Rotterdam, Rotterdam, the Netherlands."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Esther","family":"De Vries","sequence":"additional","affiliation":[{"name":"Department of Public Health, Erasmus Medical Center, University Medical Center Rotterdam, Rotterdam, the Netherlands."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christl","family":"Vermeij-Keers","sequence":"additional","affiliation":[{"name":"Research Unit Department of Plastic and Reconstructive Surgery, Erasmus Medical Center, University Medical Center Rotterdam, and Department of Orthodontics, Erasmus Medical Center\u2013Sophia Children's Hospital, University Medical Center Rotterdam, Rotterdam, the Netherlands."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2012,9,1]]},"reference":[{"key":"bibr1-10-109","doi-asserted-by":"publisher","DOI":"10.1080\/00016340902934696"},{"key":"bibr2-10-109","volume-title":"Aangeboren afwijkingen in Nederland 1996\u20132003: gebaseerd op de landelijke verloskunde en neonatologie registraties.","author":"Anthony S.","year":"2005"},{"key":"bibr3-10-109","doi-asserted-by":"publisher","DOI":"10.1136\/fn.86.3.F210"},{"key":"bibr4-10-109","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.38300.665301.3A"},{"key":"bibr5-10-109","doi-asserted-by":"publisher","DOI":"10.1093\/ortho.27.4.319"},{"key":"bibr6-10-109","unstructured":"EUROCAT Northern Netherlands. Prevalence of congenital malformations in the Northern Netherlands 1981\u20132007. Available at http:\/\/www.rug.nl\/umcg\/faculteit\/disciplinegroepen\/medischegenetica\/eurocat\/professionals\/tabellen. Accessed February 24, 2010."},{"key":"bibr7-10-109","doi-asserted-by":"publisher","DOI":"10.1016\/0895-4356(90)90158-L"},{"key":"bibr8-10-109","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2005.077958"},{"key":"bibr9-10-109","doi-asserted-by":"publisher","DOI":"10.1016\/S0895-4356(99)00188-2"},{"key":"bibr10-10-109","volume-title":"Annual report 2007, with data for 2005.","author":"International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR).","year":"2007"},{"key":"bibr11-10-109","doi-asserted-by":"publisher","DOI":"10.1111\/j.1753-4887.2006.tb00211.x"},{"key":"bibr12-10-109","doi-asserted-by":"publisher","DOI":"10.1080\/08037050701645090"},{"key":"bibr13-10-109","doi-asserted-by":"publisher","DOI":"10.2307\/2529310"},{"key":"bibr14-10-109","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.327.7417.716"},{"key":"bibr15-10-109","first-page":"243","volume-title":"Transactions, The 9th International Congress on Cleft Palate and Related Craniofacial Anomalies.","author":"Luijsterburg A.J.M.","year":"2001"},{"key":"bibr16-10-109","doi-asserted-by":"publisher","DOI":"10.1597\/08-150"},{"key":"bibr17-10-109","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(09)60695-4"},{"key":"bibr18-10-109","doi-asserted-by":"publisher","DOI":"10.1097\/01.mlr.0000132391.59713.0d"},{"key":"bibr19-10-109","doi-asserted-by":"publisher","DOI":"10.1597\/08-279"},{"key":"bibr20-10-109","first-page":"149","volume-title":"Craniofacial Malformations.","author":"Van der Meulen J.","year":"1990"},{"key":"bibr21-10-109","first-page":"27","volume-title":"Craniofacial Malformations.","author":"Vermeij-Keers C.","year":"1990"},{"key":"bibr22-10-109","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-140-3-200402030-00010"},{"key":"bibr23-10-109","first-page":"1","volume-title":"Global registry and database on craniofacial anomalies. Report of a WHO Registry Meeting on Craniofacial Anomalies.","author":"World Health Organization.","year":"2003"},{"key":"bibr24-10-109","unstructured":"World Health Organization. International statistical classification of diseases and related health problems, 10th revision. Version for 2007. Available at http:\/\/www.who.int\/classifications\/apps\/icd\/icd10online\/. 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