{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,7]],"date-time":"2026-07-07T03:55:04Z","timestamp":1783396504481,"version":"3.54.6"},"reference-count":46,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2013,3,1]],"date-time":"2013-03-01T00:00:00Z","timestamp":1362096000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2013,3]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Children's voices are being increasingly acknowledged in health care research. The aim of this study was to explore children's and young people's perspectives of being born with a cleft lip and\/or palate.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>The research took a qualitative approach that consisted of two interviews with each child, drawing on child-centered methodologies and techniques. The initial interview focused on children's general life stories, and these often encompassed a discussion about cleft lip and\/or palate. The follow-up interview explored specific aspects of the condition and related treatment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>The self-selected sample consisted of 17 children and young people (eight boys, nine girls) with cleft lip and\/or palate, aged 8 to 17 years, who received treatment at a dental hospital in the U.K.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Children's and young people's accounts identified a number of themes including how they became aware that they had been born with the condition, their views of the treatment pathway, and how it related to who they are.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study highlights the value of including young people's perspectives in oral health\u2013related research. It has allowed a deeper insight into cleft lip and palate and shows that young people can contribute their views and experiences about services which demonstrate that these could be incorporated into service evaluations.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1597\/10-193","type":"journal-article","created":{"date-parts":[[2012,5,13]],"date-time":"2012-05-13T18:34:50Z","timestamp":1336934090000},"page":"18-26","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":19,"title":["Children's and Adolescents\u2019 Perspectives on Cleft Lip and\/or Palate"],"prefix":"10.1177","volume":"50","author":[{"given":"Melanie J.","family":"Hall","sequence":"first","affiliation":[{"name":"University of Sheffield, Sheffield, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Barry J.","family":"Gibson","sequence":"additional","affiliation":[{"name":"University of Sheffield, Sheffield, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Allison","family":"James","sequence":"additional","affiliation":[{"name":"University of Sheffield, Sheffield, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helen D.","family":"Rodd","sequence":"additional","affiliation":[{"name":"University of Sheffield, Sheffield, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2013,3,1]]},"reference":[{"key":"bibr1-10-193","doi-asserted-by":"publisher","DOI":"10.1597\/02-158.1"},{"key":"bibr2-10-193","doi-asserted-by":"publisher","DOI":"10.1037\/0278-6133.10.4.252"},{"key":"bibr3-10-193","volume-title":"Management of Cleft Lip and Palate.","author":"Bradbury E.","year":"2001"},{"key":"bibr4-10-193","volume-title":"Management of Cleft Lip and Palate.","author":"Bradbury E.","year":"2001"},{"key":"bibr5-10-193","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep11339939"},{"key":"bibr6-10-193","doi-asserted-by":"publisher","DOI":"10.1038\/sj.bdj.4813640"},{"key":"bibr7-10-193","unstructured":"CLAPA. Regionalisation of cleft lip and palate services: has it worked? Available at http:\/\/www.clapa.com\/documents\/Full%20report%20final.pdf. Accessed February 2007."},{"key":"bibr8-10-193","volume-title":"Cleft Lip and\/or Palate: Report of a CSAG Committee, Chaired by Professor John Murray.","author":"CSAG Committee.","year":"1998"},{"key":"bibr9-10-193","unstructured":"Department of Health. National Service Framework for Children, Young People, and Maternity Services. 2004. Available at: http:\/\/webarchive.nationalarchives.gov.uk\/+\/www.dh.gov.uk\/en\/Publicationsandstatistics\/Publications\/PublicationsPolicyAndGuidance\/Browsable\/DH_4094329. 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