{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,25]],"date-time":"2026-06-25T23:11:11Z","timestamp":1782429071021,"version":"3.54.5"},"reference-count":46,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2013,7,1]],"date-time":"2013-07-01T00:00:00Z","timestamp":1372636800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2013,7]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To evaluate the hypothesis that children with craniosynostosis and their parents have differences in psychosocial outcomes, as compared with an unaffected control group.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Two studies were conducted, both which followed children born with and without craniosynostosis. Study 1 ascertained affected children from clinics, and study 2 ascertained affected children from a population-based study of birth defects.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Study 1 included 22 children with single-suture craniosynostosis and 18 controls, ages 4 to 5 years. Study 2 included 24 children with nonsyndromic craniosynostosis and 124 unaffected controls, ages 5 to 9 years.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main Outcome Measures<\/jats:title>\n                    <jats:p>Outcome measures included the Child Behavior Checklist, Social Competence Scale, Pediatric Quality of Life Inventory, and Parenting Stress Index.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We observed lower scores on measures of health-related quality of life in cases versus controls, with adjusted effect sizes ranging from \u22120.72 to \u22120.44 ( p &lt; .05) on summary measures. Small but statistically nonsignificant increases in behavioral problems were observed in cases versus controls, with no apparent differences in social competence or parenting stress.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Results provide preliminary evidence suggesting that children with nonsyndromic craniosynostosis may have elevated risk for psychosocial difficulties, particularly health-related quality of life. Continued follow-up through preadolescence and adolescence is warranted.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1597\/11-074","type":"journal-article","created":{"date-parts":[[2012,2,8]],"date-time":"2012-02-08T15:34:26Z","timestamp":1328715266000},"page":"406-413","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":52,"title":["Psychosocial Outcomes in Children with and without Non-Syndromic Craniosynostosis: Findings from Two Studies"],"prefix":"10.1177","volume":"50","author":[{"given":"Yona K.","family":"Cloonan","sequence":"first","affiliation":[{"name":"Department of Epidemiology, University of Pittsburgh Graduate School of Public Health, Pittsburgh, Pennsylvania."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brent","family":"Collett","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Behavioral Sciences, University of Washington, Department of Psychiatry and Behavioral Medicine, Seattle Children's Hospital, Seattle, Washington."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthew L.","family":"Speltz","sequence":"additional","affiliation":[{"name":"Department of Psychiatry and Behavioral Sciences, University of Washington, Department of Psychiatry and Behavioral Medicine, Seattle Children's Hospital, Seattle, Washington."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marlene","family":"Anderka","sequence":"additional","affiliation":[{"name":"Center for Birth Defects Research and Prevention, Massachusetts Department of Public Health, Bureau of Family Health and Nutrition, Boston, Massachusetts."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martha M.","family":"Werler","sequence":"additional","affiliation":[{"name":"Department of Epidemiology, Slone Epidemiology Center at Boston University, Boston, Massachusetts."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2013,7,1]]},"reference":[{"key":"bibr1-11-074","volume-title":"Parenting Stress Index Manual.","author":"Abidin R.","year":"1983"},{"key":"bibr2-11-074","volume-title":"Manual for Aseba Preschool Forms & Profiles.","author":"Achenbach T.M.","year":"2000"},{"key":"bibr3-11-074","volume-title":"Manual for Aseba School-Age Forms & Profiles.","author":"Achenbach T.M.","year":"2001"},{"key":"bibr4-11-074","doi-asserted-by":"publisher","DOI":"10.1097\/00006534-200207000-00002"},{"key":"bibr5-11-074","doi-asserted-by":"publisher","DOI":"10.3171\/jns.1995.83.3.0476"},{"key":"bibr6-11-074","doi-asserted-by":"publisher","DOI":"10.2307\/1131022"},{"key":"bibr7-11-074","doi-asserted-by":"publisher","DOI":"10.1097\/01.prs.0000172763.71043.b8"},{"key":"bibr8-11-074","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2003.035824"},{"key":"bibr9-11-074","doi-asserted-by":"publisher","DOI":"10.1055\/s-2003-44667"},{"key":"bibr10-11-074","doi-asserted-by":"publisher","DOI":"10.1097\/00006534-199809020-00002"},{"key":"bibr11-11-074","volume-title":"Statistical Power Analysis for the Behavioral Sciences","author":"Cohen J.","year":"1998","edition":"2"},{"key":"bibr12-11-074","doi-asserted-by":"publisher","DOI":"10.1097\/01.PRS.0000132854.14237.A8"},{"key":"bibr13-11-074","unstructured":"Conduct Problems Prevention Research Group. 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