{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T04:13:42Z","timestamp":1777522422587,"version":"3.51.4"},"reference-count":49,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2013,7,1]],"date-time":"2013-07-01T00:00:00Z","timestamp":1372636800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2013,7]]},"abstract":"<jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>The aim of this study was the initiation of systematic data collection so as to improve the capacity for outcome measurement after cleft repair. Also, a clinical audit was done for evaluation of the process and assessment of outcomes of cleft care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design and Setting<\/jats:title>\n                    <jats:p>A questionnaire-based survey and outcome assessment was carried out over a 1-year period from March 2008 to February 2009 at the combined outpatient cleft clinic of a tertiary care center in India.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patients and Participants<\/jats:title>\n                    <jats:p>Data collection (basic demographic and environmental information) was done twice a week throughout the year by students from the Department of Pediatric Dentistry, at the outpatient cleft clinic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 68 completed cleft lip and palate registry forms, from which all the information was available, were analyzed. There was a skewed sex ratio, with a higher preponderance of boys seeking treatment. Of affected males, 19.1% were between 2 and 5 years of age when they first reported to the cleft clinic. Surprisingly, no bilateral clefts of lip, unilateral cleft lip (right) and unilateral cleft lip and palate (right) were observed in girls. Oral health was poor in 74% of patients; among the dental referrals only 26% could be recruited for orthodontics with a reasonably good prognosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Poverty, illiteracy, and superstitions prevent an average patient from India from receiving multidisciplinary cleft care. This emphasizes the need to create systems that suit the needs of our target patients.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1597\/11-079","type":"journal-article","created":{"date-parts":[[2011,10,5]],"date-time":"2011-10-05T17:06:39Z","timestamp":1317834399000},"page":"473-480","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["Bridging the Gap: Addressing Challenges toward Improvement of Cleft Teamwork in a Tertiary Care Center in North India: A Pilot Study"],"prefix":"10.1177","volume":"50","author":[{"given":"Gayatri","family":"Moghe","sequence":"first","affiliation":[{"name":"Department of Periodontics, Panineeya Institute of Dental Sciences, Andhra Pradesh, India."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Simratvir","family":"Mauli","sequence":"additional","affiliation":[{"name":"Department of Pedodontics, Shaheed Kartar Singh Sarabha Dental College, Punjab, India."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Abi","family":"Thomas","sequence":"additional","affiliation":[{"name":"Department of Pedodontics, Christian Dental College, Punjab, India."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vijay A.E.","family":"Obed","sequence":"additional","affiliation":[{"name":"Department of Plastic and Microvascular Surgery, Christian Medical College, Punjab, India."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2013,7,1]]},"reference":[{"key":"bibr1-11-079","doi-asserted-by":"publisher","DOI":"10.4135\/9781848607910.n29"},{"key":"bibr2-11-079","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_1993_030_0548_cwclpa_2.3.co_2"},{"key":"bibr3-11-079","first-page":"85","volume-title":"Clinical Pediatric Endocrinology.","author":"Brook C.G.D.","year":"1995"},{"key":"bibr4-11-079","doi-asserted-by":"publisher","DOI":"10.1007\/3-540-30020-1_1"},{"key":"bibr5-11-079","first-page":"1","volume":"6","author":"Burdi A.R.","year":"1969","journal-title":"Cleft Palate J."},{"key":"bibr6-11-079","first-page":"5","volume":"2","author":"Butali A.","year":"2009","journal-title":"Pan Afr Med J."},{"key":"bibr7-11-079","volume-title":"Gender Inequality and Demographic Behaviour, India.","author":"Desai S.","year":"1994"},{"key":"bibr8-11-079","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-009-0451-8"},{"key":"bibr9-11-079","first-page":"3","volume-title":"Survey Nonresponse.","author":"Dillman D.A.","year":"2002"},{"key":"bibr10-11-079","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-1809.1965.tb00500.x"},{"key":"bibr11-11-079","doi-asserted-by":"publisher","DOI":"10.1023\/A:1006950532247"},{"key":"bibr12-11-079","doi-asserted-by":"publisher","DOI":"10.1055\/s-0039-1699407"},{"key":"bibr13-11-079","unstructured":"Government of India (GOI). The Pre-Natal Diagnostic Techniques (Regulation and Prevention of Misuse) Amendment Act, 2002. (No. 14 of 2003). Available at http:\/\/india.gov.in\/allimpfrms\/allacts\/2605.pdf Accessed 25 October, 2011."},{"key":"bibr14-11-079","doi-asserted-by":"publisher","DOI":"10.1093\/ejo\/cji019"},{"key":"bibr15-11-079","unstructured":"GrewalH. VermaM. Oral health status in rural child population. Promotional and interventional strategies (GOI-WHO Collaborative Program 06\u201307). Available at http:\/\/www.whoindia.org. Accessed October 13, 2011."},{"key":"bibr16-11-079","doi-asserted-by":"publisher","DOI":"10.4103\/0970-4388.31983"},{"issue":"2","key":"bibr17-11-079","first-page":"1","volume":"34","author":"Gundlach K.K.H.","year":"2006","journal-title":"J Craniomaxillofac Surg."},{"key":"bibr18-11-079","doi-asserted-by":"publisher","DOI":"10.1017\/S0022215106000454"},{"key":"bibr19-11-079","unstructured":"IIIPS National Family and Health Survey, India, 1992\u201393. Mumbai: International Institute for Population Sciences; 1995."},{"key":"bibr20-11-079","author":"Kapp-Simon K.A.","year":"1998","journal-title":"Behavior adjustment and competence of children with craniofacial conditions."},{"key":"bibr21-11-079","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.77.5.623"},{"key":"bibr22-11-079","doi-asserted-by":"publisher","DOI":"10.3346\/jkms.2002.17.1.49"},{"key":"bibr23-11-079","first-page":"3","volume":"43","author":"Kumar A.","year":"1999","journal-title":"Indian J Public Health."},{"key":"bibr24-11-079","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(10)60744-1"},{"key":"bibr25-11-079","author":"Long B.C.","year":"2004","journal-title":"Psychological adjustment and self-perception in children with nonsyndromic cleft lip and palate."},{"key":"bibr26-11-079","doi-asserted-by":"publisher","DOI":"10.1037\/0022-3514.85.6.1107"},{"key":"bibr27-11-079","first-page":"132","volume":"29","author":"Mark D.H.","year":"1997","journal-title":"Fam Med."},{"key":"bibr28-11-079","doi-asserted-by":"publisher","DOI":"10.1007\/3-540-30020-1_15"},{"key":"bibr29-11-079","first-page":"247","volume-title":"Women and Nutrition in India.","author":"Mathai S.M.","year":"1989"},{"key":"bibr30-11-079","doi-asserted-by":"publisher","DOI":"10.4103\/0970-0358.57182"},{"key":"bibr31-11-079","doi-asserted-by":"publisher","DOI":"10.1093\/ejo\/25.3.251"},{"key":"bibr32-11-079","doi-asserted-by":"crossref","first-page":"170","DOI":"10.1093\/oso\/9780195139068.003.0014","volume-title":"Cleft Lip and Palate: From Origin to Treatment.","author":"Munger R.G.","year":"2002"},{"key":"bibr33-11-079","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.1320130208"},{"key":"bibr34-11-079","doi-asserted-by":"publisher","DOI":"10.4103\/0970-0358.57199"},{"key":"bibr35-11-079","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(02)00073-4"},{"key":"bibr36-11-079","doi-asserted-by":"publisher","DOI":"10.1016\/B978-012373960-5.00527-X"},{"key":"bibr37-11-079","doi-asserted-by":"publisher","DOI":"10.1080\/09709274.2010.11906259"},{"key":"bibr38-11-079","first-page":"179","volume-title":"National Commission on Macroeconomics and Health: Background Papers\u2014Burden of Disease in India.","author":"Ramji S.","year":"2005"},{"key":"bibr39-11-079","doi-asserted-by":"publisher","DOI":"10.4103\/0970-0358.73443"},{"key":"bibr40-11-079","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(95)92778-6"},{"key":"bibr41-11-079","doi-asserted-by":"publisher","DOI":"10.4103\/0970-0358.57186"},{"key":"bibr42-11-079","first-page":"17","volume-title":"Women and Nutrition in India.","author":"Srinivasan K.","year":"1989"},{"key":"bibr43-11-079","first-page":"1","volume":"1","author":"Tandon S.L.","year":"2006","journal-title":"Int J Crim Justice Sci."},{"key":"bibr44-11-079","doi-asserted-by":"publisher","DOI":"10.1016\/S0301-0503(76)80013-6"},{"key":"bibr45-11-079","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1096-8628(19980113)75:2<126::AID-AJMG2>3.0.CO;2-R"},{"key":"bibr46-11-079","doi-asserted-by":"publisher","DOI":"10.1097\/00006534-195705000-00006"},{"key":"bibr47-11-079","first-page":"38","volume-title":"WHO Meeting on International Collaborative Research on Craniofacial Anomalies.","author":"World Health Organization (WHO).","year":"2001"},{"key":"bibr48-11-079","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-59745-004-1_19"},{"key":"bibr49-11-079","doi-asserted-by":"publisher","DOI":"10.1097\/00029330-200610020-00005"}],"container-title":["The Cleft Palate Craniofacial Journal"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1597\/11-079","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1597\/11-079","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1597\/11-079","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:17:31Z","timestamp":1777393051000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1597\/11-079"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,7]]},"references-count":49,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2013,7]]}},"alternative-id":["10.1597\/11-079"],"URL":"https:\/\/doi.org\/10.1597\/11-079","relation":{},"ISSN":["1055-6656","1545-1569"],"issn-type":[{"value":"1055-6656","type":"print"},{"value":"1545-1569","type":"electronic"}],"subject":[],"published":{"date-parts":[[2013,7]]}}}