{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T10:54:42Z","timestamp":1789728882912,"version":"4.0.1"},"reference-count":0,"publisher":"SAGE Publications","issue":"1_suppl","license":[{"start":{"date-parts":[[2012,1,1]],"date-time":"2012-01-01T00:00:00Z","timestamp":1325376000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2012,1]]},"abstract":"\n Background<\/jats:title>\n A multidisciplinary meeting was held from March 4 to 6, 2010, in Atlanta, Georgia, entitled \u201cCraniosynostosis: Developing Parameters for Diagnosis, Treatment, and Management.\u201d The goal of this meeting was to create parameters of care for individuals with craniosynostosis.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n Fifty-two conference attendees represented a broad range of expertise, including anesthesiology, craniofacial surgery, dentistry, genetics, hand surgery, neurosurgery, nursing, ophthalmology, oral and maxillofacial surgery, orthodontics, otolaryngology, pediatrics, psychology, public health, radiology, and speech-language pathology. These attendees also represented 16 professional societies and peer-reviewed journals. The current state of knowledge related to each discipline was reviewed. Based on areas of expertise, four breakout groups were created to reach a consensus and draft specialty-specific parameters of care based on the literature or, in the absence of literature, broad clinical experience. In an iterative manner, the specialty-specific draft recommendations were presented to all conference attendees. Participants discussed the recommendations in multidisciplinary groups to facilitate exchange and consensus across disciplines. After the conference, a pediatric intensivist and social worker reviewed the recommendations.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Consensus was reached among the 52 conference attendees and two post hoc reviewers. Longitudinal parameters of care were developed for the diagnosis, treatment, and management of craniosynostosis in each of the 18 specialty areas of care from prenatal evaluation to adulthood.<\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n To our knowledge, this is the first multidisciplinary effort to develop parameters of care for craniosynostosis. These parameters were designed to help facilitate the development of educational programs for the patient, families, and health-care professionals; stimulate the creation of a national database and registry to promote research, especially in the area of outcome studies; improve credentialing of interdisciplinary craniofacial clinical teams; and improve the availability of health insurance coverage for all individuals with craniosynostosis.<\/jats:p>\n <\/jats:sec>","DOI":"10.1597\/11-138","type":"journal-article","created":{"date-parts":[[2011,8,17]],"date-time":"2011-08-17T12:57:40Z","timestamp":1313585860000},"page":"1-24","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":117,"title":["Parameters of Care for Craniosynostosis"],"prefix":"10.1177","volume":"49","author":[{"given":"Joseph G.","family":"McCarthy","sequence":"first","affiliation":[{"name":"Department of Plastic Surgery, New York University Langone Medical Center, New York, New York."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephen M.","family":"Warren","sequence":"additional","affiliation":[{"name":"Department of Plastic Surgery, New York University Langone Medical Center, New York, New York."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph","family":"Bernstein","sequence":"additional","affiliation":[{"name":"Division of Pediatric Otolaryngology, New York Eye and Ear Infirmary, New York, New York."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Whitney","family":"Burnett","sequence":"additional","affiliation":[{"name":"National Foundation for Facial Reconstruction, New York, New York."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael L.","family":"Cunningham","sequence":"additional","affiliation":[{"name":"University of Washington, Medical Director, Seattle Children's Craniofacial Center, Seattle, Washington."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jane C.","family":"Edmond","sequence":"additional","affiliation":[{"name":"Departments of Ophthalmology and Pediatrics, Baylor College of Medicine, Houston, Texas."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alvaro A.","family":"Figueroa","sequence":"additional","affiliation":[{"name":"Rush Craniofacial Center, Rush University Medical Center, Chicago, Illinois."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathleen A.","family":"Kapp-Simon","sequence":"additional","affiliation":[{"name":"Department of Surgery, Northwestern University, Chicago, Illinois"},{"name":"Cleft-Craniofacial Team of Shriners Hospital for Children, Chicago, Illinois."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian I.","family":"Labow","sequence":"additional","affiliation":[{"name":"Harvard Medical School, Department of Plastic and Oral Surgery, Children's Hospital Boston, Boston, Massachusetts."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sally J.","family":"Peterson-Falzone","sequence":"additional","affiliation":[{"name":"University of California, San Francisco, California."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark R.","family":"Proctor","sequence":"additional","affiliation":[{"name":"Harvard Medical School, Department of Neurosurgery, Children's Hospital Boston, Boston, Massachusetts."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marcie S.","family":"Rubin","sequence":"additional","affiliation":[{"name":"National Foundation for Facial Reconstruction, New York, New York."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Raymond W.","family":"Sze","sequence":"additional","affiliation":[{"name":"Children's National Medical Center, Washington, D.C."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Terrance A.","family":"Yemen","sequence":"additional","affiliation":[{"name":"University of Virginia, Charlottesville, Virginia."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"other members of the Craniosynostosis Working Group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2012,1,1]]},"container-title":["The Cleft Palate Craniofacial 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