{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T03:20:13Z","timestamp":1787023213668,"version":"build-2736575974"},"reference-count":49,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2015,7,1]],"date-time":"2015-07-01T00:00:00Z","timestamp":1435708800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2015,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>One of the key challenges facing young adults with cleft lip and\/or palate is making decisions about starting a family, because there is an increased likelihood of their own child being diagnosed with cleft lip and\/or palate. Should this occur, a second key challenge is how to deal with their child's diagnosis and subsequent treatment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To explore the views, experiences and possible support needs of this unique group of parents in order to inform the services provided by nonspecialist Health Professionals, cleft teams, and genetic counselors.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Individual telephone interviews eliciting qualitative data.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Qualitative thematic analysis identified five themes. Accessing accurate information and appropriate support around heritability presented a significant challenge. Parents described feelings of responsibility and distress at their child's diagnosis, as well as a number of factors that had helped or hindered their adjustment. Parents also described ways in which their own experiences had impacted their parenting style and how becoming a parent had changed the way they felt about their own cleft.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Young adults' understanding of what it means to grow up with cleft lip and\/or palate may impact their decision to start a family and their experiences of having children. Possible methods of supporting prospective parents through this potentially difficult stage will be discussed.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1597\/13-314","type":"journal-article","created":{"date-parts":[[2014,7,24]],"date-time":"2014-07-24T14:43:20Z","timestamp":1406213000000},"page":"425-436","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":31,"title":["Starting a Family: The Experience of Parents with Cleft Lip and\/or Palate"],"prefix":"10.1177","volume":"52","author":[{"given":"Nicola Marie","family":"Stock","sequence":"first","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nichola","family":"Rumsey","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2015,7,1]]},"reference":[{"key":"bibr1-13-314","doi-asserted-by":"publisher","DOI":"10.1597\/1545-1569_1998_035_0052_clwowc_2.3.co_2"},{"key":"bibr2-13-314","volume-title":"Identifying factors and processes contributing to successful adjustment to disfiguring conditions: Final report.","author":"Appearance Research Collaboration.","year":"2009"},{"key":"bibr3-13-314","doi-asserted-by":"publisher","DOI":"10.1597\/08-075.1"},{"key":"bibr4-13-314","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"bibr5-13-314","volume-title":"Code of ethics and conduct. 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