{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,28]],"date-time":"2026-05-28T00:30:02Z","timestamp":1779928202417,"version":"3.53.1"},"reference-count":22,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2016,7,1]],"date-time":"2016-07-01T00:00:00Z","timestamp":1467331200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["The Cleft Palate Craniofacial Journal"],"published-print":{"date-parts":[[2016,7]]},"abstract":"\n Background<\/jats:title>\n Psychological adjustment to cleft lip\/palate is multifaceted and can fluctuate over time and across different situations. Consequently, a comprehensive understanding of adjustment is difficult to capture, and the challenge of achieving consensus among researchers and clinicians regarding key constructs and processes is considerable. Numerous measures have been used in research and clinical audit, resulting in conflicting findings and difficulties in evidencing the value of psychological intervention. The launch of the world's largest cleft lip\/palate cohort study has provided an opportunity to standardize data collection across the United Kingdom.<\/jats:p>\n <\/jats:sec>\n \n Objective<\/jats:title>\n To describe the collaborative process used to achieve consensus in the academic and clinical measurement of psychological adjustment to cleft lip\/palate.<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Extensive work based on existing literature and clinical experience has resulted in a conceptual framework comprising six domains of adjustment and corresponding risk\/protective factors that are measureable across key developmental time points. Driven by this framework, a core pack of standardized measures has been selected according to psychometric properties, clinical utility, and pragmatic considerations.<\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n To date, these measures have been implemented within a UK-wide longitudinal cohort study (at diagnosis, 18 months, 3 years, 5 years, and 8 years) and adopted into the national routine clinical audit protocol for cleft lip\/palate at age 5. Further data collection points will follow as the cohorts age. Over time, consistency in data collection will allow researchers to address some of the key unanswered questions in relation to psychological adjustment to cleft lip\/palate.<\/jats:p>\n <\/jats:sec>","DOI":"10.1597\/15-071","type":"journal-article","created":{"date-parts":[[2015,8,6]],"date-time":"2015-08-06T11:30:09Z","timestamp":1438860609000},"page":"421-426","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":34,"title":["Achieving Consensus in the Measurement of Psychological Adjustment to Cleft Lip and\/or Palate"],"prefix":"10.1177","volume":"53","author":[{"given":"Nicola Marie","family":"Stock","sequence":"first","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vanessa","family":"Hammond","sequence":"additional","affiliation":[{"name":"South Wales & South West Managed Clinical Network, Cleft Lip and Palate, Swansea, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tina","family":"Owen","sequence":"additional","affiliation":[{"name":"South Wales & South West Managed Clinical Network, Cleft Lip and Palate, Bristol, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James","family":"Kiff","sequence":"additional","affiliation":[{"name":"East of England Cleft Network, Cambridge, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angela","family":"Shanly","sequence":"additional","affiliation":[{"name":"Spires Cleft Centre, Oxford, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nichola","family":"Rumsey","sequence":"additional","affiliation":[{"name":"Centre for Appearance Research, University of the West of England, Bristol, United Kingdom."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2016,7,1]]},"reference":[{"key":"bibr1-15-071","volume-title":"Identifying factors and processes contributing to successful adjustment to disfiguring conditions.","author":"Appearance Research Collaboration.","year":"2009"},{"key":"bibr2-15-071","doi-asserted-by":"publisher","DOI":"10.2307\/2136404"},{"key":"bibr3-15-071","doi-asserted-by":"publisher","DOI":"10.1111\/j.1469-7610.1997.tb01545.x"},{"key":"bibr4-15-071","doi-asserted-by":"publisher","DOI":"10.1016\/0022-3999(67)90010-4"},{"key":"bibr5-15-071","doi-asserted-by":"publisher","DOI":"10.1093\/ejo\/cji004"},{"key":"bibr6-15-071","volume-title":"Exploring the Impact of Public Involvement on the Quality of Research: 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