{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T04:58:18Z","timestamp":1780462698403,"version":"3.54.1"},"reference-count":49,"publisher":"Universidad Nacional de Lanus","license":[{"start":{"date-parts":[[2025,11,28]],"date-time":"2025-11-28T00:00:00Z","timestamp":1764288000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100020884","name":"Agencia Nacional de Investigaci\u00f3n y Desarrollo","doi-asserted-by":"publisher","award":["21220808"],"award-info":[{"award-number":["21220808"]}],"id":[{"id":"10.13039\/501100020884","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["SCOL"],"abstract":"<jats:p>En Chile, la rehabilitaci\u00f3n infantil se reconoce como un derecho respaldado por marcos normativos. Sin embargo, su implementaci\u00f3n presenta limitaciones que restringen el acceso y la continuidad de los procesos, y las experiencias y estrategias de las mujeres cuidadoras usuarias del sistema han recibido escasa atenci\u00f3n en el dise\u00f1o y evaluaci\u00f3n de pol\u00edticas p\u00fablicas. En este contexto, este art\u00edculo caracteriza los itinerarios terap\u00e9uticos de rehabilitaci\u00f3n de ni\u00f1eces con discapacidad en la zona poniente de Santiago de Chile, desde la perspectiva de sus cuidadoras principales. Entre agosto de 2023 y marzo de 2024, a partir de una metodolog\u00eda cualitativa con enfoque etnogr\u00e1fico, se realizaron acompa\u00f1amientos con observaci\u00f3n participante, registrados en notas de campo, y entrevistas semiestructuradas a 13 mujeres. Los resultados evidencian trayectorias fragmentadas, atravesadas por m\u00faltiples barreras de acceso, alta carga de gesti\u00f3n familiar y discontinuidades en la atenci\u00f3n. Se identifican cuatro momentos clave: sospecha y diagn\u00f3stico, tr\u00e1nsito institucional, desarrollo de intervenciones, y alta terap\u00e9utica. Las cuidadoras sostienen los procesos de atenci\u00f3n mediante estrategias cotidianas que articulan apoyos p\u00fablicos, comunitarios y privados. En este marco, el art\u00edculo discute los l\u00edmites de las pol\u00edticas p\u00fablicas actuales y resignifica la rehabilitaci\u00f3n como una pr\u00e1ctica contextualizada, sostenida en redes de cuidado afectivas y desiguales.<\/jats:p>","DOI":"10.18294\/sc.2025.5792","type":"journal-article","created":{"date-parts":[[2025,11,28]],"date-time":"2025-11-28T15:06:07Z","timestamp":1764342367000},"page":"e5792","source":"Crossref","is-referenced-by-count":1,"title":["\u201cVivir el paso a paso\u201d: Itinerarios de rehabilitaci\u00f3n de la ni\u00f1ez con discapacidad en narrativas de mujeres cuidadoras en la zona poniente de Santiago de Chile","\u201cLiving step by step\u201d: Rehabilitation pathways of children with disabilities in the narratives of women caregivers in western Santiago, Chile"],"prefix":"10.18294","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7538-5249","authenticated-orcid":false,"given":"Nelson","family":"Mu\u00f1oz-Lizana","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paulina","family":"Osorio-Parraguez","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7027-6908","authenticated-orcid":false,"given":"Juan Andr\u00e9s","family":"Pino-Mor\u00e1n","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"7901","published-online":{"date-parts":[[2025,11,28]]},"reference":[{"key":"29655","doi-asserted-by":"crossref","unstructured":"Meyer T, Kiekens C, Selb M, Posthumus E, Negrini S. 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