{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,13]],"date-time":"2026-02-13T19:49:21Z","timestamp":1771012161744,"version":"3.50.1"},"reference-count":0,"publisher":"Springer Publishing Company","issue":"2","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Nurs Meas"],"published-print":{"date-parts":[[2010,8]]},"abstract":"<jats:p>Health concerns and management strategies among families of young and middle-age adults with Huntington\u2019s disease (HD) are unknown. This study developed and tested psychometric properties of the Huntington Disease Family Concerns and Strategies Survey (HDFCSS). Focus group data from 91 adult family members were used to develop content. Content analysis yielded four domains that were transferred into Personal, Person With HD, Community Health Care Services, and Strategies scales. Focus group data, expert validation, and cognitive interviews demonstrated survey content validity. Cronbach\u2019s alpha internal consistency coefficients for the scales were 0.83 or above. The measure can be used to generate reliable and valid data to identify adult family members\u2019 health-related concerns and management strategies for themselves and persons with HD.<\/jats:p>","DOI":"10.1891\/1061-3749.18.2.83","type":"journal-article","created":{"date-parts":[[2010,7,16]],"date-time":"2010-07-16T01:43:36Z","timestamp":1279244616000},"page":"83-99","source":"Crossref","is-referenced-by-count":12,"title":["Development of the Huntington Disease Family Concerns and Strategies Survey From Focus Group Data"],"prefix":"10.1891","volume":"18","author":[{"given":"Janet K.","family":"Williams","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J. Jackson","family":"Barnette","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David","family":"Reed","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Valmi D.","family":"Sousa","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Debra L.","family":"Schutte","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Meghan","family":"McGonigal-Kenney","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lori","family":"Jarmon","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emily","family":"Phillips","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Toni","family":"Tripp-Reimer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jane S.","family":"Paulsen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"793","published-online":{"date-parts":[[2010,8,1]]},"container-title":["Journal of Nursing Measurement"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.1891\/1061-3749.18.2.83","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,9,18]],"date-time":"2019-09-18T01:07:28Z","timestamp":1568768848000},"score":1,"resource":{"primary":{"URL":"http:\/\/connect.springerpub.com\/lookup\/doi\/10.1891\/1061-3749.18.2.83"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2010,8]]},"references-count":0,"journal-issue":{"issue":"2","published-online":{"date-parts":[[2010,8,1]]},"published-print":{"date-parts":[[2010,8]]}},"alternative-id":["10.1891\/1061-3749.18.2.83"],"URL":"https:\/\/doi.org\/10.1891\/1061-3749.18.2.83","relation":{},"ISSN":["1061-3749","1945-7049"],"issn-type":[{"value":"1061-3749","type":"print"},{"value":"1945-7049","type":"electronic"}],"subject":[],"published":{"date-parts":[[2010,8]]}}}