{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"institution":[{"name":"Research Square"}],"indexed":{"date-parts":[[2023,12,1]],"date-time":"2023-12-01T00:27:25Z","timestamp":1701390445644},"posted":{"date-parts":[[2023,11,30]]},"group-title":"In Review","reference-count":47,"publisher":"Research Square Platform LLC","license":[{"start":{"date-parts":[[2023,11,30]],"date-time":"2023-11-30T00:00:00Z","timestamp":1701302400000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"accepted":{"date-parts":[[2023,11,23]]},"abstract":"<jats:title>Abstract<\/jats:title>\n        <jats:p>Inherited genetic conditions are family diseases. They affect consanguineous relatives, in lineage for several generations, and impact the family dynamics. Older generations have been considered highly influential in the health management of families with inherited genetic conditions. To our knowledge, no reviews so far addressed the health-related roles of older generations in these families. This scoping review aims to fill that gap by mapping the existent research about the health-roles roles performed by the older generations in families living with inherited genetic conditions. Four electronic databases were searched: Scopus, Web of Science, PubMed, PsycInfo. Eleven studies were included, and relevant findings were extracted. Main roles included: informers vs blockers of disease-related information; encouragers vs discouragers of health screening or genetic testing; (non-)supporters; and role models in living and coping with the disease. The roles played by older generations are relevant to the health management of other family members and can be beneficial to themselves (reciprocal interactions). Acknowledging and understanding these roles is important for professionals and health-services. Results suggest the relevance of an intergenerational perspective when working with families with inherited genetic conditions.<\/jats:p>","DOI":"10.21203\/rs.3.rs-3655898\/v1","type":"posted-content","created":{"date-parts":[[2023,11,30]],"date-time":"2023-11-30T20:16:21Z","timestamp":1701375381000},"source":"Crossref","is-referenced-by-count":0,"title":["Health-related Roles of Older Generations in Families with Inherited Genetic Conditions: A Scoping Review"],"prefix":"10.21203","author":[{"given":"Carla Roma","family":"Oliveira","sequence":"first","affiliation":[{"name":"Universidade de Aveiro"}]},{"given":"Catarina","family":"Seidi","sequence":"additional","affiliation":[{"name":"Universidade de Aveiro"}]},{"given":"Jorge","family":"Sequeiros","sequence":"additional","affiliation":[{"name":"i3S-Instituto de Investiga\u00e7\u00e3o e Inova\u00e7\u00e3o em Sa\u00fade, University of Porto"}]},{"given":"Liliana","family":"Sousa","sequence":"additional","affiliation":[{"name":"CINTESIS@RISE, University of Aveiro"}]},{"given":"\u00c1lvaro","family":"Mendes","sequence":"additional","affiliation":[{"name":"i3S-Instituto de Investiga\u00e7\u00e3o e Inova\u00e7\u00e3o em Sa\u00fade, University of Porto"}]}],"member":"8761","reference":[{"issue":"4","key":"ref1","doi-asserted-by":"publisher","first-page":"763","DOI":"10.1007\/s10897-016-0043-x","article-title":"Communication about congenital adrenal hyperplasia: Perspective of Filipino families","volume":"26","author":"Abad PJB","year":"2017","unstructured":"Abad, P. 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