{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T17:54:03Z","timestamp":1782842043282,"version":"3.54.5"},"reference-count":42,"publisher":"JMIR Publications Inc.","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JMIR Res Protoc"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Dementias\u2014including Alzheimer disease\u2014and Parkinson disease profoundly impact the quality of life of older population members and their families. PROCare4Life (Personalized Integrated Care Promoting Quality of Life for Older Adults) is a European project that recognizes the benefit of technology-based integrated care models in improving the care coordination and the quality of life of these target groups. This project proposes an integrated, scalable, and interactive care platform targeting older people suffering from neurodegenerative diseases, their caregivers, and socio-health professionals. PROCare4Life adopts a user-centered design approach from the early stage and throughout platform development and implementation, during which the platform is designed and adapted to the needs and requirements of all the involved users.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This paper presents the study protocol for investigating users\u2019 needs and requirements regarding the design of the proposed PROCare4Life platform.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A mixed qualitative and quantitative study design is utilized, including online surveys, interviews, and workshops. The study aimed to recruit approximately 200 participants, including patients diagnosed with dementia or Parkinson disease, caregivers, socio-health professionals, and other stakeholders, from five different European countries: Germany, Italy, Portugal, Romania, and Spain.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The study took place between April and September 2020. Recruitment is now closed, and all the data have been collected and analyzed in order to be used in shaping the large-scale pilot phase of the PROCare4Life project. Results of the study are expected to be published in spring 2021.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This paper charts the protocol for a user-centered design approach at the early stage of the PROCare4Life project in order to shape and influence an integrated health platform suitable for its intended target group and purpose.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>International Registered Report Identifier (IRRID)<\/jats:title>\n                    <jats:p>DERR1-10.2196\/22463<\/jats:p>\n                  <\/jats:sec>","DOI":"10.2196\/22463","type":"journal-article","created":{"date-parts":[[2020,11,10]],"date-time":"2020-11-10T19:33:09Z","timestamp":1605036789000},"page":"e22463","source":"Crossref","is-referenced-by-count":22,"title":["Investigating Users' and Other Stakeholders' Needs in the Development of a Personalized Integrated Care Platform (PROCare4Life) for Older People with Dementia or Parkinson Disease: Protocol for a Mixed Methods Study"],"prefix":"10.2196","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7190-8348","authenticated-orcid":false,"given":"Mona","family":"Ahmed","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1720-2560","authenticated-orcid":false,"given":"Mayca","family":"Mar\u00edn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3756-2763","authenticated-orcid":false,"given":"Raquel","family":"Bou\u00e7a-Machado","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6996-8931","authenticated-orcid":false,"given":"Daniella","family":"How","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1965-304X","authenticated-orcid":false,"given":"Elda","family":"Judica","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8238-9619","authenticated-orcid":false,"given":"Peppino","family":"Tropea","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4720-9181","authenticated-orcid":false,"given":"Ellen","family":"Bentlage","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6676-9742","authenticated-orcid":false,"given":"Michael","family":"Brach","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1010","published-online":{"date-parts":[[2021,1,12]]},"reference":[{"key":"ref1","unstructured":"World Health OrganizationGlobal Health and Aging2011102020-05-23Bethesda, MANational Institute on Aging, National Institutes of Healthhttps:\/\/www.who.int\/ageing\/publications\/global_health.pdf?ua=1"},{"key":"ref2","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzx095"},{"key":"ref3","unstructured":"EurostatAgeing Europe: Looking at the Lives of Older People in the EU20192020-06-06LuxembourgPublications Office of the European Unionhttps:\/\/www.age-platform.eu\/sites\/default\/files\/Ageing_Europe-Eurostat_report_2019.pdf"},{"key":"ref4","doi-asserted-by":"publisher","DOI":"10.1007\/s10433-016-0370-7"},{"key":"ref5","unstructured":"Framework on Integrated, People-Centered Health Services201604152020-12-20Geneva, SwitzerlandWorld Health Organizationhttps:\/\/apps.who.int\/gb\/ebwha\/pdf_files\/WHA69\/A69_39-en.pdf?ua=1&ua=1"},{"key":"ref6","doi-asserted-by":"publisher","DOI":"10.2471\/blt.16.187617"},{"key":"ref7","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610214000088"},{"key":"ref8","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/45.6.793"},{"key":"ref9","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/46.5.620"},{"key":"ref10","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610211001827"},{"key":"ref11","doi-asserted-by":"publisher","DOI":"10.1258\/1357633054893292"},{"key":"ref12","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare7020073"},{"key":"ref13","doi-asserted-by":"publisher","DOI":"10.1038\/s41746-018-0060-2"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6963-13-43"},{"key":"ref15","doi-asserted-by":"publisher","DOI":"10.2345\/0899-8205-46.s2.49"},{"key":"ref16","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2016.02.002"},{"key":"ref17","unstructured":"Ergonomics of human-system interaction \u2014 Part 210: Human-centred design for interactive systemsInternational Organization for Standardization2020-04-25https:\/\/www.iso.org\/standard\/52075.html"},{"key":"ref18","doi-asserted-by":"publisher","DOI":"10.1002\/pon.5254"},{"key":"ref19","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2018-027727"},{"key":"ref20","doi-asserted-by":"publisher","DOI":"10.2196\/12700"},{"key":"ref21","doi-asserted-by":"publisher","DOI":"10.2196\/13226"},{"key":"ref22","doi-asserted-by":"publisher","DOI":"10.1097\/NCN.0b013e31819f7c7c"},{"key":"ref23","unstructured":"World Report on Ageing and Health20152020-06-06Geneva, SwitzerlandWorld Health Organizationhttps:\/\/apps.who.int\/iris\/bitstream\/handle\/10665\/186463\/9789240694811_eng.pdf?sequence=1"},{"key":"ref24","unstructured":"Integrated Care for Older People (ICOPE): Guidance on Person-Centred Assessment and Pathways in Primary Care20192020-05-23Geneva, SwitzerlandWorld Health Organizationhttps:\/\/apps.who.int\/iris\/bitstream\/handle\/10665\/326843\/WHO-FWC-ALC-19.1-eng.pdf?sequence=17&isAllowed=y"},{"key":"ref25","doi-asserted-by":"publisher","DOI":"10.1017\/S0266462309990328"},{"key":"ref26","doi-asserted-by":"publisher","DOI":"10.2196\/mhealth.2526"},{"key":"ref27","doi-asserted-by":"publisher","DOI":"10.1177\/2055668319869517"},{"key":"ref28","doi-asserted-by":"publisher","DOI":"10.1080\/13698570701612774"},{"issue":"4","key":"ref29","first-page":"437","volume":"32","author":"Osv\u00e1th, P","year":"2017","journal-title":"Psychiatr Hung"},{"key":"ref30","unstructured":"ICT4Life: ICT Services for Life Improvement for the Elderly. Public Final Activity Report2018122020-06-25Perugia, ItalyICT4Lifehttps:\/\/ec.europa.eu\/research\/participants\/documents\/downloadPublic?documentIds=080166e5c05e8f20&appId=PPGMS"},{"key":"ref31","unstructured":"PattonMCochranMA Guide to Using Qualitative Research Methodology20022020-03-06Geneva, SwitzerlandM\u00e9decins Sans Fronti\u00e8reshttps:\/\/evaluation.msf.org\/sites\/evaluation\/files\/a_guide_to_using_qualitative_research_methodology.pdf"},{"key":"ref32","doi-asserted-by":"publisher","DOI":"10.1186\/s40900-018-0129-8"},{"key":"ref33","unstructured":"WisdomJJCreswellJWMixed Methods: Integrating Quantitative and Qualitative Data Collection and Analysis While Studying Patient-Centered Medical Home Models20132020-04-12Rockville, MDAgency for Healthcare Research and Qualityhttps:\/\/pcmh.ahrq.gov\/sites\/default\/files\/attachments\/MixedMethods_032513comp.pdf"},{"key":"ref34","unstructured":"PROCare4Life2020-12-20https:\/\/procare4life.eu\/"},{"key":"ref35","unstructured":"SurveysPROCare4Life2020-12-21https:\/\/procare4life.eu\/surveys\/"},{"key":"ref36","doi-asserted-by":"publisher","DOI":"10.1177\/2050312116671725"},{"key":"ref37","doi-asserted-by":"publisher","DOI":"10.1157\/13074742"},{"key":"ref38","doi-asserted-by":"publisher","DOI":"10.1002\/gps.1770"},{"key":"ref39","doi-asserted-by":"publisher","DOI":"10.1016\/s0883-9417(97)80015-5"},{"key":"ref40","author":"Boyatzis, RE","year":"1998","journal-title":"Transforming Qualitative Information: Thematic Analysis and Code Development"},{"key":"ref41","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"ref42","doi-asserted-by":"publisher","DOI":"10.1016\/j.procs.2012.10.022"}],"container-title":["JMIR Research Protocols"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.researchprotocols.org\/2021\/1\/e22463","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T17:31:04Z","timestamp":1782840664000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.researchprotocols.org\/2021\/1\/e22463"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,1,12]]},"references-count":42,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2021]]}},"URL":"https:\/\/doi.org\/10.2196\/22463","relation":{"has-preprint":[{"id-type":"doi","id":"10.2196\/preprints.22463","asserted-by":"object"}]},"ISSN":["1929-0748"],"issn-type":[{"value":"1929-0748","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,1,12]]}}}