{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,21]],"date-time":"2026-08-21T01:31:08Z","timestamp":1787275868987,"version":"build-2736575974"},"reference-count":20,"publisher":"JMIR Publications Inc.","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JMIR Form Res"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Ocular pain has multifactorial etiologies that affect activities of daily life, psychological well-being, and health-related quality of life (QoL). Chronic ocular surface pain (COSP) is a persistent eye pain symptom lasting for a period longer than 3 months.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>The objective of this social media listening study was to better understand COSP and related symptoms and identify its perceived causes, comorbidities, and impact on QoL from social media posts.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A search from February 2020 to February 2021 was performed on social media platforms (Twitter, Facebook, blogs, and forums) for English-language content posted on the web. Social media platforms that did not provide public access to information or posts were excluded. Social media posts from Australia, Canada, the United Kingdom, and the United States were retrieved using the Social Studio platform\u2014a web-based aggregator tool.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Of the 25,590 posts identified initially, 464 posts about COSP were considered relevant; the majority of conversations (98.3%, n=456) were posted by adults (aged &gt;18 years). Work status was mentioned in 52 conversations. Patients\u2019 or caregivers\u2019 discussions across social media platforms were centered around the symptoms (61.9%, n=287) and causes (58%, n=269) of ocular pain. Patients mentioned having symptoms associated with COSP, including headache or head pressure, dry or gritty eyes, light sensitivity, etc. Patients posted that their COSP impacts day-to-day activities such as reading, driving, sleeping, and their social, mental, and functional well-being.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Insights from this study reported patients\u2019 experiences, concerns, and the adverse impact on overall QoL. COSP imposes a significant burden on patients, which spans multiple aspects of daily life.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.2196\/47245","type":"journal-article","created":{"date-parts":[[2023,12,19]],"date-time":"2023-12-19T00:05:26Z","timestamp":1702944326000},"page":"e47245","source":"Crossref","is-referenced-by-count":7,"title":["Patient Experiences and Insights on Chronic Ocular Pain: Social Media Listening Study"],"prefix":"10.2196","volume":"8","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-5144-6678","authenticated-orcid":false,"given":"Brigitte","family":"Sloesen","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6064-8023","authenticated-orcid":false,"given":"Paul","family":"O'Brien","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-7562-1127","authenticated-orcid":false,"given":"Himanshu","family":"Verma","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9264-0846","authenticated-orcid":false,"given":"Sathyaraj","family":"Asaithambi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-9022-5276","authenticated-orcid":false,"given":"Nikita","family":"Parashar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-5921-7327","authenticated-orcid":false,"given":"Raj Kumar","family":"Mothe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-7288-8065","authenticated-orcid":false,"given":"Javed","family":"Shaikh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-7147-3854","authenticated-orcid":false,"given":"Annie","family":"Syntosi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1010","published-online":{"date-parts":[[2024,2,15]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","DOI":"10.1007\/s40123-020-00263-9"},{"key":"ref2","doi-asserted-by":"publisher","DOI":"10.1038\/eye.2014.263"},{"key":"ref3","doi-asserted-by":"publisher","DOI":"10.3390\/jcm8050721"},{"key":"ref4","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtos.2022.08.005"},{"key":"ref5","unstructured":"PerrinASocial Media Usage: 2005-2015Pew Research Center20152022-03-20https:\/\/www.pewresearch.org\/internet\/2015\/10\/08\/social-networking-usage-2005-2015\/"},{"key":"ref6","unstructured":"FoxSDugganMHealth Online 2013Pew Research Center20132022-03-21http:\/\/www.pewinternet.org\/2013\/01\/15\/health-on"},{"key":"ref7","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2013.06.020"},{"key":"ref8","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.5409"},{"key":"ref9","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.7485"},{"key":"ref10","doi-asserted-by":"publisher","DOI":"10.1097\/MIB.0000000000001110"},{"key":"ref11","doi-asserted-by":"publisher","DOI":"10.1016\/j.jana.2017.06.010"},{"key":"ref12","doi-asserted-by":"publisher","DOI":"10.2196\/publichealth.7157"},{"key":"ref13","doi-asserted-by":"publisher","DOI":"10.1016\/j.arth.2017.03.067"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.2196\/17917"},{"key":"ref15","unstructured":"Salesforce2024-01-30https:\/\/www.salesforce.com\/ca\/?ir=1"},{"key":"ref16","doi-asserted-by":"publisher","DOI":"10.1051\/jbio\/2018017"},{"key":"ref17","doi-asserted-by":"publisher","DOI":"10.1007\/s40123-022-00620-w"},{"key":"ref18","doi-asserted-by":"publisher","DOI":"10.1007\/s40123-019-0188-4"},{"key":"ref19","doi-asserted-by":"publisher","DOI":"10.2196\/18306"},{"key":"ref20","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.3050"}],"container-title":["JMIR Formative Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/formative.jmir.org\/2024\/1\/e47245","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T17:54:51Z","timestamp":1782842091000},"score":1,"resource":{"primary":{"URL":"https:\/\/formative.jmir.org\/2024\/1\/e47245"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,2,15]]},"references-count":20,"URL":"https:\/\/doi.org\/10.2196\/47245","relation":{"has-preprint":[{"id-type":"doi","id":"10.2196\/preprints.47245","asserted-by":"object"}]},"ISSN":["2561-326X"],"issn-type":[{"value":"2561-326X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,2,15]]}}}