{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T18:03:16Z","timestamp":1782842596526,"version":"3.54.5"},"reference-count":29,"publisher":"JMIR Publications Inc.","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JMIR Dermatol"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Patient-reported outcomes are relevant in clinical practice showing patient benefits, supporting clinicians\u2019 decision-making, and contributing to the delivery of high standards of care. Digital monitoring of patient-reported outcomes is still rare. The Patient Benefit Index (PBI) measures benefits and goals from patients\u2019 views and may be relevant for regular documentation and shared decision-making.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aimed to develop electronic versions of the PBI to examine their feasibility and acceptability in clinical practice for patients with psoriasis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We developed an app and a web version of the existing, valid PBI using focus groups and cognitive debriefings with patients before conducting a quantitative survey on its feasibility and acceptability. Conduction took part in an outpatient dermatology care unit in Germany. Descriptive and subgroup analyses were conducted.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 139 patients completed the electronic PBIs (ePBIs) and took part in the survey. The ePBI was understandable (n=129-137, 92.8%-98.6%) and feasible, for example, easy to read (n=135, 97.1%) and simple to handle (n=137, 98.5%). Acceptability was also high, for example, patients can imagine using and discussing the ePBI data in practice (n=91, 65.5%) and documenting it regularly (n=88, 63.3%). They believe it could support treatment decisions (n=118, 84.9%) and improve communication with their physician (n=112, 81.3%). They can imagine filling in electronic questionnaires regularly (n=118, 84.9%), even preferring electronic over paper versions (n=113, 81.2%). Older and less educated people show less feasibility, but the latter expected the relationship with their physician to improve and would be more willing to invest time or effort.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The app and web version of the PBI are usable and acceptable for patients offering comprehensive documentation and patient participation in practice. An implementation strategy should consider patients\u2019 needs, barriers, and facilitators but also physicians\u2019 attitudes and requirements from the health care system.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.2196\/54762","type":"journal-article","created":{"date-parts":[[2024,8,9]],"date-time":"2024-08-09T13:15:26Z","timestamp":1723209326000},"page":"e54762","source":"Crossref","is-referenced-by-count":1,"title":["Development, Feasibility, and Acceptability of the Electronic Patient Benefit Index for Psoriasis in Clinical Practice: Mixed Methods Study"],"prefix":"10.2196","volume":"7","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3767-1548","authenticated-orcid":false,"given":"Marina","family":"Otten","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4422-8229","authenticated-orcid":false,"given":"Vahid","family":"Djamei","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4026-8728","authenticated-orcid":false,"given":"Matthias","family":"Augustin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1010","published-online":{"date-parts":[[2024,8,9]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","DOI":"10.1159\/000440613"},{"key":"ref2","doi-asserted-by":"publisher","DOI":"10.1177\/1062860617745986"},{"key":"ref3","doi-asserted-by":"publisher","DOI":"10.1016\/j.ygyno.2018.10.042"},{"key":"ref4","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2019.09.008"},{"key":"ref5","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.13985"},{"key":"ref6","unstructured":"Global report on psoriasisWorld Health Organization20162024-06-30https:\/\/iris.who.int\/handle\/10665\/204417"},{"key":"ref7","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.13691"},{"key":"ref8","doi-asserted-by":"publisher","DOI":"10.2165\/00128071-200506060-00005"},{"key":"ref9","doi-asserted-by":"publisher","DOI":"10.1111\/ddg.14547"},{"key":"ref10","doi-asserted-by":"publisher","DOI":"10.1007\/s00403-009-0928-8"},{"key":"ref11","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.15324"},{"key":"ref12","unstructured":"Psoriasisreport: ergebnisse von routinedaten-analysen der Techniker Krankenkasse aus den Jahren 2017-2019 [Results of routine data analyses by Techniker Krankenkasse from 2017-2019]Universitat Bremen20212023-06-01https:\/\/www.tk.de\/resource\/blob\/2105142\/fcbbc585441b5652a0e64d7daeaa464b\/hautreport-psoriasis-lang-data.pdf"},{"key":"ref13","doi-asserted-by":"publisher","DOI":"10.1007\/s00403-012-1256-y"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.1016\/S2589-7500(20)30287-9"},{"key":"ref15","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-019-02329-z"},{"key":"ref16","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-018-2048-4"},{"key":"ref17","doi-asserted-by":"publisher","DOI":"10.1016\/j.tipsro.2018.05.002"},{"key":"ref18","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-021-03030-w"},{"key":"ref19","doi-asserted-by":"publisher","DOI":"10.1186\/s12911-020-01302-y"},{"key":"ref20","doi-asserted-by":"publisher","DOI":"10.2196\/45817"},{"key":"ref21","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S297569"},{"key":"ref22","unstructured":"DermValueElectronic Patient Benefit Index20222023-01-09https:\/\/www.epbi.dermavalue.com\/en\/"},{"key":"ref23","doi-asserted-by":"publisher","DOI":"10.1111\/j.1524-4733.2008.00470.x"},{"key":"ref24","doi-asserted-by":"publisher","DOI":"10.1186\/s12911-019-0926-5"},{"key":"ref25","doi-asserted-by":"publisher","DOI":"10.2196\/15588"},{"key":"ref26","doi-asserted-by":"publisher","DOI":"10.1177\/1049732314528809"},{"key":"ref27","doi-asserted-by":"publisher","DOI":"10.1093\/heapro\/dat063"},{"key":"ref28","doi-asserted-by":"publisher","DOI":"10.1037\/amp0000604"},{"key":"ref29","unstructured":"TenzerFStatistiken zur smartphone-nutzung in Deutschland [Statistics on smartphone use in Germany]Statista2023-01-09https:\/\/de.statista.com\/themen\/6137\/smartphone-nutzung-in-deutschland\/#topicOverview"}],"container-title":["JMIR Dermatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/derma.jmir.org\/2024\/1\/e54762","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T17:41:52Z","timestamp":1782841312000},"score":1,"resource":{"primary":{"URL":"https:\/\/derma.jmir.org\/2024\/1\/e54762"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,8,9]]},"references-count":29,"URL":"https:\/\/doi.org\/10.2196\/54762","relation":{"has-preprint":[{"id-type":"doi","id":"10.2196\/preprints.54762","asserted-by":"object"}]},"ISSN":["2562-0959"],"issn-type":[{"value":"2562-0959","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,8,9]]}}}