{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:44:04Z","timestamp":1785545044572,"version":"3.56.0"},"reference-count":58,"publisher":"JMIR Publications Inc.","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Med Internet Res"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec sec-type=\"background\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The number of cancer survivors in Switzerland is increasing. Many individuals face challenges in dealing with health-related information and navigating the health care system. Digitalization offers new care and support opportunities, but its effective use requires digital and navigational health literacy (HL) and self-management skills.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"objective\">\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aimed to assess the competencies of cancer survivors in Switzerland, compare them with those of the general population, and identify vulnerable subgroups.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"methods\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      A cross-sectional online survey was conducted using validated scales from the Health Literacy Survey 2019\u20102021 (HLS\n                      <jats:sub>19<\/jats:sub>\n                      ), measuring digital HL, interaction with digital devices, frequency of use of digital resources, and navigational HL. Self-management skills were assessed with the Health Education Impact Questionnaire (heiQ). HLS\n                      <jats:sub>19<\/jats:sub>\n                      scores were compared to data from the general Swiss population and a subpopulation with chronic diseases provided by the Federal Office of Public Health, using Mann-Whitney\n                      <jats:italic>U<\/jats:italic>\n                      tests, chi-square tests, and independent\n                      <jats:italic>t<\/jats:italic>\n                      tests. Regression analyses identified associations of sociodemographic and clinical factors with digital and navigational HL and self-management skills.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"results\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      A total of 131 cancer survivors (74.8% female, 41% with breast cancer) completed the survey. Only 30% reported high digital HL, while self-management skills were generally high, particularly in \u201chealth service navigation\u201d (median 3.6, IQR 0.8 on a 4-point Likert scale) and \u201cconstructive attitudes\u201d (median 3.6, IQR 1). Compared to the general population, cancer survivors had significantly higher scores in digital interaction and digital resource use (\n                      <jats:italic>P<\/jats:italic>\n                      \u2264.002), while no differences were observed in digital or navigational HL. Digital and navigational HL, as well as self-management, were consistently associated with education level, social support, and financial deprivation.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"conclusions\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Cancer survivors in Switzerland report low digital and navigational HL, comparable to the general population, while self-management skills were strong overall. Support strategies should simultaneously target individual and systemic factors to improve cancer survivors\u2019 ability to access and use digital health resources. Future research should include a more representative sample to validate these findings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.2196\/84228","type":"journal-article","created":{"date-parts":[[2026,5,25]],"date-time":"2026-05-25T18:56:40Z","timestamp":1779735400000},"page":"e84228-e84228","source":"Crossref","is-referenced-by-count":0,"title":["Digital and Navigational Health Literacy in Swiss Cancer Survivors Compared With the General Population: Cross-Sectional Questionnaire Study"],"prefix":"10.2196","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2038-0261","authenticated-orcid":false,"given":"Julia","family":"Seinsche","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8656-9825","authenticated-orcid":false,"given":"Elena","family":"Alder","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-7768-4838","authenticated-orcid":false,"given":"Tami","family":"Wehrmann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8309-445X","authenticated-orcid":false,"given":"J\u00f6rg","family":"Haslbeck","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4724-1197","authenticated-orcid":false,"given":"Karin","family":"Ribi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7992-7209","authenticated-orcid":false,"given":"Saskia Maria","family":"De Gani","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1010","published-online":{"date-parts":[[2026,5,25]]},"reference":[{"issue":"5","key":"R1","doi-asserted-by":"publisher","first-page":"409","DOI":"10.3322\/caac.21731","article-title":"Cancer treatment and survivorship statistics, 2022","volume":"72","author":"Miller","journal-title":"CA Cancer J Clin"},{"issue":"1","key":"R2","doi-asserted-by":"publisher","first-page":"7","DOI":"10.3322\/caac.21708","article-title":"Cancer statistics, 2022","volume":"72","author":"Siegel","journal-title":"CA A Cancer J Clinicians"},{"key":"R3","unstructured":"Cirillo P Feller A Ho\u0161ek M et al. Schweizerischer Krebsbericht 2021: Stand Und Entwicklungen. Federal Statistical Office; 2021. ISBN: 978-3-303-14333-9"},{"key":"R4","unstructured":"Schweiz K . Krebs in der Schweiz: wichtige Zahlen. Krebsliga Schweiz Ligue Suisse Contre le Cancer Liga Svizzera Contro il Cancro. 2024. URL: https:\/\/www.krebsliga.ch\/ueber-krebs\/zahlen-fakten\/-dl-\/fileadmin\/downloads\/sheets\/zahlen-krebs-in-der-schweiz.pdf [Accessed 15-07-2025]"},{"issue":"6","key":"R5","doi-asserted-by":"publisher","first-page":"369","DOI":"10.1097\/PPO.0b013e31818edf60","article-title":"Seasons of survivorship revisited","volume":"14","author":"Miller","journal-title":"Cancer J"},{"issue":"11","key":"R6","doi-asserted-by":"publisher","first-page":"1119","DOI":"10.1016\/j.annonc.2022.07.1941","article-title":"ESMO expert consensus statements on cancer survivorship: promoting high-quality survivorship care and research in Europe","volume":"33","author":"Vaz-Luis","journal-title":"Ann Oncol"},{"issue":"11","key":"R7","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0259815","article-title":"The role of health literacy in cancer care: a mixed studies systematic review","volume":"16","author":"Holden","journal-title":"PLoS ONE"},{"issue":"5","key":"R8","doi-asserted-by":"publisher","first-page":"341","DOI":"10.1097\/NCC.0000000000000855","article-title":"Building capacity in cancer nurses to deliver self-management support: a call for action paper","volume":"43","author":"Chan","journal-title":"Cancer Nurs"},{"issue":"4","key":"R9","doi-asserted-by":"publisher","first-page":"412","DOI":"10.1007\/s00103-022-03514-1","article-title":"Survivorship-care-programme f\u00fcr Krebspatienten: die Bedeutung von Risikostratifizierung, Selbstmanagement- und Gesundheitskompetenzen im Zeitalter digitaler Versorgung","volume":"65","author":"Mehnert-Theuerkauf","journal-title":"Bundesgesundheitsbl"},{"issue":"5","key":"R10","doi-asserted-by":"publisher","first-page":"523","DOI":"10.1093\/jnci\/djaa083","article-title":"Management of cancer and health after the clinic visit: a call to action for self-management in cancer care","volume":"113","author":"Howell","journal-title":"J Natl Cancer Inst"},{"issue":"1","key":"R11","doi-asserted-by":"publisher","first-page":"50","DOI":"10.3322\/caac.20093","article-title":"Self-management: enabling and empowering patients living with cancer as a chronic illness","volume":"61","author":"McCorkle","journal-title":"CA Cancer J Clin"},{"issue":"80","key":"R12","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-12-80","article-title":"Health literacy and public health: a systematic review and integration of definitions and models","volume":"12","author":"S\u00f8rensen","journal-title":"BMC Public Health"},{"issue":"5","key":"R13","doi-asserted-by":"publisher","first-page":"e316","DOI":"10.1016\/S2589-7500(23)00049-3","article-title":"Digital health and telehealth in cancer care: a scoping review of reviews","volume":"5","author":"Shaffer","journal-title":"Lancet Digit Health"},{"issue":"10","key":"R14","doi-asserted-by":"publisher","first-page":"7171","DOI":"10.3390\/curroncol29100564","article-title":"Lessons learned from the implementation of a person-centred digital health platform in cancer care","volume":"29","author":"Ahmed","journal-title":"Curr Oncol"},{"issue":"12","key":"R15","doi-asserted-by":"publisher","first-page":"1552","DOI":"10.1016\/j.annonc.2021.09.001","article-title":"The efficacy, challenges, and facilitators of telemedicine in post-treatment cancer survivorship care: an overview of systematic reviews","volume":"32","author":"Chan","journal-title":"Ann Oncol"},{"key":"R16","doi-asserted-by":"publisher","DOI":"10.2196\/38758","article-title":"Promoting self-management and patient activation through eHealth: protocol for a systematic literature review and meta-analysis","volume":"12","author":"Moradian","journal-title":"JMIR Res Protoc"},{"issue":"6","key":"R17","doi-asserted-by":"publisher","first-page":"4370","DOI":"10.3390\/curroncol29060349","article-title":"A narrative review on the collection and use of electronic patient-reported outcomes in cancer survivorship care with emphasis on symptom monitoring","volume":"29","author":"van den Hurk","journal-title":"Curr Oncol"},{"issue":"2","key":"R18","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.8.2.e9","article-title":"eHealth literacy: essential skills for consumer health in a networked world","volume":"8","author":"Norman","journal-title":"J Med Internet Res"},{"key":"R19","doi-asserted-by":"publisher","DOI":"10.3389\/fpubh.2025.1472706","article-title":"Measuring digital health literacy and its associations with determinants and health outcomes in 13 countries","volume":"13","author":"Levin-Zamir","journal-title":"Front Public Health"},{"key":"R20","unstructured":"Jaks R De Gani SM Bieri U Kocher JP . Health Literacy Survey Schweiz 2019-2021: im Auftrag des Bundesamtes f\u00fcr Gesundheit. Schlussbericht mit \u00fcberarbeiteten Empfehlungen. Careum Zentrum f\u00fcr Gesundheitskompetenz; 2023. URL: https:\/\/www.bag.admin.ch\/dam\/de\/sd-web\/zTvqdtp8UAbm\/schlussbericht-health-literacy-survey-careum.pdf [Accessed 14-05-2026]"},{"issue":"1","key":"R21","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-021-06323-5","article-title":"Super fragmented: a nationally representative cross-sectional study exploring the fragmentation of inpatient care among super-utilizers","volume":"21","author":"Kaltenborn","journal-title":"BMC Health Serv Res"},{"key":"R22","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcpo.2022.100343","article-title":"Game changer in cancer treatment in Switzerland","volume":"33","author":"Lomazzi","journal-title":"J Cancer Policy"},{"issue":"1","key":"R23","doi-asserted-by":"publisher","first-page":"172","DOI":"10.1177\/17423953211073368","article-title":"Navigational health literacy among people with chronic illness","volume":"19","author":"Griese","journal-title":"Chronic Illn"},{"key":"R24","unstructured":"The HLS19 Consortium of the WHO Action Network M-POHL. International report on the methodology, results, and recommendations of the European health literacy population survey 2019-2021 (HLS19) of M-POHL. Austrian National Public Health Institute; 2021. URL: https:\/\/m-pohl.net\/Int_Report_methdology_results_recommendations [Accessed 14-05-2026]"},{"issue":"1","key":"R25","doi-asserted-by":"publisher","DOI":"10.1186\/s40359-018-0249-9","article-title":"Social support in the general population: standardization of the Oslo social support scale (OSSS-3)","volume":"6","author":"Kocalevent","journal-title":"BMC Psychol"},{"issue":"21","key":"R26","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph192113863","article-title":"HLS-NAV-validation of a new instrument measuring navigational health literacy in eight European countries","volume":"19","author":"Griese","journal-title":"Int J Environ Res Public Health"},{"key":"R27","unstructured":"The HLS19 Consortium of the WHO Action Network M-POHL. The HLS19\u2013NAV Instrument to Measure Navigational Health Literacy. Austrian National Public Health Institute; 2022. URL: https:\/\/m-pohl.net\/sites\/m-pohl.net\/files\/inline-files\/Factsheet%20HLS19-NAV.pdf [Accessed 14-05-2026]"},{"key":"R28","unstructured":"The HLS19 Consortium of the WHO Action Network M-POHL. The HLS19\u2013DIGI Instrument to Measure Digital Health Literacy. Austrian National Public Health Institute; 2022. URL: https:\/\/m-pohl.net\/sites\/m-pohl.net\/files\/inline-files\/Factsheet%20HLS19-DIGI.pdf [Accessed 14-05-2026]"},{"issue":"2","key":"R29","doi-asserted-by":"publisher","first-page":"192","DOI":"10.1016\/j.pec.2006.12.002","article-title":"The health education impact questionnaire (heiQ): an outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions","volume":"66","author":"Osborne","journal-title":"Patient Educ Couns"},{"issue":"20","key":"R30","doi-asserted-by":"publisher","first-page":"3228","DOI":"10.1002\/cncr.28847","article-title":"Health-related empowerment in cancer: validity of scales from the health education impact questionnaire","volume":"120","author":"Maunsell","journal-title":"Cancer"},{"issue":"1","key":"R31","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-015-0254-0","article-title":"Validation of a French-language version of the health education impact Questionnaire (heiQ) among chronic disease patients seen in primary care: a cross-sectional study","volume":"13","author":"B\u00e9langer","journal-title":"Health Qual Life Outcomes"},{"issue":"6","key":"R32","doi-asserted-by":"publisher","first-page":"1391","DOI":"10.1007\/s11136-012-0268-6","article-title":"Assessment of proximal outcomes of self-management programs: translation and psychometric evaluation of a German version of the health education impact Questionnaire (heiQ)","volume":"22","author":"Schuler","journal-title":"Qual Life Res"},{"issue":"2","key":"R33","doi-asserted-by":"publisher","first-page":"121","DOI":"10.4103\/0253-7176.116232","article-title":"How to calculate sample size for different study designs in medical research?","volume":"35","author":"Charan","journal-title":"Indian J Psychol Med"},{"issue":"2","key":"R34","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph20021472","article-title":"Digital trends, digital literacy, and e-Health engagement predictors of breast and colorectal cancer survivors: a population-based cross-sectional survey","volume":"20","author":"Melhem","journal-title":"Int J Environ Res Public Health"},{"issue":"4","key":"R35","doi-asserted-by":"publisher","first-page":"685","DOI":"10.1007\/s13187-014-0744-5","article-title":"Predictors of high eHealth literacy in primary lung cancer survivors","volume":"30","author":"Milne","journal-title":"J Cancer Educ"},{"issue":"9","key":"R36","doi-asserted-by":"publisher","first-page":"1843","DOI":"10.1007\/s00432-018-2703-8","article-title":"EHealth literacy in patients with cancer and their usage of web-based information","volume":"144","author":"Heiman","journal-title":"J Cancer Res Clin Oncol"},{"issue":"4","key":"R37","doi-asserted-by":"publisher","first-page":"323","DOI":"10.1055\/a-1670-7636","article-title":"Digitale gesundheitskompetenz der bev\u00f6lkerung in Deutschland: ergebnisse des HLS-GER 2","volume":"85","author":"Schaeffer","journal-title":"Gesundheitswesen"},{"issue":"6","key":"R38","doi-asserted-by":"publisher","first-page":"1020","DOI":"10.1016\/j.jgo.2019.12.015","article-title":"eHealth literacy in older adults with cancer","volume":"11","author":"Hoogland","journal-title":"J Geriatr Oncol"},{"issue":"11_suppl","key":"R39","doi-asserted-by":"publisher","first-page":"202","DOI":"10.1200\/OP.2023.19.11_suppl.202","article-title":"Recommendations for improving digital health literacy in patients with cancer receiving care in the deep south","volume":"19","author":"Hildreth","journal-title":"JCO Oncology Practice"},{"key":"R40","unstructured":"Fachgruppe breast care nurse (BCN-OPS). Onkologiepflege Schweiz. 2025. URL: https:\/\/www.onkologiepflege.ch\/verband\/fachgruppen\/breast-care-nurse-bcn-ops [Accessed 18-06-2025]"},{"issue":"9","key":"R41","doi-asserted-by":"publisher","first-page":"1257","DOI":"10.1016\/j.ejca.2011.07.011","article-title":"Training breast care nurses throughout Europe: the EONS postbasic curriculum for breast cancer nursing","volume":"48","author":"Eicher","journal-title":"Eur J Cancer"},{"issue":"5","key":"R42","doi-asserted-by":"publisher","first-page":"540","DOI":"10.1111\/jnu.12411","article-title":"Acceptance of the advanced practice nurse in lung cancer role by healthcare professionals and patients: a qualitative exploration","volume":"50","author":"Serena","journal-title":"J Nurs Scholarsh"},{"issue":"2","key":"R43","doi-asserted-by":"publisher","first-page":"244","DOI":"10.1007\/s11764-019-00833-2","article-title":"Improving cancer survivors\u2019 e-health literacy via online health communities (OHCs): a social support perspective","volume":"14","author":"Zhou","journal-title":"J Cancer Surviv"},{"issue":"24","key":"R44","doi-asserted-by":"publisher","DOI":"10.3390\/cancers16244177","article-title":"Experiences and needs of Swiss cancer survivors in the domains of health-related information and the healthcare system","volume":"16","author":"Sperisen","journal-title":"Cancers (Basel)"},{"issue":"1","key":"R45","doi-asserted-by":"publisher","DOI":"10.1186\/s12960-022-00733-0","article-title":"WHO competency framework for health authorities and institutions to manage infodemics: its development and features","volume":"20","author":"Rubinelli","journal-title":"Hum Resour Health"},{"issue":"10225","key":"R46","doi-asserted-by":"publisher","first-page":"676","DOI":"10.1016\/S0140-6736(20)30461-X","article-title":"How to fight an infodemic","volume":"395","author":"Zarocostas","journal-title":"The Lancet"},{"issue":"1","key":"R47","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-021-12271-w","article-title":"Relation of corona-specific health literacy to use of and trust in information sources during the COVID-19 pandemic","volume":"22","author":"De Gani","journal-title":"BMC Public Health"},{"issue":"2","key":"R48","doi-asserted-by":"publisher","first-page":"151814","DOI":"10.1016\/j.soncn.2025.151814","article-title":"Pilot testing a peer-led self-management program for women after breast cancer","volume":"41","author":"Ribi","journal-title":"Semin Oncol Nurs"},{"issue":"11","key":"R49","doi-asserted-by":"publisher","first-page":"2119","DOI":"10.1002\/pon.5215","article-title":"Self-management interventions for cancer survivors: a systematic review and evaluation of intervention content and theories","volume":"28","author":"Cuthbert","journal-title":"Psychooncology"},{"issue":"7","key":"R50","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2018-027942","article-title":"Implementation of the Symptom Navi \u00a9 Programme for cancer patients in the Swiss outpatient setting: a study protocol for a cluster randomised pilot study (Symptom Navi\u00a9 Pilot Study)","volume":"9","author":"Bana","journal-title":"BMJ Open"},{"issue":"1","key":"R51","doi-asserted-by":"publisher","first-page":"39","DOI":"10.1016\/j.apjon.2021.12.003","article-title":"Randomized clinical trial to evaluate a cancer pain self-management intervention for outpatients","volume":"9","author":"Valenta","journal-title":"Asia Pac J Oncol Nurs"},{"key":"R52","unstructured":"De Gani SM Berger FMP . Bedeutung und St\u00e4rkung von digitaler Gesundheitskompetenz in der Schweiz. In: Langkafel P Matusiewicz D , editors. Digitale Gesundheitskompetenz: Brauchen Wir Den Digitalen F\u00fchrerschein [Book in German]. Medhochzwei; 2021:43-54. ISBN: 9783862167999"},{"issue":"8","key":"R53","doi-asserted-by":"publisher","first-page":"1113","DOI":"10.1038\/bjc.2017.283","article-title":"The prevalence of unmet needs in 625 women living beyond a diagnosis of early breast cancer","volume":"117","author":"Capelan","journal-title":"Br J Cancer"},{"issue":"1","key":"R54","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-024-11174-x","article-title":"Inequalities in patients\u2019 experiences with cancer care: the role of economic and health literacy determinants","volume":"24","author":"Jolidon","journal-title":"BMC Health Serv Res"},{"key":"R55","unstructured":"Consensus recommendations for cancer survivorship care in switzerland. Aerzteverlag medinfo AG. 2025. URL: https:\/\/www.medinfo-verlag.ch\/infooncosuisse\/konsensusempfehlungen-fuer-cancer-survivorship-care-in-der-schweiz [Accessed 04-05-2026]"},{"issue":"2","key":"R56","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph22020212","article-title":"Interventions addressing health literacy in cancer care: a systematic review of reviews","volume":"22","author":"Jeitani","journal-title":"Int J Environ Res Public Health"},{"issue":"4","key":"R57","doi-asserted-by":"publisher","first-page":"926","DOI":"10.1016\/j.pec.2021.07.045","article-title":"The right pick: does a self-assessment measurement tool correctly identify health care consumers with inadequate health literacy?","volume":"105","author":"Schulz","journal-title":"Patient Educ Couns"},{"key":"R58","doi-asserted-by":"crossref","unstructured":"Pleasant A Maish C O\u2019Leary C Carmona R . Measuring health literacy in adults: an overview and discussion of current tools. In: Okan O Bauer U Levin-Zamir D Pinheiro P S\u00f8rensen K , editors. International Handbook of Health Literacy. Policy Press; 2019:67-82. [doi: 10.51952\/9781447344520.ch005] ISBN: 9781447344520","DOI":"10.51952\/9781447344520.ch005"}],"container-title":["Journal of Medical Internet Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.jmir.org\/2026\/1\/e84228","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,31]],"date-time":"2026-07-31T22:26:03Z","timestamp":1785536763000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.jmir.org\/2026\/1\/e84228"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,25]]},"references-count":58,"URL":"https:\/\/doi.org\/10.2196\/84228","relation":{},"ISSN":["1438-8871"],"issn-type":[{"value":"1438-8871","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,25]]},"article-number":"v28i5e84228"}}