{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T21:05:45Z","timestamp":1789419945834,"version":"build-2803163510"},"reference-count":50,"publisher":"JMIR Publications Inc.","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Med Internet Res"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec sec-type=\"background\">\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Online health forums are used widely, yet evidence of their effectiveness is inconsistent. Evidence-based forum design guidance grounded in theory and lived experience could improve the efficacy and outcomes of these forums for the many people using them worldwide.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"objective\">\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aimed to draw on the experience of online forum users and staff, and insights from existing research on technology design and self-determination theory, to generate a set of theoretically grounded guidelines for safe and well-being\u2013supportive online forums.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"methods\">\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted 54 semistructured interviews (36 forum users and 18 forum staff) and 4 design workshops with forum staff, combined with input from a multidisciplinary research team. Principles of qualitative framework analysis were used to adapt a preexisting framework for well-being\u2013supportive technology to the context of online health forums.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"results\">\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The resulting design guidelines are framed around 4 overarching principles relating to the psychological needs for autonomy, competence, and relatedness as defined by self-determination theory, and the additional need for safety in online forums. Each principle is presented alongside pragmatic design heuristics and specific implementation strategies.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec sec-type=\"conclusions\">\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>User experiences of online health forums are mixed. We have drawn on self-determination theory to propose evidence-informed guidelines for service development and refinement, adaptable to specific user groups across diverse settings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.2196\/85411","type":"journal-article","created":{"date-parts":[[2026,6,23]],"date-time":"2026-06-23T20:00:06Z","timestamp":1782244806000},"page":"e85411-e85411","source":"Crossref","is-referenced-by-count":0,"title":["Design Guidelines for Online Health Forums: User-Centered Design Approach"],"prefix":"10.2196","volume":"28","author":[{"given":"Paul","family":"Marshall","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-4305-8948","authenticated-orcid":false,"given":"Neil","family":"Caton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8597-520X","authenticated-orcid":false,"given":"Anna","family":"Lindroos Cermakova","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-0707-2381","authenticated-orcid":false,"given":"Bohdana","family":"Dock","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6151-4860","authenticated-orcid":false,"given":"Zoe","family":"Glossop","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8801-5113","authenticated-orcid":false,"given":"Steven","family":"Jones","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-4321-4775","authenticated-orcid":false,"given":"Jade","family":"Haines","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christopher","family":"Lodge","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen","family":"Machin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jo","family":"Rycroft-Malone","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Meacock","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4767-4198","authenticated-orcid":false,"given":"Dorian","family":"Peters","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1257-2191","authenticated-orcid":false,"given":"Paul","family":"Rayson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heather","family":"Robinson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6458-1391","authenticated-orcid":false,"given":"Louisa","family":"Salhi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jay","family":"Staff","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6594-4350","authenticated-orcid":false,"given":"Fiona","family":"Lobban","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1010","published-online":{"date-parts":[[2026,9,14]]},"reference":[{"issue":"4","key":"R1","doi-asserted-by":"publisher","first-page":"668","DOI":"10.1287\/isre.2016.0682","article-title":"Special section introduction\u2014online community as space for knowledge flows","volume":"27","author":"Faraj","journal-title":"Information Systems Research"},{"key":"R2","doi-asserted-by":"crossref","unstructured":"Saha K Ernala SK Dutta S Sharma E Choudhury M . Understanding moderation in online mental health communities. In: Social Computing and Social Media Participation, User Experience, Consumer Experience, and Applications of Social Computing. Springer; 87-107. [doi: 10.1007\/978-3-030-49576-3_7]","DOI":"10.1007\/978-3-030-49576-3_7"},{"issue":"5","key":"R3","doi-asserted-by":"publisher","first-page":"96","DOI":"10.1007\/s11892-024-01538-2","article-title":"Use of online communities among people with type 2 diabetes: a scoping review","volume":"24","author":"Bujanda-Sainz de Murieta","journal-title":"Curr Diab Rep"},{"issue":"2","key":"R4","doi-asserted-by":"publisher","first-page":"451","DOI":"10.1093\/jamia\/ocw093","article-title":"Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact","volume":"24","author":"Zhang","journal-title":"J Am Med Inform Assoc"},{"issue":"5","key":"R5","doi-asserted-by":"publisher","first-page":"566","DOI":"10.1080\/09638237.2019.1630725","article-title":"A systematic review exploring how young people use online forums for support around mental health issues","volume":"28","author":"Hanley","journal-title":"J Ment Health"},{"key":"R6","doi-asserted-by":"publisher","DOI":"10.2196\/55750","article-title":"Understanding the impacts of online mental health peer support forums: realist synthesis","volume":"11","author":"Marshall","journal-title":"JMIR Ment Health"},{"key":"R7","doi-asserted-by":"publisher","DOI":"10.2196\/58891","article-title":"Understanding the needs of moderators in online mental health forums: realist synthesis and recommendations for support","volume":"12","author":"Robinson","journal-title":"JMIR Ment Health"},{"issue":"4","key":"R8","doi-asserted-by":"publisher","DOI":"10.2196\/16460","article-title":"Digital peer support mental health interventions for people with a lived experience of a serious mental illness: systematic review","volume":"7","author":"Fortuna","journal-title":"JMIR Ment Health"},{"issue":"2","key":"R9","doi-asserted-by":"publisher","DOI":"10.2196\/14321","article-title":"Web-based peer support interventions for adults living with chronic conditions: scoping review","volume":"8","author":"Hossain","journal-title":"JMIR Rehabil Assist Technol"},{"issue":"1","key":"R10","doi-asserted-by":"publisher","first-page":"1903","DOI":"10.1186\/s12889-022-14223-4","article-title":"Pilot evaluation to assess the effectiveness of youth peer community support via the Kooth online mental wellbeing website","volume":"22","author":"Stevens","journal-title":"BMC Public Health"},{"issue":"3","key":"R11","doi-asserted-by":"publisher","first-page":"205","DOI":"10.1027\/0227-5910\/a000627","article-title":"Exploration of benefits and potential harmful effects of an online forum for visitors to the suicide prevention platform in the Netherlands","volume":"41","author":"Mokkenstorm","journal-title":"Crisis"},{"key":"R12","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2019.112552","article-title":"Systematic literature review on the spread of health-related misinformation on social media","volume":"240","author":"Wang","journal-title":"Soc Sci Med"},{"issue":"5","key":"R13","doi-asserted-by":"publisher","DOI":"10.2196\/17917","article-title":"Social media use for health purposes: systematic review","volume":"23","author":"Chen","journal-title":"J Med Internet Res"},{"key":"R14","doi-asserted-by":"publisher","DOI":"10.2196\/73427","article-title":"Evaluating peer online forums to support health: ethical and practical challenges","volume":"27","author":"Lobban","journal-title":"J Med Internet Res"},{"issue":"6","key":"R15","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.2501","article-title":"Community management that works: how to build and sustain a thriving online health community","volume":"15","author":"Young","journal-title":"J Med Internet Res"},{"issue":"3-4","key":"R16","doi-asserted-by":"publisher","first-page":"246","DOI":"10.1179\/175380710X12870623776478","article-title":"Promoting and participating in online health forums: a guide to facilitation and evaluation for health professionals","volume":"3","author":"O\u2019Grady","journal-title":"J Commun Healthc"},{"key":"R17","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n2061","article-title":"A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance","volume":"374","author":"Skivington","journal-title":"BMJ"},{"issue":"14","key":"R18","doi-asserted-by":"publisher","first-page":"2965","DOI":"10.1080\/10447318.2022.2089812","article-title":"Wellbeing supportive design\u2014research-based guidelines for supporting psychological wellbeing in user experience","volume":"39","author":"Peters","journal-title":"International Journal of Human\u2013Computer Interaction"},{"issue":"2","key":"R19","doi-asserted-by":"publisher","first-page":"214","DOI":"10.1080\/17437199.2020.1718529","article-title":"A meta-analysis of self-determination theory-informed intervention studies in the health domain: effects on motivation, health behavior, physical, and psychological health","volume":"15","author":"Ntoumanis","journal-title":"Health Psychol Rev"},{"issue":"1","key":"R20","doi-asserted-by":"publisher","first-page":"5","DOI":"10.1002\/pchj.293","article-title":"A systematic review and meta\u2010analysis on basic psychological need satisfaction, motivation, and well\u2010being in later life: contributions of self\u2010determination theory","volume":"9","author":"Tang","journal-title":"Psych J"},{"key":"R21","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2018.00797","article-title":"Designing for motivation, engagement and wellbeing in digital experience","volume":"9","author":"Peters","journal-title":"Front Psychol"},{"key":"R22","doi-asserted-by":"crossref","unstructured":"Peters D Calvo RA . Self-determination theory and technology design. In: Ryan RM , editor. The Oxford Handbook of Self-Determination Theory. Oxford University Press; 2023:978-999. [doi: 10.1093\/oxfordhb\/9780197600047.013.49]","DOI":"10.1093\/oxfordhb\/9780197600047.013.49"},{"issue":"7","key":"R23","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2023-075142","article-title":"Improving Peer Online Forums (iPOF): protocol for a realist evaluation of peer online mental health forums to inform practice and policy","volume":"13","author":"Lobban","journal-title":"BMJ Open"},{"key":"R24","doi-asserted-by":"publisher","DOI":"10.2196\/79289","article-title":"Impacts of using peer online forums in mental health: realist evaluation using mixed methods","volume":"27","author":"Lobban","journal-title":"J Med Internet Res"},{"key":"R25","doi-asserted-by":"publisher","DOI":"10.2196\/75320","article-title":"Understanding safety in online mental health forums: realist evaluation","volume":"12","author":"Marshall","journal-title":"JMIR Ment Health"},{"key":"R26","unstructured":"IPOF forum summaries. Lancaster University. URL: https:\/\/www.lancaster.ac.uk\/health-and-medicine\/research\/spectrum\/research\/ipof\/case-summaries\/ [Accessed 11-07-2026]"},{"issue":"13","key":"R27","doi-asserted-by":"publisher","first-page":"1753","DOI":"10.1177\/1049732315617444","article-title":"Sample size in qualitative interview studies: guided by information power","volume":"26","author":"Malterud","journal-title":"Qual Health Res"},{"issue":"1","key":"R28","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/1471-2288-11-29","article-title":"A worked example of \u201cbest fit\u201d framework synthesis: a systematic review of views concerning the taking of some potential chemopreventive agents","volume":"11","author":"Carroll","journal-title":"BMC Med Res Methodol"},{"issue":"3","key":"R29","doi-asserted-by":"publisher","first-page":"413","DOI":"10.1177\/00380385030373002","article-title":"Reflexive accounts and accounts of reflexivity in qualitative data analysis","volume":"37","author":"Mauthner","journal-title":"Sociology"},{"key":"R30","doi-asserted-by":"crossref","unstructured":"Vansteenkiste M Soenens B Ryan RM . Basic psychological needs theory: a conceptual and empirical review of key criteria. In: Ryan RM , editor. The Oxford Handbook of Self-Determination Theory. Oxford University Press; 2023:84-123. [doi: 10.1093\/oxfordhb\/9780197600047.013.5]","DOI":"10.1093\/oxfordhb\/9780197600047.013.5"},{"key":"R31","unstructured":"Web content accessibility guidelines (WCAG) 2.2. World Wide Web Consortium. 2023. URL: https:\/\/www.w3.org\/TR\/WCAG22\/ [Accessed 11-07-2026]"},{"issue":"1","key":"R32","doi-asserted-by":"publisher","first-page":"40","DOI":"10.1177\/1094670517709356","article-title":"Service design as an approach to implement the value cocreation perspective in new service development","volume":"21","author":"Yu","journal-title":"Journal of Service Research"},{"issue":"3","key":"R33","doi-asserted-by":"publisher","first-page":"160","DOI":"10.1007\/s13668-016-0165-7","article-title":"Co-design of mHealth delivered interventions: a systematic review to assess key methods and processes","volume":"5","author":"Eyles","journal-title":"Curr Nutr Rep"},{"key":"R34","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2018.00481","article-title":"Co-design of eHealth interventions with children and young people","volume":"9","author":"Thabrew","journal-title":"Front Psychiatry"},{"issue":"7","key":"R35","doi-asserted-by":"publisher","first-page":"717","DOI":"10.1111\/bdi.13468","article-title":"CoDesign of a digital intervention for parents with bipolar disorder informed by integrated knowledge translation principles","volume":"26","author":"Jones","journal-title":"Bipolar Disord"},{"key":"R36","unstructured":"Jensen I Dock B . Data and dialogue: the mix\u2019s journey to inclusive listening. The Listening Fund. 2024. URL: https:\/\/thelisteningfund.org\/data-and-dialogue-the-mixs-journey-to-inclusive-listening\/ [Accessed 11-07-2026]"},{"key":"R37","unstructured":"General Data Protection Regulation (GDPR). Regulation (EU) 2016\/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95\/46\/EC (General Data Protection Regulation) (Text with EEA relevance). 2016."},{"issue":"10","key":"R38","doi-asserted-by":"publisher","first-page":"2069","DOI":"10.1016\/j.pec.2020.04.019","article-title":"Factors influencing autonomy supportive consultation: a realist review","volume":"103","author":"Kors","journal-title":"Patient Educ Couns"},{"issue":"5","key":"R39","doi-asserted-by":"publisher","first-page":"1298","DOI":"10.1080\/10447318.2022.2141009","article-title":"Development of usability guidelines: a systematic literature review","volume":"40","author":"Goundar","journal-title":"International Journal of Human\u2013Computer Interaction"},{"issue":"11","key":"R40","doi-asserted-by":"publisher","first-page":"3225","DOI":"10.1016\/j.pec.2022.07.017","article-title":"How do peer support interventions for the self-management of chronic pain, support basic psychological needs? A systematic review and framework synthesis using self-determination theory","volume":"105","author":"Stenberg","journal-title":"Patient Educ Couns"},{"issue":"5","key":"R41","doi-asserted-by":"publisher","first-page":"48","DOI":"10.1145\/2647087","article-title":"Compassion vs. empathy: designing for resilience","volume":"21","author":"Peters","journal-title":"ACM"},{"issue":"4","key":"R42","doi-asserted-by":"publisher","DOI":"10.2196\/11410","article-title":"Improving moderator responsiveness in online peer support through automated triage","volume":"21","author":"Milne","journal-title":"J Med Internet Res"},{"issue":"7","key":"R43","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph17072435","article-title":"An enhanced social networking intervention for young people with active suicidal ideation: safety, feasibility and acceptability outcomes","volume":"17","author":"Bailey","journal-title":"Int J Environ Res Public Health"},{"issue":"6","key":"R44","doi-asserted-by":"publisher","DOI":"10.2196\/29645","article-title":"Correction: moderated online social therapy for young people with active suicidal ideation: qualitative study","volume":"23","author":"Bailey","journal-title":"J Med Internet Res"},{"issue":"10","key":"R45","doi-asserted-by":"publisher","DOI":"10.1007\/s43545-022-00532-3","article-title":"Identifying key challenges and needs in digital mental health moderation practices supporting users exhibiting risk behaviours to develop responsible AI tools: the case study of Kooth","volume":"2","author":"Nichele","journal-title":"SN Soc Sci"},{"issue":"3","key":"R46","doi-asserted-by":"publisher","first-page":"447","DOI":"10.1093\/iwc\/iwae040","article-title":"Designing for sustained motivation: a review of self-determination theory in behaviour change technologies","volume":"38","author":"Alberts","journal-title":"Interact Comput"},{"key":"R47","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2023.1092288","article-title":"Technology evaluations are associated with psychological need satisfaction across different spheres of experience: an application of the METUX scales","volume":"14","author":"Burnell","journal-title":"Front Psychol"},{"issue":"2","key":"R48","doi-asserted-by":"publisher","first-page":"180","DOI":"10.1111\/cpsp.12154","article-title":"User\u2010centered design for psychosocial intervention development and implementation","volume":"23","author":"Lyon","journal-title":"Clinical Psychology: Science and Practice"},{"key":"R49","doi-asserted-by":"crossref","unstructured":"Slovak P Munson SA . HCI contributions in mental health: a modular framework to guide psychosocial intervention design. Presented at: Proceedings of the 2024 CHI Conference on Human Factors in Computing Systems; May 11-16, 2024:1-21; Honolulu, HI USA. May 11, 2024.[doi: 10.1145\/3613904.3642624]","DOI":"10.1145\/3613904.3642624"},{"key":"R50","unstructured":"Improving Peer Online Forums (IPOF): interview data. Lancaster University Research Portal. 2025. URL: https:\/\/research.lancaster-university.uk\/en\/projects\/dsi-realist-evaluation-of-online-mental-health-communities-to-imp\/datasets\/ [Accessed 17-07-2026]"}],"container-title":["Journal of Medical Internet Research"],"original-title":[],"language":"en","deposited":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T20:22:13Z","timestamp":1789417333000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.jmir.org\/2026\/1\/e85411"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,14]]},"references-count":50,"URL":"https:\/\/doi.org\/10.2196\/85411","relation":{},"ISSN":["1438-8871"],"issn-type":[{"value":"1438-8871","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,14]]},"article-number":"v28i4e85411"}}