{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,28]],"date-time":"2026-02-28T00:09:37Z","timestamp":1772237377220,"version":"3.50.1"},"reference-count":35,"publisher":"JMIR Publications Inc.","issue":"9","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Med Internet Res"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Health care professionals (HCPs) are often patients\u2019 first point of contact in what concerns the communication of the purposes, benefits, and risks of sharing electronic health records (EHRs) for nondirect care purposes. Their engagement is fundamental to ensure patients\u2019 buy-in and a successful implementation of health care data sharing schemes. However, their views on this subject are seldom evaluated.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aimed to explore HCPs\u2019 perspectives on the secondary uses of health care data in England. Specifically, we aimed to assess their knowledge on its purposes and the main concerns about data sharing processes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A total of 30 interviews were conducted between March 27, 2017, and April 7, 2017, using a Web-based interview platform and following a topic guide with open-ended questions. The participants represented a variety of geographic locations across England (London, West Midlands, East of England, North East England, and Yorkshire and the Humber), covering both primary and secondary care services. The transcripts were compiled verbatim and systematically reviewed by 2 independent reviewers using the framework analysis method to identify emerging themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>HCPs were knowledgeable about the possible secondary uses of data and highlighted its importance for patient profiling and tailored care, research, quality assurance, public health, and service delivery planning purposes. Main concerns toward data sharing included data accuracy, patients\u2019 willingness to share their records, challenges on obtaining free and informed consent, data security, lack of adequacy or understanding of current policies, and potential patient exposure and exploitation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>These results suggest a high level of HCPs\u2019 understanding about the purposes of data sharing for secondary purposes; however, some concerns still remain. A better understanding of HCPs\u2019 knowledge and concerns could inform national communication policies and improve tailoring to maximize efficiency and improve patients\u2019 buy-in.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.2196\/14135","type":"journal-article","created":{"date-parts":[[2019,7,28]],"date-time":"2019-07-28T10:06:01Z","timestamp":1564308361000},"page":"e14135","source":"Crossref","is-referenced-by-count":22,"title":["Health Care Professionals\u2019 Perspectives on the Secondary Use of Health Records to Improve Quality and Safety of Care in England: Qualitative Study"],"prefix":"10.2196","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7107-7211","authenticated-orcid":false,"given":"Ana Lu\u00edsa","family":"Neves","sequence":"first","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9919-2932","authenticated-orcid":false,"given":"Dilkushi","family":"Poovendran","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3558-0063","authenticated-orcid":false,"given":"Lisa","family":"Freise","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4487-6904","authenticated-orcid":false,"given":"Saira","family":"Ghafur","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7835-4322","authenticated-orcid":false,"given":"Kelsey","family":"Flott","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7815-7989","authenticated-orcid":false,"given":"Ara","family":"Darzi","sequence":"additional","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5509-4580","authenticated-orcid":false,"given":"Erik K","family":"Mayer","sequence":"additional","affiliation":[]}],"member":"1010","published-online":{"date-parts":[[2019,9,26]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2013.301220"},{"key":"ref2","doi-asserted-by":"publisher","DOI":"10.1038\/nrcardio.2016.42"},{"key":"ref3","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2016-012903"},{"key":"ref4","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2013.301396"},{"key":"ref5","doi-asserted-by":"publisher","DOI":"10.1136\/jme.2010.037903"},{"key":"ref6","doi-asserted-by":"publisher","DOI":"10.1186\/s12911-015-0202-2"},{"key":"ref7","first-page":"1699","volume":"2014","author":"Bell, EA","year":"2014","journal-title":"AMIA Annu Symp Proc"},{"key":"ref8","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijmedinf.2016.09.010"},{"key":"ref9","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp0912825"},{"key":"ref10","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp1006114"},{"key":"ref11","unstructured":"The European Institute for Innovation through Health Data (i~HD)20182019-01-21About i~HD: Enriching Knowledge and Enhancing Care Through Health Data \n          https:\/\/www.i-hd.eu\/index.cfm\/about\/about-i-hd\/"},{"key":"ref12","unstructured":"NHS England20132018-07-11Nhs England Sets Out the Next Steps of Public Awareness About care.data \n          https:\/\/www.england.nhs.uk\/2013\/10\/care-data\/"},{"key":"ref13","unstructured":"ApplebyJBMJ Blogs20142019-02-07Care.data\u2014your Bits in Their Hands \n          https:\/\/blogs.bmj.com\/bmj\/2014\/02\/13\/john-appleby-care-data-your-bits-in-their-hands\/"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.1197\/jamia.M2273"},{"key":"ref15","doi-asserted-by":"publisher","DOI":"10.1017\/S0266462314000294"},{"key":"ref16","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijmedinf.2015.01.008"},{"key":"ref17","doi-asserted-by":"publisher","DOI":"10.7748\/nr.22.4.6.s2"},{"key":"ref18","author":"Fontana, A","year":"1994","journal-title":"Handbook of Qualitative Research"},{"key":"ref19","author":"Ritchie, J","year":"1994","journal-title":"The Qualitative Researcher's Companion"},{"key":"ref20","author":"Richie, J","year":"2003","journal-title":"Qualitative Research Practice: A Guide for Social Science Students and Researchers"},{"key":"ref21","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2014.0041"},{"key":"ref22","doi-asserted-by":"publisher","DOI":"10.4088\/JCP.15m09837"},{"key":"ref23","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2015.05.002"},{"key":"ref24","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2013.393"},{"key":"ref25","doi-asserted-by":"publisher","DOI":"10.1136\/amiajnl-2011-000557"},{"key":"ref26","doi-asserted-by":"publisher","DOI":"10.1146\/annurev-publhealth-031914-122747"},{"key":"ref27","doi-asserted-by":"publisher","DOI":"10.5334\/dsj-2015-002"},{"key":"ref28","unstructured":"HunnAHealth Research Authority20172019-02-07Survey of the General Public: Attitudes Towards Health Research \n          https:\/\/www.hra.nhs.uk\/documents\/872\/survey-general-public-attitudes-towards-health-research.pdf"},{"key":"ref29","doi-asserted-by":"publisher","DOI":"10.12688\/wellcomeopenres.13531.2"},{"key":"ref30","unstructured":"BBC Online20152019-02-07London Clinic Leaks HIV Status of Patients \n          https:\/\/www.bbc.co.uk\/news\/uk-england-london-34127740"},{"key":"ref31","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.k2381"},{"key":"ref32","unstructured":"AndaloDThe Pharmaceutical Journal20152019-02-07Pharmacy2u Fined \u00a3130,000 for Selling Patient Data \n          https:\/\/www.pharmaceutical-journal.com\/news-and-analysis\/pharmacy2u-fined-130000-for-selling-patient-data\/20069579.article?firstPass=false"},{"key":"ref33","unstructured":"Healthwatch England20182019-02-07How Do People Feel About Their Data Being Shared by the NHS? \n          https:\/\/www.healthwatch.co.uk\/news\/2018-05-17\/how-do-people-feel-about-their-data-being-shared-nhs"},{"key":"ref34","unstructured":"Information Commissioner's Office20182019-02-07Your Data Matters \u2013 Building Trust and Confidence \n          https:\/\/ico.org.uk\/for-organisations\/resources-and-support\/your-data-matters-campaign\/"},{"key":"ref35","unstructured":"European Commission20182018-10-22EU Data Protection Rules \n          https:\/\/ec.europa.eu\/commission\/priorities\/justice-and-fundamental-rights\/data-protection\/2018-reform-eu-data-protection-rules_en"}],"container-title":["Journal of Medical Internet Research"],"original-title":[],"language":"en","deposited":{"date-parts":[[2019,11,21]],"date-time":"2019-11-21T12:45:42Z","timestamp":1574340342000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.jmir.org\/2019\/9\/e14135"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,9,26]]},"references-count":35,"journal-issue":{"issue":"9","published-online":{"date-parts":[[2019]]}},"URL":"https:\/\/doi.org\/10.2196\/14135","relation":{"has-preprint":[{"id-type":"doi","id":"10.2196\/preprints.14135","asserted-by":"object"}]},"ISSN":["1438-8871"],"issn-type":[{"value":"1438-8871","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,9,26]]}}}