{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T09:49:23Z","timestamp":1767865763912,"version":"3.49.0"},"reference-count":0,"publisher":"University of Porto","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["RED"],"abstract":"<jats:p>The present article emerges from the project \u2018RECAP preterm \u2013 Research on European Children and Adults Born Preterm\u2019 which has received funding from the European Union\u2019s Horizon 2020 research and innovation programme under grant agreement No 733280. Under this project, a report, whose objective was to describe and compare the Challenges and Opportunities of Record-Linkage Processes, was developed by an ISPUP partner and presented in September 2019. Now, we discuss the issue focused on General Data Protection Regulation (GDPR) and national law, with a critical view as to how the legal regime for accessing routinely collected health and educational data and its subsequent processing for research purposes. The main results of this article are the reflection on the difficulties that scientific research faces and the consideration of future legislative changes in a world where data protection is a priority policy concern. Although scientific research in health is recognised by International, European and National law as an asset for the development of society, this article seeks to demonstrate that the possibilities for access and use of personal data, including sensitive data, are not broad.<\/jats:p>","DOI":"10.24840\/2182-9845_2019-0003_0005","type":"journal-article","created":{"date-parts":[[2019,11,4]],"date-time":"2019-11-04T14:54:49Z","timestamp":1572879289000},"page":"88-112","source":"Crossref","is-referenced-by-count":4,"title":["Data protection and the processing of personal data of very preterm (VPT) and very low birth weight (VLBW) children for scientific health research"],"prefix":"10.24840","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8624-3078","authenticated-orcid":false,"given":"In\u00eas","family":"Camarinha Lopes","sequence":"first","affiliation":[{"name":"Faculdade de Direito da Universidade do Porto (FDUP)"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1388-9542","authenticated-orcid":false,"given":"Julia","family":"Doetsch","sequence":"additional","affiliation":[{"name":"Instituto de Sa\u00fade P\u00fablica, Universidade do Porto External PhD student at Maastricht University, Faculty of Health, Medicine and Life Sciences (FHML), School of Public Health and Life Sciences (CAPHRI)"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6216-6266","authenticated-orcid":false,"given":"Maria","family":"Regina Redinha","sequence":"additional","affiliation":[{"name":"Faculdade de Direito da Universidade do Porto (FDUP)"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4699-6571","authenticated-orcid":false,"given":"Henrique","family":"Barros","sequence":"additional","affiliation":[{"name":"Faculdade de Medicina, Universidade do Porto"}]}],"member":"10468","published-online":{"date-parts":[[2019]]},"container-title":["Revista Electr\u00f3nica de Direito"],"original-title":["A prote\u00e7\u00e3o de dados e o processamento de dados pessoais de crian\u00e7as nascidas muito prematuramente ou com peso muito baixo para a investiga\u00e7\u00e3o cient\u00edfica na \u00e1rea da sa\u00fade"],"deposited":{"date-parts":[[2021,3,1]],"date-time":"2021-03-01T17:43:50Z","timestamp":1614620630000},"score":1,"resource":{"primary":{"URL":"https:\/\/cije.up.pt\/\/client\/files\/0000000001\/5-artigo-ines-camarinha-lopes_1214.pdf"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019]]},"references-count":0,"journal-issue":{"issue":"3","published-online":{"date-parts":[[2019]]}},"URL":"https:\/\/doi.org\/10.24840\/2182-9845_2019-0003_0005","relation":{},"ISSN":["2182-9845"],"issn-type":[{"value":"2182-9845","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019]]}}}