{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,13]],"date-time":"2026-02-13T14:51:43Z","timestamp":1770994303918,"version":"3.50.1"},"reference-count":24,"publisher":"Oxford University Press (OUP)","issue":"2","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2016,2,1]]},"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>Pediatric rehabilitation therapy services and mobility aids have an important role in the health of children with special health care needs, and the Affordable Care Act (ACA) may increase coverage for these needs. Identifying the prevalence of and factors associated with therapy and mobility aid needs and unmet needs prior to the full implementation of the ACA will be useful for future evaluation of its impact.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>The purpose of this study was to identify the prevalence of and factors associated with caregiver perceived needs and unmet needs for therapy or mobility aids among children with special health care needs living in the United States.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A cross-sectional, descriptive, multivariate analysis was conducted.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The 2009\u20132010 National Survey of Children With Special Health Care Needs was used to identify a nationally representative sample of children with special health care needs with needs for therapy (weighted n=2,603,605) or mobility aids (weighted n=437,971). Odds of having unmet needs associated with child and family characteristics were estimated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Nearly 1 in 5 children with therapy needs had unmet needs, and nearly 1 in 10 children with mobility aid needs had unmet needs. Unmet needs were most strongly associated with how frequently the condition affected function and being uninsured in the previous year.<\/jats:p><\/jats:sec><jats:sec><jats:title>Limitations<\/jats:title><jats:p>Data were caregiver reported and not verified by clinical assessment. Survey data grouped physical therapy, occupational therapy, and speech therapy; analysis was not discipline specific.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This evidence serves as a baseline about the future impact of the ACA. Pediatric rehabilitation professionals should be aware that children with special health care needs whose condition more frequently affects function and who have insurance discontinuity may need more support to meet therapy or mobility aid needs.<\/jats:p><\/jats:sec>","DOI":"10.2522\/ptj.20150055","type":"journal-article","created":{"date-parts":[[2016,1,11]],"date-time":"2016-01-11T22:03:02Z","timestamp":1452549782000},"page":"222-231","source":"Crossref","is-referenced-by-count":15,"title":["Which Children Are Not Getting Their Needs for Therapy or Mobility Aids Met? Data From the 2009\u20132010 National Survey of Children With Special Health Care Needs"],"prefix":"10.1093","volume":"96","author":[{"given":"Beth M.","family":"McManus","sequence":"first","affiliation":[{"name":"B.M. 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Data Resource Center for Child and Adolescent Health. Available at: http:\/\/www.childhealthdata.org. Accessed August 20, 2015."},{"key":"2019123002480089900_B7","first-page":"1","article-title":"Design and operation of the National Survey of Children With Special Health Care Needs, 2009\u20132010","author":"Bramlett","year":"2014","journal-title":"Vital Health Stat 1"},{"key":"2019123002480089900_B8","unstructured":"Child and Adolescent Health Measurement Initiative (CAHMI), \u201c2009\u20132010 NS-CSHCN Indicator and Outcome Variables SPSS Codebook, Version 1,\u201d 2012, Data Resource Center for Child and Adolescent Health. Available at: http:\/\/childhealthdata.org\/docs\/drc\/200910-cshcn-spss-codebook_final_051012_pdf. Accessed August 20, 2015."},{"key":"2019123002480089900_B9","doi-asserted-by":"crossref","first-page":"S368","DOI":"10.1542\/peds.2009-1255G","article-title":"The effect of state early intervention eligibility policy on participation among a cohort of young CSHCN","volume":"124","author":"McManus","year":"2009","journal-title":"Pediatrics"},{"key":"2019123002480089900_B10","doi-asserted-by":"crossref","first-page":"1031","DOI":"10.1007\/s10995-013-1332-8","article-title":"Restricting state part C eligibility policy is associated with lower early intervention utilization","volume":"18","author":"McManus","year":"2014","journal-title":"Matern Child Health J"},{"key":"2019123002480089900_B11","doi-asserted-by":"crossref","first-page":"1373","DOI":"10.1016\/S0895-4356(96)00236-3","article-title":"A simulation study of the number of events per variable in logistic regression analysis","volume":"49","author":"Peduzzi","year":"1996","journal-title":"J Clin Epidemiol"},{"key":"2019123002480089900_B12","volume-title":"SAS","year":"2002\u20132003"},{"key":"2019123002480089900_B13","doi-asserted-by":"crossref","first-page":"128","DOI":"10.1016\/j.acap.2009.11.006","article-title":"Internal psychometric properties of the Children With Special Health Care Needs Screener","volume":"11","author":"Carle","year":"2011","journal-title":"Acad Pediatr"},{"key":"2019123002480089900_B14","doi-asserted-by":"crossref","first-page":"787","DOI":"10.1542\/peds.91.4.787","article-title":"Issues involved in the definition and classification of chronic health conditions","volume":"91","author":"Perrin","year":"1993","journal-title":"Pediatrics"},{"key":"2019123002480089900_B15","article-title":"Capturing Unmet Therapy Need Among Young Children With Developmental Delay Using National Survey Data","author":"Magnusson","year":"2015","journal-title":"Acad Pediatr"},{"key":"2019123002480089900_B16","doi-asserted-by":"crossref","first-page":"1411","DOI":"10.2522\/ptj.20110373","article-title":"Factors associated with physical therapy services received for individuals with cerebral palsy in an outpatient pediatric medical setting","volume":"92","author":"Bailes","year":"2012","journal-title":"Phys Ther"},{"key":"2019123002480089900_B17","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1111\/j.1365-2214.2009.01030.x","article-title":"Family needs of parents of children and youth with cerebral palsy","volume":"36","author":"Palisano","year":"2010","journal-title":"Child Care Health Dev"},{"key":"2019123002480089900_B18","doi-asserted-by":"crossref","first-page":"210","DOI":"10.3109\/09638288.2013.783123","article-title":"Predictors of needs for families of children with cerebral palsy","volume":"36","author":"Almasri","year":"2014","journal-title":"Disabil Rehabil"},{"key":"2019123002480089900_B19","doi-asserted-by":"crossref","first-page":"1485","DOI":"10.1542\/peds.113.S4.1485","article-title":"Access to the medical home: results of the National Survey of Children With Special Health Care Needs","volume":"113","author":"Strickland","year":"2004","journal-title":"Pediatrics"},{"key":"2019123002480089900_B20","doi-asserted-by":"crossref","first-page":"207","DOI":"10.1007\/s10995-005-4870-x","article-title":"Financial burden for families of children with special health care needs","volume":"9","author":"Kuhlthau","year":"2005","journal-title":"Matern Child Health J"},{"key":"2019123002480089900_B21","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1007\/s10995-008-0434-1","article-title":"The well-being of parental caregivers of children with activity limitations","volume":"14","author":"Kuhlthau","year":"2010","journal-title":"Matern Child Health J"},{"key":"2019123002480089900_B22","doi-asserted-by":"crossref","first-page":"150","DOI":"10.1016\/j.socscimed.2006.08.025","article-title":"\u201cWe're tired, not sad\u201d: benefits and burdens of mothering a child with a disability","volume":"64","author":"Green","year":"2007","journal-title":"Soc Sci Med"},{"key":"2019123002480089900_B23","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1016\/j.acap.2015.02.002","article-title":"Assuring adequate health insurance for children with special health care needs: progress from 2001 to 2009\u20132010","volume":"15","author":"Ghandour","year":"2015","journal-title":"Acad Pediatr"},{"key":"2019123002480089900_B24","doi-asserted-by":"crossref","first-page":"S33","DOI":"10.1007\/s10995-005-3856-z","article-title":"Are rates of functional limitations associated with access to care? 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