{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T15:14:15Z","timestamp":1788275655427,"version":"build-2803163510"},"reference-count":37,"publisher":"Scientific Scholar","content-domain":{"domain":["jpalliativecare.com"],"crossmark-restriction":true},"short-container-title":["IJPC"],"abstract":"\n Objectives:<\/jats:title>\n Palliative care aims to enhance the quality of life for patients facing terminal or life-threatening illnesses. Unfortunately, many patients encounter difficulties in understanding their condition, treatment processes and available care options due to limited access to clear and relevant information. This often leads to confusion, disrupted decision-making and increased anxiety. This study aimed to explore patient experiences and information needs in the context of palliative care.<\/jats:p>\n <\/jats:sec>\n \n Materials and Methods:<\/jats:title>\n A qualitative descriptive design was employed, involving 20 participants, consisting of 10 palliative patients and 10 family members, to triangulate data sources. Participants were selected through purposive sampling based on predefined inclusion criteria. Data were collected through semi-structured face-to-face interviews and analysed using thematic analysis.<\/jats:p>\n <\/jats:sec>\n \n Results:<\/jats:title>\n Five main themes with 10 subthemes were identified: (1) Sources of information about palliative care: information from physicians and nurses, information from family members and information from friends or community; (2) Alternative sources of health information included the internet (e.g., Google, websites) and educational videos on social media platforms (e.g., YouTube and TikTok); (3) Facilitators in accessing health information: Direct information provided by physicians and support from family members in obtaining information; (4) Barriers in understanding health information: difficulty understanding medical terminology and (5) Expectations for the Use of Digital Technology: easily accessible online health information and Digital applications or platforms for communication with healthcare professionals.<\/jats:p>\n <\/jats:sec>\n \n Conclusion:<\/jats:title>\n Patient experiences in accessing palliative care information are shaped by interactions with doctors, family members and communities, while the internet and social media serve as additional sources. Most patients reported no difficulties due to the support of healthcare providers and their families. However, medical terminology created barriers to comprehension. Patients expressed strong expectations for hospitals to implement digital technologies to enhance access to information and continuity of care.<\/jats:p>\n <\/jats:sec>","DOI":"10.25259\/ijpc_351_2025","type":"journal-article","created":{"date-parts":[[2026,8,4]],"date-time":"2026-08-04T10:40:41Z","timestamp":1785840041000},"page":"304-311","update-policy":"https:\/\/doi.org\/10.25259\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Patient Experiences and Information Needs in Palliative Care: A Qualitative Descriptive Study"],"prefix":"10.25259","volume":"32","author":[{"given":"Ni Luh Putu Inca Buntari","family":"Agustini","sequence":"first","affiliation":[{"name":"Department of Nursing, Institute of Technology and Health Bali, Denpasar, Indonesia,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Israfil","family":"Israfil","sequence":"additional","affiliation":[{"name":"Department of Nursing, Institute of Technology and Health Bali, Denpasar, Indonesia,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"I Gede Putu Darma","family":"Suyasa","sequence":"additional","affiliation":[{"name":"Department of Nursing, Institute of Technology and Health Bali, Denpasar, Indonesia,"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"10894","published-online":{"date-parts":[[2026,8,4]]},"reference":[{"key":"10.25259\/IJPC_351_2025\/ref-1","doi-asserted-by":"publisher","first-page":"23779608221117379","DOI":"10.1177\/23779608221117379","article-title":"Palliative care: A concept analysis review","volume":"8","author":"Wantonoro","year":"2022","journal-title":"SAGE Open Nurs"},{"key":"10.25259\/IJPC_351_2025\/ref-2","doi-asserted-by":"publisher","first-page":"162","DOI":"10.1186\/s12904-021-00854-8","article-title":"How nurses support family caregivers in the complex context of end-of-life home care: A qualitative study","volume":"20","author":"Becqu\u00e9","year":"2021","journal-title":"BMC Palliat Care"},{"key":"10.25259\/IJPC_351_2025\/ref-3","doi-asserted-by":"publisher","first-page":"209","DOI":"10.1080\/09699260.2021.1872135","article-title":"The experiences of well-being of family caregivers in palliative care: A qualitative study using thematic analysis","volume":"29","author":"Beng","year":"2021","journal-title":"Prog Palliat Care"},{"key":"10.25259\/IJPC_351_2025\/ref-4","article-title":"Palliative care","author":"WHO","year":"2023"},{"key":"10.25259\/IJPC_351_2025\/ref-5","article-title":"Palliative care","author":"WHO","year":"2020"},{"key":"10.25259\/IJPC_351_2025\/ref-6","doi-asserted-by":"publisher","first-page":"20251250","DOI":"10.31584\/jhsmr.20251250","article-title":"Mapping care in Indonesia: A scoping review of availability, accessibility, and quality","volume":"44","author":"Koh","year":"2025","journal-title":"J Health Sci Med Res"},{"key":"10.25259\/IJPC_351_2025\/ref-7","doi-asserted-by":"publisher","first-page":"2","DOI":"10.20935\/MHealthWellB7768","article-title":"Practical end-of-life recommendations for primary care to support dying with dignity","volume":"2","author":"Lionis","year":"2025","journal-title":"Acad Ment Health Well-Being"},{"key":"10.25259\/IJPC_351_2025\/ref-8","doi-asserted-by":"publisher","first-page":"70","DOI":"10.1186\/s12904-025-01706-5","article-title":"Enhancing end-of-life care in Ghana: Nurse strategies and practices in addressing patient needs","volume":"24","author":"Osei","year":"2025","journal-title":"BMC Palliat Care"},{"key":"10.25259\/IJPC_351_2025\/ref-9","doi-asserted-by":"publisher","first-page":"365","DOI":"10.3390\/nursrep12020035","article-title":"Monitoring and management of the palliative care patient symptoms: A best practice implementation project","volume":"12","author":"Coelho","year":"2022","journal-title":"Nurs Rep"},{"key":"10.25259\/IJPC_351_2025\/ref-10","doi-asserted-by":"publisher","first-page":"166","DOI":"10.1186\/s12904-024-01493-5","article-title":"The meaning of culture in nursing at the end of life-an interview study with nurses in specialized palliative care","volume":"23","author":"Mian","year":"2024","journal-title":"BMC Palliat Care"},{"key":"10.25259\/IJPC_351_2025\/ref-11","doi-asserted-by":"publisher","first-page":"124","DOI":"10.1186\/s12904-025-01759-6","article-title":"Managing cultural diversity in end-of-life care: A qualitative study","volume":"24","author":"C\u00e1ceres-Titos","year":"2025","journal-title":"BMC Palliat Care"},{"key":"10.25259\/IJPC_351_2025\/ref-12","doi-asserted-by":"publisher","first-page":"151720","DOI":"10.1016\/j.apnr.2023.151720","article-title":"How do cultural factors influence the provision of end-of-life care? 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