{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,8]],"date-time":"2025-12-08T07:17:06Z","timestamp":1765178226942,"version":"3.28.0"},"reference-count":17,"publisher":"Scientific Scholar","content-domain":{"domain":["jpalliativecare.com"],"crossmark-restriction":true},"short-container-title":["IJPC"],"abstract":"<jats:sec id=\"st1\">\n<jats:title>Objectives:<\/jats:title>\n<jats:p>Mortality is a common gauged endpoint in critically ill patients. Reduced quality of life is an aligned repercussion of protracted critical illness. Baseline status, severity of illness and its trajectory influence the outcomes. Patient-oriented outcomes are those that matter the most to a patient. However, quite often, family approves of trade-offs with survivorship in the Indian context. We looked at non-mortality outcomes in patients on high-intensity life-sustaining interventions admitted to the intensive care unit (ICU) despite poor prognosis and died on full support or survived to be completely dependent.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"st2\">\n<jats:title>Materials and Methods:<\/jats:title>\n<jats:p>In this retrospective chart review study, we studied patients (1) who spent more than 1 month in the hospital enduring a myriad of distressing physical and psychological vicissitudes, (2) whose primary illness was fairly advanced (3) and either succumbed or survived to be impeded in their response to cognitive assessment and with severe functional impairment. Patient demographics, comorbidities, pre-morbid functional status, burden of critical illness, use of life-sustaining therapies, functional dependence in the last week of ICU stay, best neurological status in the last week pre-death or discharge, dying trajectories and economic analysis were noted.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"st3\">\n<jats:title>Results:<\/jats:title>\n<jats:p>Trends of clinical progress of 23 patients were deliberated. The mean age of males was 65 years and 61 years for females. Five patients had a Barthel index score of 10\u201320, indicating total dependency and two patients had a score of 21\u201360, indicating severe dependency. Two patients were cognitively impaired at baseline. The worst neurological status in the week before death or discharge was eye1, motor1, and verbaltracheostomised. Thirteen patients succumbed during ongoing treatment.<\/jats:p>\n<\/jats:sec>\n<jats:sec id=\"st4\">\n<jats:title>Conclusion:<\/jats:title>\n<jats:p>Daily discussions on the dynamics of illness progression need to take place with family on a regular basis for patients managed in ICU. Realistic perceptions and grounded expectations from the families and caregivers are necessary for patient-centred outcomes.<\/jats:p>\n<\/jats:sec>","DOI":"10.25259\/ijpc_48_2024","type":"journal-article","created":{"date-parts":[[2024,11,15]],"date-time":"2024-11-15T07:07:21Z","timestamp":1731654441000},"page":"366-374","update-policy":"http:\/\/dx.doi.org\/10.25259\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Quality of Life as a Non-mortality Patient-centred Outcome in the Critically Ill: A Retrospective Analysis"],"prefix":"10.25259","volume":"30","author":[{"given":"Sonali","family":"Vadi","sequence":"first","affiliation":[{"name":"Intensive Care Unit, Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute, Mumbai, Maharashtra, India,"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shreya","family":"Gudka","sequence":"additional","affiliation":[{"name":"Intensive Care Unit, Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute, Mumbai, Maharashtra, India,"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Priyadarshini","family":"Deo","sequence":"additional","affiliation":[{"name":"Department of Cancer and Palliative Care, Kokilaben Dhirubhai Ambani Hospital and Medical Research Institute, Mumbai, Maharashtra, India,"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"10894","published-online":{"date-parts":[[2024,11,15]]},"reference":[{"key":"10.25259\/IJPC_48_2024\/ref-1","doi-asserted-by":"publisher","first-page":"479","DOI":"10.1111\/j.1365-2044.1985.tb10852.x","article-title":"Hard Questions in Intensive Care. A Moralist Answers Questions Put to Him at a Meeting of the Intensive Care Society, Autumn, 1984","volume":"40","author":"Dunstan","year":"1985","journal-title":"Anaesthesia"},{"key":"10.25259\/IJPC_48_2024\/ref-2","doi-asserted-by":"publisher","first-page":"75","DOI":"10.1016\/S0885-3924(98)00134-1","article-title":"Research Agenda for Developing Measures to Examine Quality of Care and Quality of Life of Patients Diagnosed with Life-Limiting Illness","volume":"17","author":"Teno","year":"1999","journal-title":"J Pain Symptom Manage"},{"key":"10.25259\/IJPC_48_2024\/ref-3","doi-asserted-by":"publisher","first-page":"455","DOI":"10.1016\/0021-9681(84)90029-8","article-title":"The Value of Measuring Severity of Disease in Clinical Research on Acutely Ill Patients","volume":"37","author":"Knaus","year":"1984","journal-title":"J Chronic Dis"},{"key":"10.25259\/IJPC_48_2024\/ref-4","doi-asserted-by":"publisher","first-page":"93","DOI":"10.1016\/S0885-3924(98)00131-6","article-title":"The Concept of Quality of Life of Dying Persons in the Context of Health Care","volume":"17","author":"Stewart","year":"1999","journal-title":"J Pain Symptom Manage"},{"key":"10.25259\/IJPC_48_2024\/ref-5","doi-asserted-by":"publisher","first-page":"818","DOI":"10.1097\/00003246-198510000-00009","article-title":"APACHE II: A Severity of Disease Classification System","volume":"13","author":"Knaus","year":"1985","journal-title":"Crit Care Med"},{"key":"10.25259\/IJPC_48_2024\/ref-6","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1037\/t02366-000","article-title":"Functional Evaluation: The Barthel Index","volume":"14","author":"Mahoney","year":"1965","journal-title":"Md State Med J"},{"key":"10.25259\/IJPC_48_2024\/ref-7","doi-asserted-by":"publisher","DOI":"10.7249\/WP137","article-title":"Living Well at the End of Life: Adapting Health Care to Serious Chronic Illness in Old Age. White Paper","author":"Lynn","year":"2003","journal-title":"RAND Health"},{"key":"10.25259\/IJPC_48_2024\/ref-8","doi-asserted-by":"publisher","first-page":"39","DOI":"10.7861\/clinmedicine.4-1-39","article-title":"Patterns of Dying: Palliative Care for Non-Malignant Disease","volume":"4","author":"Murtagh","year":"2004","journal-title":"Clin Med (Lond)"},{"key":"10.25259\/IJPC_48_2024\/ref-9","doi-asserted-by":"publisher","first-page":"1007","DOI":"10.1136\/bmj.330.7498.1007","article-title":"Illness Trajectories and Palliative Care","volume":"330","author":"Murray","year":"2005","journal-title":"BMJ"},{"key":"10.25259\/IJPC_48_2024\/ref-10","doi-asserted-by":"publisher","first-page":"394","DOI":"10.1097\/MCC.0000000000000530","article-title":"Outcomes of Critical Illness: What is Meaningful?","volume":"24","author":"Gajic","year":"2018","journal-title":"Curr Opin Crit Care"},{"key":"10.25259\/IJPC_48_2024\/ref-11","doi-asserted-by":"publisher","first-page":"1591","DOI":"10.1016\/j.jpainsymman.2018.02.005","article-title":"Beyond Pain: Nurses' Assessment of Patient Suffering, Dignity, and Dying in the Intensive Care Unit","volume":"55","author":"Su","year":"2018","journal-title":"J Pain Symptom Manage"},{"key":"10.25259\/IJPC_48_2024\/ref-12","doi-asserted-by":"publisher","first-page":"717","DOI":"10.1016\/S0885-3924(01)00333-5","article-title":"Evaluating the Quality of Dying and Death","volume":"22","author":"Patrick","year":"2001","journal-title":"J Pain Symptom Manage"},{"key":"10.25259\/IJPC_48_2024\/ref-13","doi-asserted-by":"publisher","first-page":"e657","DOI":"10.1016\/S2589-7500(23)00128-0","article-title":"Illness Severity Assessment of Older Adults in Critical Illness using Machine Learning (ELDER-ICU): An International Multicentre Study with Subgroup Bias Evaluation","volume":"5","author":"Liu","year":"2023","journal-title":"Lancet Digit Health"},{"key":"10.25259\/IJPC_48_2024\/ref-14","doi-asserted-by":"publisher","first-page":"1993","DOI":"10.1001\/archinte.166.18.1993","article-title":"Brain Dysfunction: Another Burden for the Chronically Critically Ill","volume":"166","author":"Nelson","year":"2006","journal-title":"Arch Intern Med"},{"key":"10.25259\/IJPC_48_2024\/ref-15","doi-asserted-by":"publisher","first-page":"92","DOI":"10.1186\/s13613-016-0187-8","article-title":"Assessment and Predictors of Physical Functioning Post-Hospital Discharge in Survivors of Critical Illness","volume":"6","author":"Solverson","year":"2016","journal-title":"Ann Intensive Care"},{"key":"10.25259\/IJPC_48_2024\/ref-16","doi-asserted-by":"publisher","first-page":"401","DOI":"10.1097\/MCC.0000000000000533","article-title":"Understanding Patient-Important Outcomes After Critical Illness: A Synthesis of Recent Qualitative, Empirical, and Consensus-Related Studies","volume":"24","author":"Dinglas","year":"2018","journal-title":"Curr Opin Crit Care"},{"key":"10.25259\/IJPC_48_2024\/ref-17","doi-asserted-by":"publisher","first-page":"126","DOI":"10.1186\/s13054-022-03993-3","article-title":"Effects on Health-Related Quality Oflife of Interventions Affecting Survival in Critically Ill Patients: A Systematic Review","volume":"26","author":"Pallanch","year":"2022","journal-title":"Crit Care"}],"container-title":["Indian Journal of Palliative Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/jpalliativecare.com\/quality-of-life-as-a-non-mortality-patient-centred-outcome-in-the-critically-ill-a-retrospective-analysis\/","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/jpalliativecare.com\/quality-of-life-as-a-non-mortality-patient-centred-outcome-in-the-critically-ill-a-retrospective-analysis\/","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,11,15]],"date-time":"2024-11-15T07:07:25Z","timestamp":1731654445000},"score":1,"resource":{"primary":{"URL":"https:\/\/jpalliativecare.com\/quality-of-life-as-a-non-mortality-patient-centred-outcome-in-the-critically-ill-a-retrospective-analysis\/"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,11,15]]},"references-count":17,"alternative-id":["10.25259\/IJPC_48_2024"],"URL":"https:\/\/doi.org\/10.25259\/ijpc_48_2024","relation":{},"ISSN":["1998-3735","0973-1075"],"issn-type":[{"value":"1998-3735","type":"electronic"},{"value":"0973-1075","type":"print"}],"subject":[],"published":{"date-parts":[[2024,11,15]]},"article-number":"366"}}