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The major goals for transitioning adult patients with spina bifida are preservation of function and promotion of independence as well as general overall health. Nevertheless, many gaps exist in our knowledge and understanding of the complex needs of this aging patient population. The goal of this paper was to provide a comprehensive updated review of the literature regarding the challenges and considerations involved in the transitional care to adulthood for patients with spina bifida. Unique to this review, the authors provide a first-hand personal communication and interview with an adult patient with spina bifida that discusses many of these challenges with transition.<\/jats:p>","DOI":"10.3171\/2019.7.focus19441","type":"journal-article","created":{"date-parts":[[2019,10,4]],"date-time":"2019-10-04T19:23:37Z","timestamp":1570217017000},"page":"E16","source":"Crossref","is-referenced-by-count":32,"title":["Growing up with spina bifida: bridging the gaps in the transition of care from childhood to adulthood"],"prefix":"10.3171","volume":"47","author":[{"given":"Smruti K.","family":"Patel","sequence":"first","affiliation":[{"name":"Department of Neurological Surgery, University of Cincinnati College of Medicine; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brittany","family":"Staarmann","sequence":"additional","affiliation":[{"name":"Department of Neurological Surgery, University of Cincinnati College of Medicine; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alexander","family":"Heilman","sequence":"additional","affiliation":[{"name":"Department of Neurological Surgery, University of Cincinnati College of Medicine; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Allie","family":"Mains","sequence":"additional","affiliation":[{"name":"Department of Neurological Surgery, University of Cincinnati College of Medicine; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jason","family":"Woodward","sequence":"additional","affiliation":[{"name":"Center for Spina Bifida Care, Division of Developmental and Behavioral Pediatrics, and"},{"name":"Transition Medicine, Division of Adolescent and Transition Medicine, Cincinnati Children\u2019s Hospital Medical Center, Cincinnati, Ohio"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karin S.","family":"Bierbrauer","sequence":"additional","affiliation":[{"name":"Department of Neurological Surgery, University of Cincinnati College of Medicine; and"},{"name":"Division of Pediatric Neurological Surgery,"},{"name":"Center for Spina Bifida Care, Division of Developmental and Behavioral Pediatrics, and"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1754","reference":[{"key":"b1","series-title":"N Engl J Med","doi-asserted-by":"publisher","first-page":"993","DOI":"10.1056\/NEJMoa1014379","article-title":"A randomized trial of prenatal versus postnatal repair of myelomeningocele","volume":"364","author":"Adzick NS","year":"2011","unstructured":"Adzick NS, Thom EA, Spong CY, Brock JW III, Burrows PK, Johnson MP, : A randomized trial of prenatal versus postnatal repair of myelomeningocele. 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