{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,22]],"date-time":"2026-10-22T03:38:58Z","timestamp":1792640338370,"version":"4.5.0"},"reference-count":34,"publisher":"Journal of Neurosurgery Publishing Group (JNSPG)","issue":"2","license":[{"start":{"date-parts":[[2023,8,1]],"date-time":"2023-08-01T00:00:00Z","timestamp":1690848000000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023,8,1]]},"abstract":"<jats:sec>\n<jats:title>OBJECTIVE<\/jats:title>\n<jats:p>The aim of this initiative was to develop a ranked list of hydrocephalus research priorities as determined by the hydrocephalus patient community in conjunction with the healthcare and scientific community.<\/jats:p>\n<\/jats:sec>\n<jats:sec>\n<jats:title>METHODS<\/jats:title>\n<jats:p>Using the validated methodology published by the James Lind Alliance (JLA), the Hydrocephalus Association (HA) administered two surveys and hosted a final prioritization workshop. Survey One solicited open-ended responses from the community. From these responses, a long list of priority statements was developed. This list was then consolidated into a short list of research priority statements, which, after a nonsystematic literature review, were verified as being research uncertainties. Survey Two asked the community members to select their top 10 priorities from the short list. The final prioritization leading to a final ranked top 20 list of hydrocephalus research priorities took place at a virtual workshop led by a team of trained facilitators, by means of an iterative process of consensus building.<\/jats:p>\n<\/jats:sec>\n<jats:sec>\n<jats:title>RESULTS<\/jats:title>\n<jats:p>From Survey One, 3703 responses from 890 respondents were collected, leading to a long list of 146 priority statements. The consolidated short list contained 49 research priority statements, all of which were verified as uncertainties in hydrocephalus research. From an analysis of Survey Two responses, the top 21 research priority statements were determined. A consensus on these statements was reached at the virtual workshop, leading to a final ranked top 20 list of hydrocephalus research priorities, within which needs were apparent in several areas: development of noninvasive and\/or one-time therapies, reduction of the burden of current treatments, improvement of the screening and diagnosis of hydrocephalus, improved quality of life, and improved access to care.<\/jats:p>\n<\/jats:sec>\n<jats:sec>\n<jats:title>CONCLUSIONS<\/jats:title>\n<jats:p>By gathering extensive input from the hydrocephalus community and using an iterative process of consensus building, a ranked list of the top 20 hydrocephalus research priorities was developed. The HA will use this ranked list to guide future research programs and encourages the healthcare and scientific community to do the same.<\/jats:p>\n<\/jats:sec>","DOI":"10.3171\/2022.10.jns22753","type":"journal-article","created":{"date-parts":[[2022,12,23]],"date-time":"2022-12-23T11:16:36Z","timestamp":1671794196000},"page":"492-501","source":"Crossref","is-referenced-by-count":12,"title":["Establishing ranked priorities for future hydrocephalus research"],"prefix":"10.3171","volume":"139","author":[{"given":"Noriana E.","family":"Jakopin","sequence":"first","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"},{"name":"University of Maryland, College Park, Maryland;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elliot","family":"Myong","sequence":"additional","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"},{"name":"University of Southern California, Los Angeles, California;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Trish","family":"Bogucki","sequence":"additional","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Diana","family":"Gray","sequence":"additional","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paul","family":"Gross","sequence":"additional","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"},{"name":"Cerebral Palsy Research Network, Greenville, South Carolina;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J. Gordon","family":"McComb","sequence":"additional","affiliation":[{"name":"University of Southern California, Los Angeles, California;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chevis N.","family":"Shannon","sequence":"additional","affiliation":[{"name":"Department of Neurosurgery, University of Alabama at Birmingham, Alabama;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mandeep S.","family":"Tamber","sequence":"additional","affiliation":[{"name":"Department of Surgery, University of British Columbia, Vancouver, British Columbia, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maiko","family":"Toyama","sequence":"additional","affiliation":[{"name":"Edwards Lifesciences, Irvine, California; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tessa","family":"van der Willigen","sequence":"additional","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amir","family":"Yazdani","sequence":"additional","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark G.","family":"Hamilton","sequence":"additional","affiliation":[{"name":"Department of Clinical Neurosciences, Division of Neurosurgery, Cumming School of Medicine, University of Calgary, Alberta, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenna E.","family":"Koschnitzky","sequence":"additional","affiliation":[{"name":"Hydrocephalus Association, Bethesda, Maryland;"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1754","reference":[{"issue":"3","key":"b1","series-title":"J Neurosurg Pediatr","first-page":"260","article-title":"Trends in hospitalization of preterm infants with intraventricular hemorrhage and hydrocephalus in the United States, 2000\u20132010","volume":"17","author":"Christian EA","year":"2016","unstructured":"Christian EA, Jin DL, Attenello F,  Trends in hospitalization of preterm infants with intraventricular hemorrhage and hydrocephalus in the United States, 2000\u20132010. 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