{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,5]],"date-time":"2026-09-05T04:08:02Z","timestamp":1788581282963,"version":"build-2803163510"},"reference-count":58,"publisher":"Journal of Neurosurgery Publishing Group (JNSPG)","issue":"2","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,8,1]]},"abstract":"<jats:sec>\n                    <jats:title>OBJECTIVE<\/jats:title>\n                    <jats:p>The purpose of this study was to conduct a literature review on transition programs from pediatric to adult care and the role of neurosurgery as individuals with spina bifida (SB) transition, and to provide a framework for neurosurgical providers to assist in the transition to adult-centered care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>METHODS<\/jats:title>\n                    <jats:p>A comprehensive literature review was conducted according to the PRISMA statement, with a search in Medline and Embase to identify US clinical programs reporting on their experiences establishing a transition program for adolescents and young adults with SB. Data were collected for authors, year, transition clinic location, model of care for transition clinic, ages served, and specialty clinical team.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>RESULTS<\/jats:title>\n                    <jats:p>The literature search yielded 698 articles, 5 of which met the inclusion criteria. These 5 studies included 4 transition programs for which models of care and approach to transition, clinical services involved, establishment of goals, and age of initiation and transition were identified. All programs described setting transition goals, ranging from community services, to self-management, to health care navigation, to patient-driven goals, with 1 program reporting a quality-of-life measurement component to their model.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>CONCLUSIONS<\/jats:title>\n                    <jats:p>Robust SB transition programs can be established by applying the expanded chronic care model, reviewing lessons learned by other programs, advocating at the institutional level, and seeking support via professional organizations. While the comprehensive role of neurosurgical providers in these programs is still being defined, a shared vision of enhancing the health and quality of life for individuals with SB and their families is needed by all subspecialists involved.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3171\/2024.5.focus24253","type":"journal-article","created":{"date-parts":[[2024,8,1]],"date-time":"2024-08-01T07:41:17Z","timestamp":1722498077000},"page":"E7","source":"Crossref","is-referenced-by-count":3,"title":["Health care transition models in spina bifida care: evidence-based lessons in support of neurosurgical practice"],"prefix":"10.3171","volume":"57","author":[{"given":"Juan F.","family":"Lozano-Ramirez","sequence":"first","affiliation":[{"name":"Instituto de Pediatria, Hospital Zambrano Hellion-TecSalud, Tecnologico de Monterrey, Escuela de Medicina y Ciencias de la Salud, Monterrey, Nuevo Leon, Mexico;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heidi","family":"Castillo","sequence":"additional","affiliation":[{"name":"Developmental Medicine, University of Nebraska Medical Center, Omaha, Nebraska;"},{"name":"Department of Obstetrics and Gynecology, Baylor College of Medicine, Houston, Texas;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary M.","family":"Locastro","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Spina Bifida Center of Central New York, SUNY Upstate Medical University, Syracuse, New York;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Grace Y.","family":"Lai","sequence":"additional","affiliation":[{"name":"Department of Neurosurgery, Division of Pediatric Neurosurgery, University of Nebraska Medical Center and Children\u2019s Hospital, Omaha, Nebraska;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Viachaslau","family":"Bradko","sequence":"additional","affiliation":[{"name":"Developmental Medicine, University of Nebraska Medical Center, Omaha, Nebraska;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Jarosz","sequence":"additional","affiliation":[{"name":"Department of Surgery, Division of Pediatric Urology, Texas Children\u2019s Hospital and Scott Department of Urology, Baylor College of Medicine, Houston, Texas;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"William E.","family":"Whitehead","sequence":"additional","affiliation":[{"name":"Department of Neurosurgery, Baylor College of Medicine, Texas Children\u2019s Hospital, Houston, Texas; and"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Betsy","family":"Hopson","sequence":"additional","affiliation":[{"name":"Department of Medicine and Neurosurgery, University of Alabama at Birmingham, Alabama"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan","family":"Castillo","sequence":"additional","affiliation":[{"name":"Developmental Medicine, University of Nebraska Medical Center, Omaha, Nebraska;"},{"name":"Department of Obstetrics and Gynecology, Baylor College of Medicine, Houston, Texas;"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1754","reference":[{"issue":"1","key":"b1","series-title":"Am J Public Health","first-page":"e24","article-title":"Global birth prevalence of spina bifida by folic acid fortification status: a systematic review and meta-analysis","volume":"106","author":"Atta CAM","year":"2016","unstructured":"Atta CAM, Fiest KM, Frolkis AD,  Global birth prevalence of spina bifida by folic acid fortification status: a systematic review and meta-analysis. Am J Public Health. 2016;106(1):e24\u2013e34."},{"issue":"18","key":"b2","series-title":"Birth Defects Res","first-page":"1420","article-title":"National population-based estimates for major birth defects, 2010-2014","volume":"111","author":"Mai CT","year":"2019","unstructured":"Mai CT, Isenburg JL, Canfield MA,  National population-based estimates for major birth defects, 2010-2014. Birth Defects Res. 2019;111(18):1420\u20131435."},{"issue":"4","key":"b3","series-title":"J Pediatr Rehabil Med","first-page":"323","article-title":"The development of a lifetime care model in comprehensive spina bifida care","volume":"11","author":"Hopson B","year":"2018","unstructured":"Hopson B, Rocque BG, Joseph DB,  The development of a lifetime care model in comprehensive spina bifida care. J Pediatr Rehabil Med. 2018;11(4):323\u2013334."},{"issue":"11","key":"b4","series-title":"N Engl J Med","first-page":"993","article-title":"A randomized trial of prenatal versus postnatal repair of myelomeningocele","volume":"364","author":"Adzick NS","year":"2011","unstructured":"Adzick NS, Thom EA, Spong CY,  A randomized trial of prenatal versus postnatal repair of myelomeningocele. N Engl J Med. 2011;364(11):993\u20131004."},{"issue":"4","key":"b5","series-title":"JAMA Pediatr","first-page":"e205674","article-title":"Prenatal repair and physical functioning among children with myelomeningocele: a secondary analysis of a randomized clinical trial","volume":"175","author":"Houtrow AJ","year":"2021","unstructured":"Houtrow AJ, MacPherson C, Jackson-Coty J,  Prenatal repair and physical functioning among children with myelomeningocele: a secondary analysis of a randomized clinical trial. 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Centers for Disease Control and Prevention; 2017."},{"issue":"2","key":"b16","series-title":"Disabil Health J","first-page":"100883","article-title":"Philosophy of care delivery for spina bifida","volume":"13","author":"Thibadeau J","year":"2020","unstructured":"Thibadeau J, Walker WO Jr, Castillo J,  Philosophy of care delivery for spina bifida. Disabil Health J. 2020;13(2):100883."},{"issue":"4","key":"b17","series-title":"J Pediatr Rehabil Med","first-page":"337","article-title":"Primary care providers and medical homes for individuals with spina bifida","volume":"1","author":"Walker WO Jr","year":"2008","unstructured":"Walker WO Jr. Primary care providers and medical homes for individuals with spina bifida. 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