{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,22]],"date-time":"2025-02-22T05:35:20Z","timestamp":1740202520419,"version":"3.37.3"},"reference-count":0,"publisher":"IOS Press","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2011]]},"abstract":"<jats:p>Background: Primary care is computerized with routine data recorded at the point or care. Secondary use of these data includes: genetic study, epidemiology and clinical trials. However, there are relatively few international studies. Objective: To identify the concepts that might predict readiness to collaborate in international research using routinely collected primary care data Method: Literature review and data gathering exercise, from international Primary Care Informatics working group workshops, and email modified Delphi exercise. Results: To establish whether primary care data are fit for use in a collaborative study information is needed at the micro-, meso-, and macro-level. At the micro- or data level we need to use documented standards for interoperability, computerized records, to facilitate linkage of data. At the meso-level we need to understand the nature of the electronic patient record (EPR) and specific study requirements. At the macro-level: health system, social and cultural context constrain what data are available. The framework defines the information needed at the point of expression of interest, and joining a study. The initial assessment of readiness should be by self-assessment followed by an in depth appraisal more immediately prior to the start of the study. Finally, a sensitivity analysis should be conducted to test the robustness of the data model. Conclusions: The literature focuses on technical issues: interoperability, EPR and modeling; the workshops on socio-cultural and organizational. This framework will form the basis for developing a survey instrument of the initial assessment of readiness for collaboration in international research.<\/jats:p>","DOI":"10.3233\/978-1-60750-735-2-135","type":"book-chapter","created":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T15:10:01Z","timestamp":1740150601000},"source":"Crossref","is-referenced-by-count":0,"title":["What are the Barriers to Conducting International Research Using Routinely Collected Primary Care Data?"],"prefix":"10.3233","author":[{"family":"de Lusignan Simon","sequence":"additional","affiliation":[]},{"family":"Pearce Christopher","sequence":"additional","affiliation":[]},{"family":"Shaw Nicola T.","sequence":"additional","affiliation":[]},{"family":"Liaw Siaw-Teng","sequence":"additional","affiliation":[]},{"family":"Michalakidis Georgios","sequence":"additional","affiliation":[]},{"family":"Vicente Mar&iacute;lia T.","sequence":"additional","affiliation":[]},{"family":"Bainbridge Michael","sequence":"additional","affiliation":[]},{"family":"International (IMIA) and European (EFMI) Medical Informatics","sequence":"additional","affiliation":[]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","e-Health Across Borders Without Boundaries"],"original-title":[],"deposited":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T16:05:47Z","timestamp":1740153947000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.medra.org\/servlet\/aliasResolver?alias=iospressISSNISBN&issn=0926-9630&volume=165&spage=135"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2011]]},"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/978-1-60750-735-2-135","relation":{},"ISSN":["0926-9630"],"issn-type":[{"value":"0926-9630","type":"print"}],"subject":[],"published":{"date-parts":[[2011]]}}}