{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,22]],"date-time":"2025-02-22T05:19:26Z","timestamp":1740201566056,"version":"3.37.3"},"reference-count":0,"publisher":"IOS Press","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2018]]},"abstract":"<jats:p>se-atlas &amp;ndash; the health service information platform for rare diseases &amp;ndash; is part of the German National Action Plan for People with Rare Diseases. The website www.se-atlas.de provides an overview of health care providers and support groups focusing on rare diseases in Germany. Since the start of se-atlas in 2013, several strategies are being developed and evaluated. This paper gives an overview about the expectations and visions for se-atlas at the beginning of the project, the challenges and lessons learned within the project period and how se-atlas is implemented today.<\/jats:p>","DOI":"10.3233\/978-1-61499-852-5-940","type":"book-chapter","created":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T07:07:16Z","timestamp":1740121636000},"source":"Crossref","is-referenced-by-count":0,"title":["Mapping of Health Care Providers for People with Rare Diseases &amp;ndash; From Vision to Implementation"],"prefix":"10.3233","author":[{"family":"Schaefer Johanna","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"family":"Tegtbauer Niels","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"family":"Pfeiffer Wulf","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"family":"Wagner Thomas O.F.","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"family":"Storf Holger","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","Building Continents of Knowledge in Oceans of Data: The Future of Co-Created eHealth"],"original-title":[],"deposited":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T07:27:50Z","timestamp":1740122870000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.medra.org\/servlet\/aliasResolver?alias=iospressISBN&isbn=978-1-61499-851-8&spage=940&doi=10.3233\/978-1-61499-852-5-940"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018]]},"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/978-1-61499-852-5-940","relation":{},"ISSN":["0926-9630"],"issn-type":[{"value":"0926-9630","type":"print"}],"subject":[],"published":{"date-parts":[[2018]]}}}