{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2022,11,2]],"date-time":"2022-11-02T13:28:32Z","timestamp":1667395712233},"reference-count":0,"publisher":"IOS Press","license":[{"start":{"date-parts":[[2022,1,14]],"date-time":"2022-01-14T00:00:00Z","timestamp":1642118400000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022,1,14]]},"abstract":"<jats:p>The FAIR Guiding Principles do not address the quality of data and metadata. Therefore, data collections could be FAIR but useless. In a funding initiative of registries for health services research, trueness of data received special attention. Completeness in the definition of recall was selected to represent this dimension in a cross-registry benchmarking. The first analyses of completeness revealed a diversity of its implementation. No registry was able to present results exactly as requested in a guideline on data quality. Two registries switched to a source data verification as alternative, the three others downsized to the dimension integrity. The experiences underline that the achievement of appropriate data quality is a matter of costs and resources, whereas the current Guiding Principles quote for a transparent culture regarding data and metadata. We propose the extension to FAIR-Q, data collections should not only be findable, accessible, interoperable, and reusable, but also quality assured.<\/jats:p>","DOI":"10.3233\/shti210850","type":"book-chapter","created":{"date-parts":[[2022,1,17]],"date-time":"2022-01-17T15:46:47Z","timestamp":1642434407000},"source":"Crossref","is-referenced-by-count":1,"title":["FAIR and Quality Assured Data \u2013 The Use Case of Trueness"],"prefix":"10.3233","author":[{"given":"J\u00fcrgen","family":"Stausberg","sequence":"first","affiliation":[{"name":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Essen, Germany"}]},{"given":"Sonja","family":"Harkener","sequence":"additional","affiliation":[{"name":"University Duisburg-Essen, Faculty of Medicine, Institute for Medical Informatics, Biometry and Epidemiology (IMIBE), Essen, Germany"}]},{"given":"Ekkehart","family":"Jenetzky","sequence":"additional","affiliation":[{"name":"Faculty of Health\/School of Medicine, Witten\/Herdecke University, Witten, Germany"},{"name":"Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center of the Johannes-Gutenberg-University, Mainz, Germany"}]},{"given":"Patrick","family":"Jersch","sequence":"additional","affiliation":[{"name":"Heidelberg University Hospital \u2013 Spinal Cord Injury Center, Heidelberg, Germany"}]},{"given":"David","family":"Martin","sequence":"additional","affiliation":[{"name":"Faculty of Health\/School of Medicine, Witten\/Herdecke University, Witten, Germany"},{"name":"Department of Pediatrics, Eberhard-Karls University T\u00fcbingen, T\u00fcbingen, Germany"}]},{"given":"R\u00fcdiger","family":"Rupp","sequence":"additional","affiliation":[{"name":"Heidelberg University Hospital \u2013 Spinal Cord Injury Center, Heidelberg, Germany"}]},{"given":"Martin","family":"Sch\u00f6nthaler","sequence":"additional","affiliation":[{"name":"Department of Urology, Medical Centre \u2013 University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","Informatics and Technology in Clinical Care and Public Health"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI210850","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,1,17]],"date-time":"2022-01-17T15:46:52Z","timestamp":1642434412000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI210850"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,1,14]]},"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti210850","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"value":"0926-9630","type":"print"},{"value":"1879-8365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,1,14]]}}}