{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,5]],"date-time":"2026-02-05T07:11:53Z","timestamp":1770275513524,"version":"3.49.0"},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"value":"9781643684567","type":"print"},{"value":"9781643684574","type":"electronic"}],"license":[{"start":{"date-parts":[[2024,1,25]],"date-time":"2024-01-25T00:00:00Z","timestamp":1706140800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,1,25]]},"abstract":"<jats:p>While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test\/lab results and prescription\/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.<\/jats:p>","DOI":"10.3233\/shti230938","type":"book-chapter","created":{"date-parts":[[2024,1,25]],"date-time":"2024-01-25T10:17:06Z","timestamp":1706177826000},"source":"Crossref","is-referenced-by-count":6,"title":["Mapping Patients\u2019 Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts"],"prefix":"10.3233","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0908-6173","authenticated-orcid":false,"given":"Anna","family":"Kharko","sequence":"first","affiliation":[{"name":"Department of Women\u2019s and Children\u2019s Health, Uppsala University, Sweden"},{"name":"Faculty of Health, University of Plymouth, Plymouth, United Kingdom"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3657-2476","authenticated-orcid":false,"given":"Charlotte","family":"Blease","sequence":"additional","affiliation":[{"name":"Department of Women\u2019s and Children\u2019s Health, Uppsala University, Sweden"},{"name":"Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6353-8727","authenticated-orcid":false,"given":"Monika","family":"Johansen","sequence":"additional","affiliation":[{"name":"Norwegian Centre for E-health Research, University Hospital of North Norway, Troms\u00f8, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3825-9355","authenticated-orcid":false,"given":"Anne","family":"Moen","sequence":"additional","affiliation":[{"name":"Norwegian Centre for E-health Research, University Hospital of North Norway, Troms\u00f8, Norway"},{"name":"Institute for Health and Society, Faculty of Medicine, University of Oslo, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2597-1079","authenticated-orcid":false,"given":"Isabella","family":"Scandurra","sequence":"additional","affiliation":[{"name":"Informatics, School of Business, \u00d6rebro University, \u00d6rebro, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0683-3877","authenticated-orcid":false,"given":"Brian","family":"McMillan","sequence":"additional","affiliation":[{"name":"Centre for Primary Care and Health Services Research, University of Manchester, Manchester, United Kingdom"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6839-3651","authenticated-orcid":false,"given":"Maria","family":"H\u00e4gglund","sequence":"additional","affiliation":[{"name":"Department of Women\u2019s and Children\u2019s Health, Uppsala University, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","MEDINFO 2023 \u2014 The Future Is Accessible"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI230938","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,1,25]],"date-time":"2024-01-25T10:17:07Z","timestamp":1706177827000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI230938"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1,25]]},"ISBN":["9781643684567","9781643684574"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti230938","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"value":"0926-9630","type":"print"},{"value":"1879-8365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,1,25]]}}}