{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T09:49:55Z","timestamp":1747216195571,"version":"3.40.5"},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"type":"electronic","value":"9781643685274"}],"license":[{"start":{"date-parts":[[2024,7,24]],"date-time":"2024-07-24T00:00:00Z","timestamp":1721779200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,7,24]]},"abstract":"<jats:p>In the Pakistani\/British Pakistani community in England it is quite common for people to marry close cousin relatives, which can increase the chances of certain genetic problems in their children. Families in these situations often have little knowledge of genetics and encounter difficulties accessing genetic counselling services and culturally appropriate genetics information is needed to support these families. We describe the co-design of a prototype culturally sensitive smart phone app with the British Pakistani community, to improve understanding of genetics and genetic services.<\/jats:p>","DOI":"10.3233\/shti240318","type":"book-chapter","created":{"date-parts":[[2024,7,24]],"date-time":"2024-07-24T11:46:25Z","timestamp":1721821585000},"source":"Crossref","is-referenced-by-count":0,"title":["\u062c\u0650\u06cc\u0646(Gene): A Co-Designed Smartphone App for Genetics Education and Empowerment in the Pakistani Community"],"prefix":"10.3233","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3365-7231","authenticated-orcid":false,"given":"Angela C.","family":"Davies","sequence":"first","affiliation":[{"name":"School of Health Sciences, The University of Manchester, Manchester, United Kingdom"}]},{"given":"Naz","family":"Khan","sequence":"additional","affiliation":[{"name":"Maternity and Neonatal Programme, NHS England"}]},{"given":"Alan","family":"Davies","sequence":"additional","affiliation":[{"name":"School of Health Sciences, The University of Manchester, Manchester, United Kingdom"}]},{"given":"Amy","family":"Vercell","sequence":"additional","affiliation":[{"name":"Maternity and Neonatal Programme, NHS England"}]},{"given":"Norina","family":"Gasteiger","sequence":"additional","affiliation":[{"name":"School of Health Sciences, The University of Manchester, Manchester, United Kingdom"}]},{"given":"Dawn","family":"Dowding","sequence":"additional","affiliation":[{"name":"School of Health Sciences, The University of Manchester, Manchester, United Kingdom"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","Innovation in Applied Nursing Informatics"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI240318","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,7,24]],"date-time":"2024-07-24T11:46:26Z","timestamp":1721821586000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI240318"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7,24]]},"ISBN":["9781643685274"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti240318","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"type":"print","value":"0926-9630"},{"type":"electronic","value":"1879-8365"}],"subject":[],"published":{"date-parts":[[2024,7,24]]}}}