{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T09:49:59Z","timestamp":1747216199729,"version":"3.40.5"},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"type":"electronic","value":"9781643685335"}],"license":[{"start":{"date-parts":[[2024,8,22]],"date-time":"2024-08-22T00:00:00Z","timestamp":1724284800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,8,22]]},"abstract":"<jats:p>At the core of the child\u2019s medical, social, and educational pathway, coordination and referral platforms (CRPs) for neurodevelopmental disorders (NDDs) have been gradually deployed in France since 2018 and support the early detection of NDDs in children. The 112 nationwide CRPs do not benefit from a common electronic health record system. Our aim was to propose an HER model for CRP to enable real-life data reuse, optimize care pathway management and conduct pre-screening for research. CRP data were collected (n=34) into an application enriched by a NLP tool extracting standardized scales for NDDs assessments from medical and paramedical professionals. NLP tool evaluation presented a precision of 86.4% and recall of 90.5%. CRP support was provided to 195 children included between 1 September 2022 and 31 August 2023, aged 4 years, with a sex ratio of 2.8, with delays reported in language (75%) and concerned by global developmental delays (16%). Children\u2019s ND phenotype and care pathway description could be automated by a harmonized and structured EHR. While many clinical situations are at an impasse, real-life data-driven evidence is particularly relevant in the context of NDDs, where early intervention plays such a key role in children\u2019s development and prognosis. A harmonized and enriched CRP database could benefit both individual and public health levels with pathway monitoring, intervention proposals and research pre-screenings.<\/jats:p>","DOI":"10.3233\/shti240816","type":"book-chapter","created":{"date-parts":[[2024,8,23]],"date-time":"2024-08-23T10:51:14Z","timestamp":1724410274000},"source":"Crossref","is-referenced-by-count":0,"title":["Coordination and Referral Platforms for Children Aged 7 and Under with Suspected Neurodevelopmental Outcome: What Data for Research on Care and Developmental Trajectories?"],"prefix":"10.3233","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6543-2301","authenticated-orcid":false,"given":"Marie","family":"Ansoborlo","sequence":"first","affiliation":[{"name":"EXcellence Center for Autism and Neurodevelopmental disorders, EXAC-T, 37000, Tours, France"},{"name":"Centre de donn\u00e9es cliniques\u2013 P\u00f4le sant\u00e9 publique pr\u00e9vention - CHRU de Tours, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Valentin","family":"Gaudichon","sequence":"additional","affiliation":[{"name":"EXcellence Center for Autism and Neurodevelopmental disorders, EXAC-T, 37000, Tours, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Margaux","family":"Hazard","sequence":"additional","affiliation":[{"name":"EXcellence Center for Autism and Neurodevelopmental disorders, EXAC-T, 37000, Tours, France"},{"name":"Plateforme de Coordination et d\u2019Orientation d\u2019Indre-et-Loire (PCO-37), France"},{"name":"Service Neurop\u00e9diatrie et Handicaps \u2013 CHRU de Tours, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hugo","family":"Zopppe","sequence":"additional","affiliation":[{"name":"EXcellence Center for Autism and Neurodevelopmental disorders, EXAC-T, 37000, Tours, France"},{"name":"Universit\u00e9 de Tours, INSERM, Imaging Brain & Neuropsychiatry iBraiN U1253, 37032, Tours, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Diane","family":"Defresne","sequence":"additional","affiliation":[{"name":"EXcellence Center for Autism and Neurodevelopmental disorders, EXAC-T, 37000, Tours, France"},{"name":"Plateforme de Coordination et d\u2019Orientation d\u2019Indre-et-Loire (PCO-37), France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katty","family":"Guinoiseau","sequence":"additional","affiliation":[{"name":"Plateforme de Coordination et d\u2019Orientation d\u2019Indre-et-Loire (PCO-37), France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christine","family":"Salpetrier","sequence":"additional","affiliation":[{"name":"Centre de donn\u00e9es cliniques\u2013 P\u00f4le sant\u00e9 publique pr\u00e9vention - CHRU de Tours, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Leslie","family":"Grammatico-Guillon","sequence":"additional","affiliation":[{"name":"Centre de donn\u00e9es cliniques\u2013 P\u00f4le sant\u00e9 publique pr\u00e9vention - CHRU de Tours, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fr\u00e9d\u00e9rique","family":"Bonnet-Brilhault","sequence":"additional","affiliation":[{"name":"EXcellence Center for Autism and Neurodevelopmental disorders, EXAC-T, 37000, Tours, France"},{"name":"Universit\u00e9 de Tours, INSERM, Imaging Brain & Neuropsychiatry iBraiN U1253, 37032, Tours, France"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","Digital Health and Informatics Innovations for Sustainable Health Care Systems"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI240816","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,8,23]],"date-time":"2024-08-23T10:51:15Z","timestamp":1724410275000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI240816"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,8,22]]},"ISBN":["9781643685335"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti240816","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"type":"print","value":"0926-9630"},{"type":"electronic","value":"1879-8365"}],"subject":[],"published":{"date-parts":[[2024,8,22]]}}}