{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,17]],"date-time":"2025-05-17T04:04:30Z","timestamp":1747454670537,"version":"3.40.5"},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"value":"9781643685960","type":"electronic"}],"license":[{"start":{"date-parts":[[2025,5,15]],"date-time":"2025-05-15T00:00:00Z","timestamp":1747267200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,5,15]]},"abstract":"<jats:p>Cancer is a major public health problem worldwide. In order to broaden the knowledge about this disease, INGENIO is a research project that aims to advance precision medicine by collecting and analyzing harmonised data from multiple sources and institutions. For this purpose, INGENIO implemented a common Electronic Data Capture (EDC) system built using REDCap. However, data collection methods must be homogeneous and evaluable, including data quality protocols to ensure the validity of the data. Thus, this work aims to implement a methodology for data quality assessment in a real-world environment based on the i\u223cHD framework. It was concluded that the Hospital Universitario 12 de Octubre had manually loaded 317 cases into the INGENIO EDC system from December 2022 to October 2024. The quality of the dataset set approached 95% of completeness and 100% of consistency, being the EDC data model designed and validated according to international guidelines.<\/jats:p>","DOI":"10.3233\/shti250445","type":"book-chapter","created":{"date-parts":[[2025,5,16]],"date-time":"2025-05-16T08:57:06Z","timestamp":1747385826000},"source":"Crossref","is-referenced-by-count":0,"title":["INGENIO-DQ: Data Quality Assessment for a Precison Medicine Data Model Using an International Common Framework"],"prefix":"10.3233","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5114-4344","authenticated-orcid":false,"given":"Paula","family":"Rubio-Mayo","sequence":"first","affiliation":[{"name":"Digital Research Group, Research Institute Hospital 12 de Octubre, Madrid, Spain"},{"name":"ETSI Telecomunicaci\u00f3n, Universidad Polit\u00e9cnica de Madrid, Madrid, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jens","family":"Declerck","sequence":"additional","affiliation":[{"name":"The European Institute for Innovation through Health Data, Ghent, Belgium"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julia","family":"Hern\u00e1ndez-S\u00e1nchez","sequence":"additional","affiliation":[{"name":"Digital Research Group, Research Institute Hospital 12 de Octubre, Madrid, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maite","family":"Mart\u00ednez-U\u00f1a","sequence":"additional","affiliation":[{"name":"Center for Biomedical Research in the Cancer Network (CIBERONC), Madrid, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Luis","family":"Paz-Ares-Rodr\u00edguez","sequence":"additional","affiliation":[{"name":"Center for Biomedical Research in the Cancer Network (CIBERONC), Madrid, Spain"},{"name":"Department of Medical Oncology, Hospital Universitario 12 de Octubre, Madrid, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Miguel","family":"Pedrera-Jim\u00e9nez","sequence":"additional","affiliation":[{"name":"ETSI Telecomunicaci\u00f3n, Universidad Polit\u00e9cnica de Madrid, Madrid, Spain"},{"name":"Better, Ljubljana, Slovenia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda Elena","family":"Hernando-P\u00e9rez","sequence":"additional","affiliation":[{"name":"ETSI Telecomunicaci\u00f3n, Universidad Polit\u00e9cnica de Madrid, Madrid, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Noelia","family":"Garc\u00eda-Barrio","sequence":"additional","affiliation":[{"name":"Digital Research Group, Research Institute Hospital 12 de Octubre, Madrid, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Juan Luis","family":"Cruz-Berm\u00fadez","sequence":"additional","affiliation":[{"name":"Digital Research Group, Research Institute Hospital 12 de Octubre, Madrid, Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","Intelligent Health Systems \u2013 From Technology to Data and Knowledge"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI250445","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,16]],"date-time":"2025-05-16T08:57:07Z","timestamp":1747385827000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI250445"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,5,15]]},"ISBN":["9781643685960"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti250445","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"value":"0926-9630","type":"print"},{"value":"1879-8365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,5,15]]}}}