{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,12]],"date-time":"2026-04-12T23:12:32Z","timestamp":1776035552348,"version":"3.50.1"},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"value":"9781643685960","type":"electronic"}],"license":[{"start":{"date-parts":[[2025,5,15]],"date-time":"2025-05-15T00:00:00Z","timestamp":1747267200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,5,15]]},"abstract":"<jats:p>The implementation of standardized long-term follow-up care for childhood cancer survivors is crucial for ensuring their well-being. In this paper, we focus on the integration of the Survivorship Passport into the German healthcare system, particularly through collaboration between the University Hospital Schleswig-Holstein and the German Childhood Cancer Registry. The SurPass aims to provide comprehensive treatment summaries and personalized care plans based on international guidelines. Using the PanCareSurPass project framework, we developed a method for mapping data from a clinical trial management system to the projects profile, facilitating the creation of necessary FHIR resources. Through an Extract, Transform, Load process and validation, patient data is transferred to the Survivorship Passportplatform. Our results demonstrate successful data flow from demographic, diagnostic, and treatment sources to the platform.<\/jats:p>","DOI":"10.3233\/shti250506","type":"book-chapter","created":{"date-parts":[[2025,5,16]],"date-time":"2025-05-16T08:58:46Z","timestamp":1747385926000},"source":"Crossref","is-referenced-by-count":1,"title":["PanCareSurPass Project in Germany: Local Developments for the Multi-Country Implementation Study of SurPass v2.0 at a Single Center in Germany"],"prefix":"10.3233","author":[{"given":"Anke","family":"Neumann","sequence":"first","affiliation":[{"name":"Institute of Medical Biometry and Statistics, Section for Clinical Research IT, University of Luebeck and University Hospital Schleswig-Holstein, L\u00fcbeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna-Liesa","family":"Filbert","sequence":"additional","affiliation":[{"name":"Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Diana","family":"Walz","sequence":"additional","affiliation":[{"name":"Division of Medical Datamanagement, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lisa","family":"Kn\u00f6rr","sequence":"additional","affiliation":[{"name":"Division of Medical Datamanagement, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrea","family":"Csipak","sequence":"additional","affiliation":[{"name":"Division of Medical Datamanagement, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Timm","family":"Lilienthal","sequence":"additional","affiliation":[{"name":"Division of Medical Datamanagement, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Franziska","family":"Richter","sequence":"additional","affiliation":[{"name":"Pediatric Oncology and Hematology, Department of Pediatrics and Adolescent Medicine, University Hospital Schleswig-Holstein, Campus L\u00fcbeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Judith","family":"Gebauer","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine, University Hospital Schleswig-Holstein, Campus L\u00fcbeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thorsten","family":"Langer","sequence":"additional","affiliation":[{"name":"Pediatric Oncology and Hematology, Department of Pediatrics and Adolescent Medicine, University Hospital Schleswig-Holstein, Campus L\u00fcbeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Josef","family":"Ingenerf","sequence":"additional","affiliation":[{"name":"Institute of Medical Biometry and Statistics, Section for Clinical Research IT, University of Luebeck and University Hospital Schleswig-Holstein, L\u00fcbeck, Germany"},{"name":"Institute of Medical Informatics, University of Luebeck, L\u00fcbeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jan","family":"Schladetzky","sequence":"additional","affiliation":[{"name":"Institute of Medical Biometry and Statistics, Section for Clinical Research IT, University of Luebeck and University Hospital Schleswig-Holstein, L\u00fcbeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Davide","family":"Saraceno","sequence":"additional","affiliation":[{"name":"Cineca Interuniversity Consortium, Bologna, Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Giorgio","family":"Cangioli","sequence":"additional","affiliation":[{"name":"HL7 Europe, Brussels, Belgium"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Riccardo","family":"Haupt","sequence":"additional","affiliation":[{"name":"IRCCS Istituto Giannina Gaslini, Genova, Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Desiree","family":"Grabow","sequence":"additional","affiliation":[{"name":"Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ann-Kristin","family":"Kock-Schoppenhauer","sequence":"additional","affiliation":[{"name":"Institute of Medical Biometry and Statistics, Section for Clinical Research IT, University of Luebeck and University Hospital Schleswig-Holstein, L\u00fcbeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","Intelligent Health Systems \u2013 From Technology to Data and Knowledge"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI250506","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,5,16]],"date-time":"2025-05-16T08:58:47Z","timestamp":1747385927000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI250506"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,5,15]]},"ISBN":["9781643685960"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti250506","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"value":"0926-9630","type":"print"},{"value":"1879-8365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,5,15]]}}}