{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,16]],"date-time":"2026-04-16T05:46:13Z","timestamp":1776318373910,"version":"3.50.1"},"reference-count":0,"publisher":"IOS Press","isbn-type":[{"value":"9781643686080","type":"electronic"}],"license":[{"start":{"date-parts":[[2025,8,7]],"date-time":"2025-08-07T00:00:00Z","timestamp":1754524800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,8,7]]},"abstract":"<jats:p>Centralized collection and processing of healthcare data across national borders pose significant challenges, including privacy concerns, data heterogeneity, and legal barriers. To study some of these challenges, we formed an interdisciplinary consortium to develop a federated health data network, comprised of six institutions across five countries, to facilitate Nordic-Baltic cooperation on secondary use of health data. The objective of this report is to offer early insights into our experiences developing this network. We employed a mixed-methods approach, combining both experimental design and implementation science to assess the factors influencing the implementation of our network. Technically, our experiments indicate that the network functions without significant performance degradation compared to centralized simulation. While use of interdisciplinary approaches holds a potential to solve challenges associated with establishing such collaborative networks, our findings turn the spotlight on the uncertain regulatory landscape playing catch up and the significant operational costs.<\/jats:p>","DOI":"10.3233\/shti251037","type":"book-chapter","created":{"date-parts":[[2025,8,7]],"date-time":"2025-08-07T11:38:58Z","timestamp":1754566738000},"source":"Crossref","is-referenced-by-count":2,"title":["Implementing a Nordic-Baltic Federated Health Data Network: A Case Report"],"prefix":"10.3233","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3603-175X","authenticated-orcid":false,"given":"Taridzo","family":"Chomutare","sequence":"first","affiliation":[{"name":"Norwegian Centre for E-health Research, Troms\u00f8, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aleksandar","family":"Barbic","sequence":"additional","affiliation":[{"name":"Group Research and Development, DNV, 1322 H\u00f8vik, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura-Maria","family":"Peltonen","sequence":"additional","affiliation":[{"name":"Univ. of Eastern Finland & Wellbeing services county of North Savo, Kuopio, Finland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Silja","family":"Elunurm","sequence":"additional","affiliation":[{"name":"University of Tartu, Tartu, Estonia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Lundberg","sequence":"additional","affiliation":[{"name":"Link\u00f6ping University, Link\u00f6ping, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Arne","family":"J\u00f6nsson","sequence":"additional","affiliation":[{"name":"Link\u00f6ping University, Link\u00f6ping, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emma","family":"Eneling","sequence":"additional","affiliation":[{"name":"Link\u00f6ping University, Link\u00f6ping, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ciprian-Virgil","family":"Gerstenberger","sequence":"additional","affiliation":[{"name":"Norwegian Centre for E-health Research, Troms\u00f8, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Troels","family":"Siggaard","sequence":"additional","affiliation":[{"name":"University of Copenhagen, Copenhagen, Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Raivo","family":"Kolde","sequence":"additional","affiliation":[{"name":"University of Tartu, Tartu, Estonia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Oskar","family":"Jerdhaf","sequence":"additional","affiliation":[{"name":"Link\u00f6ping University, Link\u00f6ping, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Martin","family":"Hansson","sequence":"additional","affiliation":[{"name":"Stockholm University, Stockholm, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexandra","family":"Makhlysheva","sequence":"additional","affiliation":[{"name":"Norwegian Centre for E-health Research, Troms\u00f8, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Miroslav","family":"Muzny","sequence":"additional","affiliation":[{"name":"Norwegian Centre for E-health Research, Troms\u00f8, Norway"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erik","family":"Ylip\u00e4\u00e4","sequence":"additional","affiliation":[{"name":"Link\u00f6ping University, Link\u00f6ping, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S\u00f8ren","family":"Brunak","sequence":"additional","affiliation":[{"name":"University of Copenhagen, Copenhagen, Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hercules","family":"Dalianis","sequence":"additional","affiliation":[{"name":"Stockholm University, Stockholm, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"7437","container-title":["Studies in Health Technology and Informatics","MEDINFO 2025 \u2014 Healthcare Smart \u00d7 Medicine Deep"],"original-title":[],"link":[{"URL":"https:\/\/ebooks.iospress.nl\/pdf\/doi\/10.3233\/SHTI251037","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,8,7]],"date-time":"2025-08-07T11:38:58Z","timestamp":1754566738000},"score":1,"resource":{"primary":{"URL":"https:\/\/ebooks.iospress.nl\/doi\/10.3233\/SHTI251037"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,8,7]]},"ISBN":["9781643686080"],"references-count":0,"URL":"https:\/\/doi.org\/10.3233\/shti251037","relation":{},"ISSN":["0926-9630","1879-8365"],"issn-type":[{"value":"0926-9630","type":"print"},{"value":"1879-8365","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,8,7]]}}}