{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T16:34:29Z","timestamp":1790008469004,"version":"4.0.1"},"reference-count":60,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2019,8,20]],"date-time":"2019-08-20T00:00:00Z","timestamp":1566259200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Alzheimer\u2019s Disease"],"published-print":{"date-parts":[[2019,10,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>People with Alzheimer\u2019s disease (PwAD) remain able to speak coherently about their daily life for a long time, and their level of awareness could be determined through their discourse. In a grounded-theory approach, awareness of self and awareness of disease are intertwined and can be observed through three domains: mechanisms, objects and modes of expression.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>Based on preliminary results, in this article, we present the ASDA (Awareness of Self and Disease Assessment), a new subjective measurement tool for awareness in PwAD. To consider its use in research and practice, we initially performed validation analyses, including internal consistency, test-retest reliability and interrater reliability analyses.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>The new assessment tool consists of a semi-structured interview and ratings of 22 items divided into three categories. As part of our observational study, we assessed a sample of 28 PwAD who participated in four interviews (one every two weeks).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>The ASDA shows good homogeneity within the domains of awareness and a certain degree of stability between two measurement times and between investigators. Missing values in the results provided information regarding awareness levels within and across the subjects.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The results suggest that awareness could be assessed through subjective experience without reference to a comparison.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.3233\/jad-190371","type":"journal-article","created":{"date-parts":[[2019,8,20]],"date-time":"2019-08-20T10:58:20Z","timestamp":1566298700000},"page":"841-850","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":14,"title":["Awareness of Self and Disease Assessment: Development and Validation of a Subjective Measure in People with Alzheimer\u2019s Disease"],"prefix":"10.1177","volume":"71","author":[{"given":"Amandine","family":"Mayelle","sequence":"first","affiliation":[{"name":"Univ. 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Lille, CNRS, CHU Lille, UMR 9193 \u2013 SCALab \u2013 Sciences Cognitives et Sciences Affectives, Lille, France"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2019,8,20]]},"reference":[{"key":"ref001","doi-asserted-by":"publisher","DOI":"10.1080\/17482631.2018.1490620"},{"key":"ref002","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2018.1488945"},{"key":"ref003","first-page":"102","volume":"24","author":"Billiet C","year":"2009","journal-title":"Psychology & 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